Any ideas as GP's have no clue

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Hi, 12 months ago had allergic reaction to antibiotics, heart went crazy and face swelled, At the time GP did several ECG's and said just missed/extra beats.  But 3 times since then have been to A&E convinced I was having a heart attack.  I am female and nearly 57.  All tests, bloods, scan, xray etc negative. showed nil heart disease, bloods excellent, but still having wacky symptoms and now due to have a 24 hour monitor which doctors believe will still show nothing. This is what happens, happily sitting relaxed when my heart will thump causing me to cough and catch my breath, my pulse then races - goes from resting 72 - 108 in seconds, pain in left underarm and stabbing pain all across chest, headache and reduced sensation in arms. Feel what can only be described as if I am slightly vibrating and go all whoozy.  This can last for days or just a couple of hours, last bout 10 days ago lasted 3 days was walking around feeling as if I was in a lift which kept going down, not sure how else to explain it.  In A&E hooked up to monitor doctor could tell heart was racing, but blood pressure fine, thought it may be thyroid, all tests negative.  X ray ok, bloods yet again ok.  The first doctor looked at me as it I was mad, the next one said "sometimes there is no explanation, things just happen" which is ok if we weren't talking about such a necessary part of my anatomy and one which I want to keep going for many years to come.  I am not anxious or a nervous person, do not have panic attacks, do suffer with GERD.  One thing different this time is lower calves all red and swollen with defined marks where socks have been.  Doctor loooked at the clearly hot red lower legs and shook her head saying it was nothing. Odeoma is a sign of hear problems I think, but as I have no heart disease why would this happen.  Am at a loss to know where to go from here and more importantly as the pains are so bad sometimes how on earth would I know whether it was a heart attack. I am just trying to relax and accept that there is nothing sinister going on, but just not knowing is frustrating.

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  • Posted

    Google Gerd and Heart Rate to find others like us or Gerd and vagus (vagal) nerve.
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  • Posted

