Any help or insight appreciated...

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Hello 

I am 34 years old, female and live in the uk. I am suffering from terrible fatigue and exhaustion for the last 2.5 years which came out of nowhere and has got progressively worse. I’m now at my wits end as I feel like there’s nowhere else to turn. I originally went to my gp 2 years ago for the fatigue which was out of character for me and was diagnosed with coeliac disease so they expected me to get better with the gluten free diet but I’m getting worse. I don’t feel terrible all of the time because I have limited my activities to basically nothing and when the exhaustion feeling hits, I can barely function; all I can do is cry I am so weak and exhausted. I feel so hopeless and keep going back to the gp but am getting nowhere. I’ve put in google my symptoms which has led me here so I wonder if anyone could possibly help please? 

List of diagnoses/ problems 

Diagnosed raynauds syndrome in late teens 

Diagnosed interstitial cystitis in early twenties 

Diagnosed ibs mid twenties 

Diagnosed coeliac disease at 33 

Vitamin b12 deficiency at 33, treated with injections 

Diagnosed oral erosive lichen planus (mouth sores& ulcers) at 33 

Diagnosed osteoporosis at 33

Diagnosed severe high blood pressure at 33 

Intermittent low potassium- ongoing 

Diagnosed vitamin d deficiency at 34 

Diagnosed iron deficiency at 34 

Itchy scaley dry patches of skin on back, upper arms, under breasts 

Joint pain at base of thumb - cyclical 

Joint paint in right knee & hip - cyclical 

Thanks 

Lauren x 

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4 Replies

  • Posted

    Hi Lauren,

    Well you have a few things going on that's for sure. You did not mention your line of work but most 30 year olds are trying to establish themselves, hence the stress factor which is major contributor to many autoimmune diseases. Did you have mono when you were younger??  Ask your doctor to get tested for the Epstein Barr Virus (EPV) to see what comes up. This could explain the extreme tiredness. I have this so I know what it is like.  I would also suggest you to see a dermatologist about your dry skin patches. If there is anything suspect, he should get it checked out for you and that could include biopsies and blood work.  If possible for you to get in the UK, take glucosamine sulphate 3x a day. Don't think about it, just take for a month regularly and don't even think it's not working.  You need to take it for at least a month to notice any benefits. Again I know from experience. Stress is the worst thing for your body and this may be affecting some of your deficiencies.  If you can at least get a few of these issues dealt with. it could give you a better understanding of what's going on. Autoimmune diseases are very complex so you need to be patient to try and weed out things as they all have the same attributes.  Let me know how you do and try not to stress out too much as well as try to get as much rest as possible.

    take care

    cheryl

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  • Posted

    Yes you could have something like that. I had some of your issues snd some different ones and was diagnosed with an auto immune disorder about 14 years ago. V difficult to get a diagnosis especially these days. You would be better to be reviewed by a good specialist either a rheumatologist or immunologist. You don't say where you are in the world but if in the uk you have a right to ask for a referral according to the patients charter and that is what I would do.

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  • Posted

    So sorry to hear that you are suffering!! I would reiterate that it is important to see a rheumatologist and have a series of tests for autoimmune disorders... RA, PsA, Lupus, etc.  Fatigue is a factor in many of these diseases.   If the consult is not conclusive, then try to consult with an Internist/infectious disease specialist also to discuss Lyme and other possible infections. You know your body. Advocate for yourself. What you are feeling is not normal and you need diagnosis and treatment. Good luck, Lauren!
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  • Posted

    Thank you for replying everyone. I will go back to my doctor again and try to get a referral. Thanks again, Lauren 
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