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Lupus

Also known as SLE - Systemic Lupus Erythematosus

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  • Timeline of Lupus?

    I'm wondering if what I have could be lupus.... I lost 10-15 pounds a year and a half ago, followed by thinning hair that doesn't grow or grow back. I then started getting really cold and having low body temperature with some fatigue. Then several months later I started getting a pins-and-needles...

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  • Have l got lupus

    In 2006 I had a papelladem doctors never found the causes.since then I have had flare ups of stomach pains nausea.muscle fatigue joint pain.feeling tired.shortness of breath. headaches slight face rash.sensitivity to sun light also muscle spasms .on holiday last year had a droop to left hand side of...

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  • Undiagnosed

    Hi. I wrote earlier about my problems, various symptoms but no diagnosis. Breathing problems for years, suffocating, metacholine test positive but no asthma nor allergy (I don't have allergies, prick and blood tests done), malar rashes (I had photos), urticaria that lasted 7 days, random rashes...

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  • No diagnosis positive ANA 90+ recurring symptoms 12+ years

    Hey guys. I'm a 28 year old female. I've been told by a friend for years tha t I have lupus. This friend has had it herself for over 20 years and is a brilliant psychiatrist. In the area I live it is completely impossible to get a decent doctor. That is not helped by the fact that we only have...

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  • very sick,not diagnosed,looking for insight

    Hello guys, I want to apologize in advance for the long post but I would really appreciate some insight and help, I am struggling really badly.  I am a 26 year old European woman and have been very sick for a year now. It all started last November after my gynecologist gave me a shot of progesterone...

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  • Lupus? Lyme Disease? Something else?

    I’ve had symptoms for over a year but have been humiliated by doctors.. sent to mental health specialists numerous times for anxiety.. I even go back to GP and tell them the specialist I have absolutely nothing wrong and they send me back again!!! I’m the least anxious person ever! I’m 100% sure there’s...

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  • DLE

    So a few weeks ago I posted my worrysomeness on here about my results. I saw the rheumatologist yesterday and it was confirmed. Al though, he diagnosed me as having DLE and not SLE and said we’ll just have to keep monitoring me. Does anybody else have DLE? And would it be likely to turn into SLE? 

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  • What should I do to reduce lupus flares????

    Diagnosed with lupus 2 years ago, I've suffered from lupus flares often. Joint pain, fatigue and headaches find me whenever I'm under pressure. I wonder whether stress triggers flare ups. Even though I try to avoid stress, it still finds me. Who can suggest me how to deal with lupus flares???...

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  • Positive ANA and positive Ro/SSA but no diagnosis?

    Back in September, I️ visited my primary care physician due to constant fatigue (completely unable to keep my eyes open sometimes), excessive hair loss, dry burning skin, pain around my jaw and glands, and joint pain in my feet and knees to name a few things. She ordered blood work and my ANA was positive...

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  • Any help or insight appreciated...

    Hello  I am 34 years old, female and live in the uk. I am suffering from terrible fatigue and exhaustion for the last 2.5 years which came out of nowhere and has got progressively worse. I’m now at my wits end as I feel like there’s nowhere else to turn. I originally went to my gp 2 years ago for...

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  • Low compliment blood levels.. need help

    Hey all so i have been quite alot of trouble for the past 2 years almost and recently i have found out i have low compliment levels, c3 and c4 and the dr said i could possibly have lupus and has reffered me to a rheumatologist to hopefully get to the bottom of it..  any ideas or help would be great...

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  • Looking to help out patients with SLE!

    Hello everybody, I am 27 from Pakistan and i am an SLE patient. I was diagnosed when i was 16 like most of us here. I have had my ups and downs with the disease and now i plan to give back  by helping other patients conquer this disease.  Let me know if there are patients here from Pakistan,...

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  • Anyone have swollen chapped lips?

    Omg I have had problems with my lips being super chapped and swollen at times. I look like Angelina jolie lips. I have been diagnosed about 6 months ago with lupus then this started. It's very painful and sometimes itchy. I try to use chap stick and all kinds of balm. Anyone else have this?

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  • Pins and needles and muscle cramps

    Hi l have had lupus and sjogrens for about 12 years ive recently been getting pins and needles and muscle cramps and generally twitching in my legs im really concerned about this l dont think its peripheral neuropathy as there isnt any numbness im worried l may have ms as well now

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  • Weight gain?