    If all the tests you've had are coming up negative it sounds as though they have been thorough but can't find any answers. I was told "" What can't be cured must be endured !!!""" This is of no comfort when you are worried. You say you aren't anxious but it does sound as if you are. There are such things as Silent Heart Attacks which although they don't have symptoms will show up in following blood tests.  As they have done these tests you can rule Silent Heart Attacks out.  Believe me when l say that when you're having a Real Heart Attack you will know so before you lose consciousness !!! The jumping heartbeats are called Extra Systoles and while it feels like your heart is missing a beat it is actually putting an extra one in. These can go on for minutes or months !!!  and can be most distracting and unnerviñg'.   Try to stop worrying, l know it's hard but it will only make your symptoms feel worse. When your body is in real distress ie. as in a full blown heart attack you really will be in no doubt as to what is happening. Try to disregard all these niggling worries. You have done the right thing by voicing your concerns and asking questions but there really aren't always answers. I was 8 stone all my life but having  Heart problems and Chronic Kidney Disease my Cardiologist blames  all my weight gain of 20 kilos , my breathlessness , my oedema which filled my whole body up with horrendous fluid taking my feet from Size 4 to size 7 and l was reduced to wearing one of my Daughters in laws size 7 enormous Crocks. I had to have a Zimmer Frame to support me and a walking stick. My legs were like how you describe yours , enormous bright red , puffed up tree trunks and so painful and uncomfortable. I was in and out of Hospital with SVT and AF more times than I could count. I was taken ill at work so many times over the years that on the same day my GP and my Boss at work both reached the conclusion that it was time l finished work. At this same times l had also been in the Psychiatric hospital a few times be as well. I really wasn't fit to work anymore, l had done my share since l was a part time  worker at the age of 12. I digress. As l said my Cardiologist blamed all my problems on my Kidney Disease and my Nephrologist blamed all my problems on my Heart Disease. I had my first heart attack when l was 62 ( and in ASDA !!! ) l knew straight away what was happening, l'm not a sweaty woman but my whole body from top of my head to tips of my toes was absolutely saturated with sweat , so much fluid just pouring out of every pore !!!  The pain up my neck, through my jaws, teeth, throat , tongue and chest was horrendous. I couldn't breathe. The Ambulance came , so l'm told, l hadn't much recollection of what was happening, all l clearly recall is this fantastic feeling of peace in my brain , then absolutely nothing for hours.  I woke up to hear a Doctor telling me that l was having a heart attack and that l'd had Cardiac Arrest !!!  There were two large patches of Elastoplast on my chest where they had Defribed me. I recall having an injection to stop blood clots and my ex husband and one of our Daughters sat by me. I remember the Doctor remarking that even though l was very poorly l was making him laugh !!!!14 months after this l had a Heart Ablation in Manchester. My Heart had developed rogue  electrical pathways which confused the beating of the chambers of my heart.  I had a line with a camera and a Laser on it inserted in my right groin and threaded up inside my body and across to my heart. Then the Surgeon Lasered out those electrical pathways. I carried on with my life. My Kidney Disease was worsening and l had put such a lot of weight on especially with fluid retention, Approx 3 and a half years later on my 66 birthday, we were on our way to ASDA for shopping when l had my 2nd Major Heart Attack. I can't remember anything . I was taken to Blackpool Victoria Hospital where a marvellous Heart Surgeon performed a Triple Heart By Pass and repaired my Main Aorta whic he said had been leaking for 20 years. It still has a very tiny leak now. I was extremely poorly for quite a while. They'd had a Dialysis team in theatre in case my Kidneys failed , luckily they held out. I had to have 3 pints blood transfusion and as l'm Rare blood group of Rhesus D Negative l have always been grateful,for that. Now after all this with years of Angina l thought l would be free of it and ok. But about 9 months after my By Passes l began to have chronic Angina again !!!  It turned out after ANOTHER Angiogram that my 4th Artery which had been perfectly clear when the others were by passed had clogged up something awful and the doctors were astounded at the speed it had clogged up. I went back into Blackpool Hospital and the surgeon inserted a. Polylactide Biodegradable Scaffold into my 4th Artery ( a Scaffold is the latest most efficient, long lasting and modern kind of Stent )  l still have times when my heart plays up. But l had more trouble with my leg( they take a vein from  the full length of my left leg and divided it into 3 to make the by pass arteries ) l have lost a lot of feeling and sensation in that area as the nerves were damaged  when it was removed.  I was so poorly and unable to eat much at all for quite a while l lost 20 kilos and could do away with that horrible Zimmer frame. I could walk under my own steam again !!!!   I have got End Stage 5 Kidney Disease, but as l'm 70 l'm not on the Transplant list. I have Kidney Dialysis 3 days a week moor approx 6 hours. I have been Bi Polar all my  also have Borderline Personality Disorder. I have got Bad Arthritis in my hips knees and degenerating thinning of my discs in my spine. I have been in the Psychiatric Hospital a number of times but l have worked all my life. My ex husband and l had 3 lovely Children who are 49, 43, and 38. They were fantastic with me as they grew up,and became 3 lovely people of whoem we are very proud. We have 5 lovely grandchildren. I have the best Family and Friends in the world.

     

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    • Posted

      Hi mo, thanks for a great reply. I am glad you have lots of support, I suppose that it was is driving me to sort this out as I have 1 son who is 17 and I want to be around to see him grow into an adult and make his way in the world. I am not by nature anxious but you are right this is making me a bit.  I am also grateful for your explanation of your heart attack, as I keep reading womens are so minimal that you would not always know you were having one, which is what worries me. I have had my blood tested to check if I have had one but all negative which is great. I am a bit overweight which is probably not helping leg as well as it being warmer now, until the weekend I have heard, I am also in UK. I am pretty healthy apart from gerd and these palpitations, although have heard menopause can cause these.  I am lucky compared to some so just need to accept things and get on with life. Take care look after yourself
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    • Posted

