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Lupus

Also known as SLE - Systemic Lupus Erythematosus

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  • very sick,not diagnosed,looking for insight

    Hello guys, I want to apologize in advance for the long post but I would really appreciate some insight and help, I am struggling really badly.  I am a 26 year old European woman and have been very sick for a year now. It all started last November after my gynecologist gave me a shot of progesterone...

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  • NO LIVE CHAT GROUP FOR LUPUS PEOPLE???

    I have been looking for a live chat group for people suffering from lupus and cannot find even one??? How is this going to help me??? I went through a major flare up several years ago and have been denying I had this since, until now, I thought I would check out what other people have to say and I cannot...

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  • SLE

    I was diagnosed with lupus 14 years ago which took almost 2 years and many, many blood tests to diagnose. At that time I was under the care of a Rheumatologist and a bowel specialist as I developed a very inflamed bowel due to the number of anti-inflammatory tablets I was taking. I have had to change...

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  • Lupus Hair Loss

    Good Afternoon, Has anyone eels experienced hair loss. I have lost so much hair that its sad. I don't know if its the Lupus itself, the prednisone or the Plaquenil.  

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  • rashes on face lupus

    have rashes on the right cheek and around the ears and there is a red swollen red plus black purple. doctor skin creates skin sample checks and declares me as sick lupus that strikes on the skin only. the doctor gives me pills and cream. I have been conducting ANA and all negative blood tests. after...

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  • Differences is diagnosis

    Hello all, So I have recently been diagnosed (kind of) with lupus based on my symptoms that I have an my Ana titer of homogeneous 1:160 and speckled 1:80 and markings for inflammation. I have had constant low grade temps for months and the aches in my bones, joints and hands and ankles and toes feel...

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  • Within range with Speckled results. Still no diagnois.

    I have had multiple blood work ups, full panels. My ANA range is 160 and but the doctors will not diagnosis me with Lupus or anything close. I've been rushed to the emergency room 3 times for inflammatory issues with my eye. The eye doctors consistently tell me it's an autoimmune issue but the...

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  • Lupus Diagnosis, negative ANA

    Hi guys! I've been sick since 2011. It started with mono, and from there I just got a lot worse. Have Chronic Fatigue Syndrome/ ME, Fibromyalgia, chronic vitamin D deficiency, IBS, chronic nausea, PCOS, migraines and a LOT of joint pain- just to name a few. This year, I've gotten a lot worse-...

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  • Plaquenil

    My name is Tiffaney, I am 37 years of age, (three children 21,18 & 5) I have decided to take myself off the Plaquenil. I have been on it several months now and I am still in pain. I get no support from my family and when I am in pain no one believes me. It truly sad and no one knows how alone...

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  • Could it be Lupus?

    I am a 19 year old female, and have had some health complications throughout my life. When I was younger, I was constantly coming down with infections like strep, ear infections, and sinus infections. Still, my immune system seems to be just as weak, and I've been in for such minor infections many...

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  • Do I have Lupus?

    Hi all, I have seen several doctors over the last years and I suspect I have lupus.  My symptoms are: Chronic fatigue.  Sensitivity to sun, light and heat. I become very exhausted from heat (sometimes I can't move) and my skin is itching after sun exposure.  I always need to wear...

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  • Rash on Knee (weeping) and Face (butterfly)

    Hi ​On Wednesday evening I noticed I had a red mark on my knee cap. It was in the shape of a `C` with curly bits on the end. Anyway, I thought nothing of it until the following morning when I woke up with really painful and achy knees. I felt awful, but pushed myself to go singing - which I spent 2...

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  • Lupus or sjogrens?

    I have been feeling pretty sick for a while and seeing a whole bunch of doctors! I have quite a few symptoms that I'm not gong to go over now. I feel that I could have lupus. I saw a Rheumatologist who agreed that I likely have an autoimmune disorder. He ordered Lupus and Sjogrens tests. He told...

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  • Possible Lupus

    Since having my son 4 years ago, I ended up having 2 PP infections a week after his birth. Since then, every week I deal with fatigue, fevers, malaise, and body aches. Wednesday through Saturday is the worst, and this has been every week for the last 4 years! My Primary has tested my thyroid, I've...