    I would love to know if anyone else is having issues with losing Weight? I'm not on any meds besides ldn,was on pred, and I am usually doing keto or paleo and I exercise . I can't seem to lose any Weight! Could lupus cause this? I'm so desperate for answers.

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  • Lupus and vitamins

    Hi, I have been taking prednisone for 16 months, Imuran for 3 months, I am not taking any vitamins but I want to start taking a multi vitamin D and calcium. Anyone taking prednisone and imuran and also vitamins. If so, which vitamins. Thanks☺

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  • Discoid lupus

    Discoid lupus doesn’t seem to be improving despite methotrexate and hydroxychloraquine ... getting me down now as people keep staring at my face like I’ve got the plague. Still working but seriously don’t want to go out anywhere now . Anyone been similar but did improve??

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  • Really need some closure about my ANA results.

    Hello. So I’ve been having skin problems mainly eczema for about 4 years. I’m a 19 year old female. The dermatologist referred me to have an ANA blood test because he said sometimes the dark marks on my body is a sign of lupus. My test came back positive and he said something of 320 (I think  Ya...

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  • Systemic Lupus Erythematosus - Possible breakthrough drug Lupuzor

    Finally there could be hope for millions of sufferers of Systemic Lupus Erythematosus. Today UK company ImmuPharma announced the last patient had received their last dose in its Phase 3 trial of SLE drug Lupuzor (also known as IPP-201101 or Rigerimod) with the trial due to end in January 2018 and readout...

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  • Symptoms of lupus?

    Hoping for any advice from those with experience. In 2013 I had an incidental finding of a positive ANA speckled pattern with a titre of 1:360. This wasn't looked into as the doctor didn't think it was related to my problem at the time ('hives' over joints). Fast forward to recent years....

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  • Misdiagnosed

    It’s a long story which I will shorten. I have been in pain from my knee, fingers, wrist, neck, shoulder, hips, feet. Basically most places for years now. I also have problems with my teeth/mouth, and a whole lot of other symptoms. I was diagnosed with fibromyalgia about 5 years ago but I feel I am getting...

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  • Butterfly rash and long term issues

    After years of this ache and that ache early menopause, bilateral Achilles tendinitis, multiple neck surgeries serious back injuries, constant joint pain at one time or another, I was seen by my new primary care for a severe bad back which he thinks was caused by the flu overreacting and attacking my...

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  • White blood cells and platelets

    Hi Lupus friends. I was wondering if someone could answer a question regarding some of my blood work. Last July I went to the ER because I was experiencing chest pain which felt like a band wrapped around my chest squeezing. At that time I had no idea I may be suffering from autoimmune illness. I was...

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  • Could I have Lupus? Please help

    Hey... so... grab some popcorn. This is going to be a long story. In October 2015 I started to get severely dry skin that would itch to no end and patches started turning white or red and scaly. It happened on my arms mostly and a little on my legs. It went away on its own a few months later. Then once...

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  • Not my teeth

    Three weeks ago I began having pain coming from my teeth. A dental visit shows two cracked teeth. How that happened I have no idea. I found that lupus can help with this issue. I have had one tooth pulled and two abscesses burst. I have something between my gums and chin that is discharging puss......

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  • Anxiety over future...

    I am having a lot of anxiety and I am in need of support and/or advice from someone with more experience than I have. I have a lot of health issues. I am 24 years old and had to un-enroll from school and quit my job at a preschool this past summer due to health issues. I am still in the diagnosis process...

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  • Can someone be declared as free SLE

    In 2011 I was diagnose for SLE. I have undergo test such as renal biopsy , blood and urine test. From myrenal biopsy it shown scar in my kidney , my blood test show ANA is positive. My urine test shown a protein urea of 3++. Fyi. For your information, before and even after the diagnosed I never had...

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  • New to all this

    Hi, I do not have a Lupus diagnosis yet but my new primary care provider is leaning towards it. My symptoms that I now recognize as such started last year. I developed an itchy rash above my eyebrows and joint pain. This summer I drove the free lunch bus for the school district. It was very hot here...

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  • Possible lupus?

    Hey guys new to the group. I am a 23 yr old white male from Australia.  I have been having multiple problems for awhile now and have numerous testing done. Just recently i had a complement blood test to check the c3 and c4. Both are low and my gp has reffered me to a rheumatologist saying it could...

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  • Could this be Lupus?

    After a very long time of not exactly knowing what's been going on with me, a few people told me I might have Lupus. I went to the doctor and they said it's possible but I have to wait for test results and even then it's hard to tell. I wanted to ask people who suffer with Lupus if they experience...

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