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Any "Flip-Flo" Valve Users Out There?

Posted , 6 users are following.

lander
lander

hi - i posted a while back regarding Flip-Flo's but no one responded from a personal point of view - ie actually presently  using or having previously used one.

i'm long-term foley with a posible distended bladder & about to have a turp in the next 3 weeks - it's been cancelled several times.

i'm really hoping that my bladder having been "rested" for nearly 2 years will have regained some tone.

would like to hear from someone who has actually used a Flip- Flo valve.

cheers

 

1 like, 10 replies

10 Replies

  • derek76
    derek76 lander

    Posted

    Have not used one but why a TURP rather than a more up to date procedure?

    Urolift, Green Light PVP,HoLep laser etc.?

    • lander
      lander derek76

      Posted

      what would you say is the most significant single benefit of having GL over TURP?
    • derek76
      derek76 lander

      Posted

      Practically bloodless and should be day surgery. I had a catheter overnight. It took me a few hours to start peeing after it was removed and I was not completely voiding until the second day.  Day two I travelled home by train from Newcastle to Edinburgh. Day three I went to the races like a normal day. Day five there was a bus strike and I walked two or three miles each way to an appointment. Tinted urine for the first three days and a little spurt of blood at the start for several days.

      It regrew over the years and I had holmium laser surgery rather different from PVP in 2013.Then they sent me home with a catheter in and it was left in for too long and caused an infection.  HoLep is now the laser surgery of choice for most patients but my local hospital does not do it. If you are in the UK look at the NICE site and find their write up on all of the present methods.

  • ianC
    ianC lander

    Posted

    I only had one for a couple of months. I then had a laser bore-out. I'm OK now, apart from still needing to get up at least once a night and often twice. I guess any 'toning' hasn't made much difference.
    • lander
      lander ianC

      Posted

      what did you do at night - did you have to connect to a night bag?

      also during your catheterization did you have a leg bag prior to the flip flo & if so could you please comment?

    • ianC
      ianC lander

      Posted

      Yes,  I had a night bag (tho' I forgot to open the spiggot once!). All worked well. Just turned the tap off in the morning; emptied the bag; and went about the day. No real problems - well, apart from the lack of sex!
  • sarasij81400
    sarasij81400 lander

    Posted

    No my dear, not me. But I don't like TURP-- done 5 years ago-- not successful, and there is a chance of very bad re3sult.
  • lander
    lander

    Posted

    thanks all - to be honest i did no research & thought turp was the so called  "gold standard"  for bph.

    however after doing some digging i found that the consultant who will perform the procedure is a pvp specialist.

    also, 2 wks ago i had a anaesthetics pre-assessment & the anaesthetist simply mentioned turp with spinal anaesthesia - again due to my ignorance i did not question him.

    i'm uk/nhs & have never met the consultant only one  of his  his subbordinates & she did not mention the actual procedure only that some blood would be evident post op.

    i'm now very confused  & rather concerned but, considering what i know about the consultant should i just resign myself to his care or email & ask what method he intends to use - if he says turp then to be honest,  am i in any position to question him? - seems i'm between the proverbial  "rock & a hard place" as  i'm due for admission within the next 3 wks.

     

    • derek76
      derek76 lander

      Posted

      You have rights . You are entitled to the procedure you want at the hospital of your choice thought it can take time. As the PVP is being done there I don't see a problem but you need confirmation that they will do it.

      As an extreme case a friend in the Scottish Highlands attending Raigmore Hospital in Inverness and only offered the Gold Standard insisted on going to Kings College in London for a PVP. It was eventually approved. NHS paid for his travel to London for initial appointment and when going for the operation and follow up appointment.  They would also have paid for a nights hotel after the operation but he stayed with his brother in London and went back to have his catheter removed in the morning.

      I did not claim for my three trips from Edinburgh to Newcastle but was entitled to. If you have problems with bloddy mindedness PALS the patients liason service at every hospital may be of help.

         

    • Lion62878
      Lion62878 lander

      Posted

      I had TURP two years ago and it did not yield good results. The symptoms persisted and considering the side effects I suggest you think twice before submitting yourself to the procedure. I regret for the TURP - it was presented to me as the silver bullet and and after a delay of of one year postponing it I ended up giving in. The after effects are not good so I suggest you shop around for the procedures being recommended to you by others in this discussion.
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