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  • Pain management

    My pain management provider just dismissed me b/c I was out of state and not available for a pill count. I'm so discouraged, upset, and in such severe pain. It takes weeks to see another dr. I can't handle it anymore. Oh to sleep and not wake up

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  • Joint Injections

    Hello, has anyone received injections to the joints for pain management/ a type of steroid. Did the medicine cause weigh gain? Did this make a difference with pain level or help with fatigue? I can no longer take asprin, ibuprofen nor Tylenol. Primary doctor referred me to pain management specialist....

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  • Various symptoms for 3 years - Anyone find these familair?

    So the last 3 years have been frustrating for me.. I've got symptoms and no medical professional believes me or is willing to help so I'm coming on here to see if anyone is familiar with any of this.. I've posted this in a few different sections after doing a symptom check Symptoms from...

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  • Rashes

    My daughter 17 year old daughter was diagnosed with raynauds 2 years ago and recently she has developed rashes on her arms, hands, cheeks and eyelids that are red appear raised and scaly. I am worried as the doctors just seem to ignore it for hayfever but they are really weirds rashes only occuring when...

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  • High CRP marker

    Hi I've been feeling poorly for quite a while. Went to Drs and he said I had an ear infection. Took antibiotics then still felt ill. I've had a pressure feeling in my head just around my right ear. I've had a few falls where for no apparent reason I've just fallen backwards (it's...

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  • Lupus???

    Sorry long post here. Need some help. Going back about 4 years ago in summer I had lymph node enlarge behind right ear out of the blue. I was tested for lots of things all negative. A month later my left foot swelled really really bad. I had numerous ultrasounds. Cat scans and blood tests. All negative...

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  • Drug hypersensitivity and lupus

    It seems that I have always had some sort of hypersensitivity to most prescription drugs, but now that I have Lupus it seems that it has exacerbated the problem and now I am overly sensitive to literally everything. Any one else dealing with this?

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  • Advice needed- could I have lupus? Worth paying to get tested?

    Hello, I have had health problems for 3 years now. It all started with fatigue and a rash on my face- the rash was extremely painful and persisted for 6 months until I went gluten free and it disappeared. I still get regular rashes on my face, neck and upper chest. The rashes I get now are different-...

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  • Referral to rheumatologist, positive ANA what will happen next?

    Hi all New to this forum so any replies would be appreciated. I'll give a brief history of symptoms. 4 years ago Raynauds started, 3 years ago reaction to sunlight itchy red swollen rash on hands and top of feet ( arms legs, any where exposed to sunlight, never on my face). September 2016 pain...

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  • Can a positive ANA only mean lupus?

    I've had a lot going on... Had a positive ANA Have constant low energy, joint swelling in hands, feet & knees, muscle pains, gastrointestinal & intermittent ovary pains, Intermittent breathing and rib pain, shoulder and shoulder blade pains. Fingers go white at times. Body feels like its...

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  • Lupus advice, please

    Hello, After a meningitis scare and hospital admission; I'm now being testing for lupus and other things. Basically, I was sent to the hospital because I had some Petechiae rash and a low grade fever (although I think my stressed may have caused the fever) I suffer from severe OCD and anxiety...

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  • See my previous post

    Sorry 2 long first post. To continue, if plaqunel lowered my titre to 1:80 homogeneous from 1:320 does that mean meds working and it is lupus not uctd?

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  • Malar rash or rosacea? Other symptoms sound like lupus?

    Hi all, Would appreciate your opinions since I know you're all going through it right now. I started feeling unwell about 4 years ago.  I'm 39 now. Started with bouts of extreme fatigue, extremely dry mouth, and gastrointestinal problems. Also, I developed inflammation of the costal...

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  • Possible lupus?

    Around 10 months ago I went on a camping trip and the following day I felt 'dizzy' or 'semi drunk' this has pretty much been constant ever since. The doctors diagnosed labyrinthitus but after four month I was exactly the same. I had ear tests with an ENT and results were normal. I have...

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  • Drug Induced Lupus Anyone?

    Hi All, I just had a severe shingles outbreak and was on Valtrex antiviral plus some PPI for acid reflux. I am now showing sign of possible Lupus. ANA positive and the double strand DNA test positive. Does anyone know if this could be drug induced lupus or I am in for a long ride with Systemic Lupus....

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