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This is my first post, I came across this website whilst browsing online looking for information.
I'll try to keep it as short as possible.
I am 28 years old and have 3 children. I have suffered from migraines since I was 9 and I am 3rd generation of my family to suffer from them.
Around 6 months ago my youngest son who is 5 started to suffer from these 'episodes' and it didn't take me long to realise they were migraines. I was concerned about him being so young and wasn't sure if they definitely were migraines because of his age but with each one it became more and more clear it was.
These episodes start in the same way. First he looses his sight in one eye, as you could imagine that is very distressing for a small child to experience. Then comes the nausea.
I took him to see the GP who agreed he is very young but said he was 99% sure it was migraines and referred us to see a neurologist.
We attended the appointment 3 months ago and the dr said it was most definitely migraines and explained what I already knew...there's very little that can be done about it! He then referred us to see a genetics dr and that appointment is at the end of October.
Since the visit to the nerologist 3 months ago my sons symptoms are getting worse with each migraine and we've had one migraine a week for the last 6 weeks.
My son now suffers with the loss of his eyesight, nausea, pain in his head, dizziness, slurred speech and he can be very unsteady on his feet. This is a massive increase since his first migraine and is very upsetting and distressing. He doesn't understand what is going on and cries hysterically. As a fellow migraine sufferer it breaks my heart that I can't help him. I give him calpol/neurofen but it doesn't help at all.
This evening he has suffered another migraine. It came out of nowhere (like the rest) and he has been very upset. At one point when he couldn't see he was shouting 'someone help me' and after an hour of feeling sick he said to me he couldn't take it anymore. This made me cry my eyes out. I plan to take him to the GP tomorrow but I'm worried they will just fob me off.
Does anyone have any advice? Has anyone been in a similar situation with a young child suffering?
Thank you for reading and sorry about it turning into an essay! Any help/advice is much appreciated. X
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