Skip to content
Ad

Lupus

Also known as SLE - Systemic Lupus Erythematosus

Can you help? Discussions needing a reply

All discussions in this group

Next
  • Lupus or Herpes help?!?

    So first let me tell you I have been having sex with my ex for 4 months(we broke up in the first month and just had sex for 3 months). We were only having sex with each other until one night he got a ride home from a girl and she guilt trapped him into giving him a b*****b. (idk if its true but she keep...

    Last reply
  • New Lupus Diagnosis - So Many Questions!

    Greetings I am newly diagnosed and after a brief summary of my experience with Lupus so far, I have some questions that I would LOVE answers to! Sorry if its long. Please just skim over the intro explanation and skip to the questions if you don't feel like reading. Its important for me to get answers ...

    Last reply
  • Could these symptoms be lupus?

    His please tell me could this be lupus? Lightheaded and dizzy for 2 years The veins on my hands and wrists sometimes turn very blue Begun getting breathless, feel like I cannot get enough oxygen and everything goes thick and fuzzy I'm knackered and achy in various parts of my body Pain in elbows...

    Last reply
  • Can you become allergic to plaquenil after many years ?

    Hi everyone, I have been on plaquenil for 8 years since I was diagnosed with cutaneous lupus and sjogrens. .My symtoms were malar rash , joint pain and fatigue .  Never had an issue with it . All of my symtoms disappeared . Recently I was having some health issues that come about a low immune...

    Last reply
  • Overwhelmed

    I was diagnosed with SLE, extreme photosensitivity and connective tissue disease. I also have liver hepatitis which has been ongoing since 2011. I am overwhelmed. My body is literally falling apart. My days are filled with doctor appointments, PT, and trying to control pain.  I take 400mg hydroxychloroquine...

    Last reply
  • Plaquenil

    My name is Tiffaney, I am 37 years of age, (three children 21,18 & 5) I have decided to take myself off the Plaquenil. I have been on it several months now and I am still in pain. I get no support from my family and when I am in pain no one believes me. It truly sad and no one knows how alone...

    Last reply
  • Lupus?Methotrexate?

    Hello! First time in this forum and please excuse my spelling because I am not a native english speaker. I have been diagnosed after changing 3 doctors with atypical Lupus (not having all the symptoms) mostly because I have positive ds DNA (240) but negative ANA,arthitis and constat joint and muscle...

    Last reply
  • very sick,not diagnosed,looking for insight

    Hello guys, I want to apologize in advance for the long post but I would really appreciate some insight and help, I am struggling really badly.  I am a 26 year old European woman and have been very sick for a year now. It all started last November after my gynecologist gave me a shot of progesterone...

    Last reply
  • Have had Lupus for 11 years

    Follow my story to see how I found out I have Lupus and how I manage it daily. Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details. http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts...

    Posted
  • NO LIVE CHAT GROUP FOR LUPUS PEOPLE???

    I have been looking for a live chat group for people suffering from lupus and cannot find even one??? How is this going to help me??? I went through a major flare up several years ago and have been denying I had this since, until now, I thought I would check out what other people have to say and I cannot...

    Last reply
  • SLE

    I was diagnosed with lupus 14 years ago which took almost 2 years and many, many blood tests to diagnose. At that time I was under the care of a Rheumatologist and a bowel specialist as I developed a very inflamed bowel due to the number of anti-inflammatory tablets I was taking. I have had to change...

    Last reply
  • Lupus Hair Loss

    Good Afternoon, Has anyone eels experienced hair loss. I have lost so much hair that its sad. I don't know if its the Lupus itself, the prednisone or the Plaquenil.  

    Last reply
  • rashes on face lupus

    have rashes on the right cheek and around the ears and there is a red swollen red plus black purple. doctor skin creates skin sample checks and declares me as sick lupus that strikes on the skin only. the doctor gives me pills and cream. I have been conducting ANA and all negative blood tests. after...

    Last reply
  • Differences is diagnosis

    Hello all, So I have recently been diagnosed (kind of) with lupus based on my symptoms that I have an my Ana titer of homogeneous 1:160 and speckled 1:80 and markings for inflammation. I have had constant low grade temps for months and the aches in my bones, joints and hands and ankles and toes feel...

    Last reply
  • Within range with Speckled results. Still no diagnois.

    I have had multiple blood work ups, full panels. My ANA range is 160 and but the doctors will not diagnosis me with Lupus or anything close. I've been rushed to the emergency room 3 times for inflammatory issues with my eye. The eye doctors consistently tell me it's an autoimmune issue but the...

