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Lupus

Also known as SLE - Systemic Lupus Erythematosus

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  • Should I Get Checked Out, or Am I Overreacting?

    Apologies in advance. This is a little long: I’m an 18 year old female. I’ve been sick with an array of symptoms and the doctors have yet to figure them out. Here they are: -rashes after being in the sun (no burns) -systemic reactions to foods, but allergy tests are negative -small infections on my...

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  • ANA 1:160 speckled. Is it definitely lupus?

    I am 29, white male. After severe symptoms, my neurologist sent me to do ANA and it turns out positive, 1:160 speckled. They automatically did Anti dsDNA (negative), Anti nRNP/Sm < 2.0 , Anti Smith < 2.0 Symptoms include: - Weakness/sensitivity on the right side of the face and right side...

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  • Severe Fatigue & Bone Pain

    I was diagnosed with Lupus SLE in April 2011. I have never had this bad of fatigue, or bone pain. (Going on 3mths consistent), i actually had to take a leave from work, currently off for 3 weeks and counting, 😐. Some of the blood tests they've ran lately point to a bone issue, but the doctors...

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  • 19 year old who needs help and advice. PLEASE.

    Im not sure where else to turn, please if you could take the time to read and respond it is greatly appreciated. I got sick with Hepatitis A in December 2017. Ever since then I’ve been having issues. Constantly sick, not feeling well and very upset. My doctor said the hepatitis cleared up ok but that’s...

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  • Monthly sore throats..

    Hello! I'm hoping that someone can help with some advice. I'm at a loss as to whats going on with me. I have not been diagnosed with lupus but when searching my symptoms I came across a few people who had been diagnosed that were having similar symptoms. Everything started about a year ago after...

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  • Lupus and vitamins

    Hi, I have been taking prednisone for 16 months, Imuran for 3 months, I am not taking any vitamins but I want to start taking a multi vitamin D and calcium. Anyone taking prednisone and imuran and also vitamins. If so, which vitamins. Thanks☺

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  • Doctor suspecting Lupus, advice please

    Here it goes. I have no idea what's wrong with me, but here are some of my symptoms and maybe someone can help. I've always had gi issues that started years ago. Since the birth of my son about 3 month ago, I've developed some very strange symptoms. It started as a headache about 2 months...

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  • What should I do to reduce lupus flares????

    Diagnosed with lupus 2 years ago, I've suffered from lupus flares often. Joint pain, fatigue and headaches find me whenever I'm under pressure. I wonder whether stress triggers flare ups. Even though I try to avoid stress, it still finds me. Who can suggest me how to deal with lupus flares???...

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  • Side effects problems

    I’ve been having some serious nausea and throwing up since I’ve started my treatment (chloroquine). Has anybody been on this treatment before and do you know how long this will last?

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  • Any special diet for Lupus ?

    For the past 2 years I have been having extreme fatigue, joint and muscle pains . Went to Doctor , my ANA was in the 1200’s , Vit D low evertything else normal. I also noticed that when I ate sometimes my fatigue would just hit me and I couldn’t do anything else. Went to rheumatologist he redid all the...

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  • Lupus and leg pain

    I have got lupus and antiphospholipid syndrome, I get terrible leg pain which feels like growing pains. I used to get it occasionally but recently have been getting it more approx twice a wk. No pain killers help even tramadol all I can do is rub my legs and just go to bed. It's a feeling like the...

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  • Su2 Su2

    Avascular Necrosis, anyone been diagnosed with it?

    Hi. As well as the regular lupus symptoms I'm being increasingly troubled by pain in my right hip. I was on steroids previously for a long time and am concerned about AN. I've booked a doctor's appointment to ask to be checked out but wondered if anyone in the group has been diagnosed with/treated...

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  • Pain, pain and more pain

    VA Hi everyone. I've had a bad week. Pain, pain and more pain. Stiff joints and agitated. Im clumsy dropping things, skin feeling like something crawling on me, and now i have a balled spot in the center of my head. Saw PCP today, said it's my nerves. I ware my hair natural for years now with...

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  • New Unknown Lupus Rash

    Hello. I have had Lupus for about 7 years and I need some help from the community.  I’ve had random patchy red/purple rash’s happen over the years on my face and chest but about 2 weeks ago I’ve broken out in a whole new kind of rash.  It started as small 1/6” small red ‘dot/spot’ rashes on...

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  • Low compliment blood levels.. need help

    Hey all so i have been quite alot of trouble for the past 2 years almost and recently i have found out i have low compliment levels, c3 and c4 and the dr said i could possibly have lupus and has reffered me to a rheumatologist to hopefully get to the bottom of it..  any ideas or help would be great...

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  • ANA insight?

    About me and my symtoms: I have been seeing a doctor for 5 years being in a state of constant fatigue. I have anxiety and after reading over my medical charts when I switched to this new doctor, he attributed my health to stress. However, I feel blue only when I my fatigue has been relentless. I have...

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  • ana test

    Can you on and off have positive Ana and then no Ana because my varies all the time and now its slightly positive with speckled pattern

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  • Timeline of Lupus?

    I'm wondering if what I have could be lupus.... I lost 10-15 pounds a year and a half ago, followed by thinning hair that doesn't grow or grow back. I then started getting really cold and having low body temperature with some fatigue. Then several months later I started getting a pins-and-needles...

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  • Have l got lupus

    In 2006 I had a papelladem doctors never found the causes.since then I have had flare ups of stomach pains nausea.muscle fatigue joint pain.feeling tired.shortness of breath. headaches slight face rash.sensitivity to sun light also muscle spasms .on holiday last year had a droop to left hand side of...

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  • Undiagnosed

    Hi. I wrote earlier about my problems, various symptoms but no diagnosis. Breathing problems for years, suffocating, metacholine test positive but no asthma nor allergy (I don't have allergies, prick and blood tests done), malar rashes (I had photos), urticaria that lasted 7 days, random rashes...

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  • No diagnosis positive ANA 90+ recurring symptoms 12+ years

    Hey guys. I'm a 28 year old female. I've been told by a friend for years tha t I have lupus. This friend has had it herself for over 20 years and is a brilliant psychiatrist. In the area I live it is completely impossible to get a decent doctor. That is not helped by the fact that we only have...

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  • very sick,not diagnosed,looking for insight

    Hello guys, I want to apologize in advance for the long post but I would really appreciate some insight and help, I am struggling really badly.  I am a 26 year old European woman and have been very sick for a year now. It all started last November after my gynecologist gave me a shot of progesterone...

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  • Lupus? Lyme Disease? Something else?

    I’ve had symptoms for over a year but have been humiliated by doctors.. sent to mental health specialists numerous times for anxiety.. I even go back to GP and tell them the specialist I have absolutely nothing wrong and they send me back again!!! I’m the least anxious person ever! I’m 100% sure there’s...

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  • DLE

    So a few weeks ago I posted my worrysomeness on here about my results. I saw the rheumatologist yesterday and it was confirmed. Al though, he diagnosed me as having DLE and not SLE and said we’ll just have to keep monitoring me. Does anybody else have DLE? And would it be likely to turn into SLE? 

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  • Positive ANA and positive Ro/SSA but no diagnosis?

    Back in September, I️ visited my primary care physician due to constant fatigue (completely unable to keep my eyes open sometimes), excessive hair loss, dry burning skin, pain around my jaw and glands, and joint pain in my feet and knees to name a few things. She ordered blood work and my ANA was positive...

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  • Any help or insight appreciated...

    Hello  I am 34 years old, female and live in the uk. I am suffering from terrible fatigue and exhaustion for the last 2.5 years which came out of nowhere and has got progressively worse. I’m now at my wits end as I feel like there’s nowhere else to turn. I originally went to my gp 2 years ago for...

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  • Looking to help out patients with SLE!

    Hello everybody, I am 27 from Pakistan and i am an SLE patient. I was diagnosed when i was 16 like most of us here. I have had my ups and downs with the disease and now i plan to give back  by helping other patients conquer this disease.  Let me know if there are patients here from Pakistan,...

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  • Anyone have swollen chapped lips?

    Omg I have had problems with my lips being super chapped and swollen at times. I look like Angelina jolie lips. I have been diagnosed about 6 months ago with lupus then this started. It's very painful and sometimes itchy. I try to use chap stick and all kinds of balm. Anyone else have this?

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  • Pins and needles and muscle cramps

    Hi l have had lupus and sjogrens for about 12 years ive recently been getting pins and needles and muscle cramps and generally twitching in my legs im really concerned about this l dont think its peripheral neuropathy as there isnt any numbness im worried l may have ms as well now

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  • Weight gain?

    I would love to know if anyone else is having issues with losing Weight? I'm not on any meds besides ldn,was on pred, and I am usually doing keto or paleo and I exercise . I can't seem to lose any Weight! Could lupus cause this? I'm so desperate for answers.

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  • Discoid lupus

    Discoid lupus doesn’t seem to be improving despite methotrexate and hydroxychloraquine ... getting me down now as people keep staring at my face like I’ve got the plague. Still working but seriously don’t want to go out anywhere now . Anyone been similar but did improve??

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  • Really need some closure about my ANA results.

    Hello. So I’ve been having skin problems mainly eczema for about 4 years. I’m a 19 year old female. The dermatologist referred me to have an ANA blood test because he said sometimes the dark marks on my body is a sign of lupus. My test came back positive and he said something of 320 (I think  Ya...

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