    Last reply
  • Lupus Diagnosis, negative ANA

    Hi guys! I've been sick since 2011. It started with mono, and from there I just got a lot worse. Have Chronic Fatigue Syndrome/ ME, Fibromyalgia, chronic vitamin D deficiency, IBS, chronic nausea, PCOS, migraines and a LOT of joint pain- just to name a few. This year, I've gotten a lot worse-...

    Last reply
  • Could it be Lupus?

    I am a 19 year old female, and have had some health complications throughout my life. When I was younger, I was constantly coming down with infections like strep, ear infections, and sinus infections. Still, my immune system seems to be just as weak, and I've been in for such minor infections many...

    Last reply
  • Do I have Lupus?

    Hi all, I have seen several doctors over the last years and I suspect I have lupus.  My symptoms are: Chronic fatigue.  Sensitivity to sun, light and heat. I become very exhausted from heat (sometimes I can't move) and my skin is itching after sun exposure.  I always need to wear...

    Last reply
  • Rash on Knee (weeping) and Face (butterfly)

    Hi ​On Wednesday evening I noticed I had a red mark on my knee cap. It was in the shape of a `C` with curly bits on the end. Anyway, I thought nothing of it until the following morning when I woke up with really painful and achy knees. I felt awful, but pushed myself to go singing - which I spent 2...

    Last reply
  • Lupus or sjogrens?

    I have been feeling pretty sick for a while and seeing a whole bunch of doctors! I have quite a few symptoms that I'm not gong to go over now. I feel that I could have lupus. I saw a Rheumatologist who agreed that I likely have an autoimmune disorder. He ordered Lupus and Sjogrens tests. He told...

    Last reply
  • Possible Lupus

    Since having my son 4 years ago, I ended up having 2 PP infections a week after his birth. Since then, every week I deal with fatigue, fevers, malaise, and body aches. Wednesday through Saturday is the worst, and this has been every week for the last 4 years! My Primary has tested my thyroid, I've...

    Last reply
  • Pain management

    My pain management provider just dismissed me b/c I was out of state and not available for a pill count. I'm so discouraged, upset, and in such severe pain. It takes weeks to see another dr. I can't handle it anymore. Oh to sleep and not wake up

    Last reply
  • Joint Injections

    Hello, has anyone received injections to the joints for pain management/ a type of steroid. Did the medicine cause weigh gain? Did this make a difference with pain level or help with fatigue? I can no longer take asprin, ibuprofen nor Tylenol. Primary doctor referred me to pain management specialist....

    Last reply
  • Various symptoms for 3 years - Anyone find these familair?

    So the last 3 years have been frustrating for me.. I've got symptoms and no medical professional believes me or is willing to help so I'm coming on here to see if anyone is familiar with any of this.. I've posted this in a few different sections after doing a symptom check Symptoms from...

    Posted
  • Rashes

    My daughter 17 year old daughter was diagnosed with raynauds 2 years ago and recently she has developed rashes on her arms, hands, cheeks and eyelids that are red appear raised and scaly. I am worried as the doctors just seem to ignore it for hayfever but they are really weirds rashes only occuring when...

    Last reply
  • High CRP marker

    Hi I've been feeling poorly for quite a while. Went to Drs and he said I had an ear infection. Took antibiotics then still felt ill. I've had a pressure feeling in my head just around my right ear. I've had a few falls where for no apparent reason I've just fallen backwards (it's...

    Last reply
  • Lupus???

    Sorry long post here. Need some help. Going back about 4 years ago in summer I had lymph node enlarge behind right ear out of the blue. I was tested for lots of things all negative. A month later my left foot swelled really really bad. I had numerous ultrasounds. Cat scans and blood tests. All negative...

    Last reply
  • Drug hypersensitivity and lupus

    It seems that I have always had some sort of hypersensitivity to most prescription drugs, but now that I have Lupus it seems that it has exacerbated the problem and now I am overly sensitive to literally everything. Any one else dealing with this?

    Last reply
  • Advice needed- could I have lupus? Worth paying to get tested?

    Hello, I have had health problems for 3 years now. It all started with fatigue and a rash on my face- the rash was extremely painful and persisted for 6 months until I went gluten free and it disappeared. I still get regular rashes on my face, neck and upper chest. The rashes I get now are different-...

    Last reply
Next


We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.