      Are you going through the Menopause ? It can do very strange things to some women. Friends of mine have reported such things as writing backwards, another keeping the salt and pepper in the fridge, another going to see the doctor about a worrying lump on her breast which turned out to be her breast bone !!! When l was going to see my Psychiatrist as far back as 1973 with my Bi Polar there would be women waiting to see him because . they were going through the Menoause and they were mentally disturbed having previously had lives which were absolutely free of depression and anxiety. !! It's easy to say "" Don't worry  !!"""  my ex husband next door neighbour gas said to me since the night we met thet if l haven't got something to worry about , l worry why l'm not worrying !!!  I never have peace in my head/brain/ mind  !! It's full of ceaseless, endless, eternal chattering , talking, arguing, bantering , there is no let up !!! There are too many people living inside my head and l get so tired of trying to shut them all up !!! It's just too crowded  !!!  There is an age old saying that "" Ignorance  is bliss !!"" Well if that is true l wish that l was ignorant and a bit dense because then l may find some peace !! Oh by the way , l nearly forgot , talking about the Menopause, l was one of the lucky ones, at 48 l had a couple of hit flushes and my periods just stopped dead !!!  There was no more horrendous, suicidal PMS, my moods which have always been and still are a living nightmare eased off by about 5% which was like a miracle for me cos anything that reduces them can only be a blessing. I didn't get the absolutely agonising tender, painful breasts anymore, l used to have to walk around with my arms out in front protecting myself !!!!  As for palpitations l have had them for as long as l can remember and still get them only not by any means as bad as l used to prior to Heart Attacks and By Passes etc. Because of my  Kidney Dsease l have hit my 15th Water Infection in 16 months. I've had a course of Antibiotics. Cefalexin 500 mg three times a day for each bout of infection. My Nephrologist Dr Ahmed in Iyar Renal Unit put me on a drug called Hyorex to stop me getting the infections but they haven't worked so he's introducing me to another one and l'm going to take the two on alternate months. Two months ago l developed a large swelling and l couldn't walk properly or wear underwear, my Nurses in Iyar Renal  Unit took the Micky out if me something awful, asking me where l'd left my Horse and calling m John Wayne !!!  LoL. I had to laugh through the pain cos l can see the silly side of almost anything. They were bringing me ice packs to try to soothe it !!  

      I have tried taking Statins often over the years for my Cholestral which can be as high as 9, but Atorvastatin messes my Bi Polar meds up plus l always gave a craving for Grapefruit and no one should eat Grapefruit when they're on Atorvastatin, they don't mix , but Grapefruit was all l could eat ( I'm not supposed to eat much of it cos of my Kidneys anyway) but it was taking the enamel off my teeth !! So they put me on Pravastatin instead but that still messed my meds/ brain up. So l stopped faking Statins altogether. My Cardiologist wants me to go back on Statins because l make a lot of Plaque in my arteries and while l'm not in trouble at the minute cos I've had four arteries done , he worries that they can soon clog up, and like my ex husband says, "" That vein that they took out of my left leg to cut into 3 sections to put into my heart was 66 years old then, it was quite old  !!!  """ Anyway my Cardiologist wants me to try Arubastatin  !!!  Then he said that if that affects me badly there are some other drugs that aren't Statins that may work. I asked him why l can't l just by pass the  Arubastatin and just go straight to the other one ?  and he said he wants me to try it !! I thought to myself that it's ok him saying that, but its my head that's being messed with, if l'm suicidal it's me that's suffering not him !!!! Well YAH, we will keep soldiering on and no one can say we haven't tried. I'm 70 in a few weeks and l'm tired but my friends have arranged me a lovely party, my children have arranged me two more parties so l'm looking forward to all that even though l will be taking it easy. There will be lots of fun and laughter even if l can't eat they all can. Take care. 

       

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  • Posted

    what antibiotic did you take?
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    • Posted

      Hi, I wish I could remember, all I know it that is was an unusual name and there were just 3 tablets, one a day which were equivalent of 21 apparently.  I had a carsinoma removed which became infected on my face and they gave me various ones to try and cure it. I took one of the 3 and within 2 hours my face became blotchy and my heart raced and jumped like mad, needless to say I never took the rest.  It has left me like this ever since. 
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  • Posted

    There are two possible factors that could affect your response to an adverse reaction to an antibiotic:

    1. Females have longer QT heart intervals (obervable from an ecg) than men, averaging about 480 milliseconds (men average about 440 milliseconds).

    2. This makes them more vulnerable to QT prolonging drugs - antibiiotics being amongst the major culprits.

    Your QT interval should be easily readable from an ecg trace by someone who knows where the interval starts and ends. The ecg should be taken as close to 60 beats per second (i.e. in a relaxed state) or derived from a digital ecg machine that can compensate for your heart rate - this should produce a corrected QT called QTc.

    Heart beat irregularities are more likely to occur when your QT interval plus the QT prolongation of your antibiotic are greater than 500 milliseconds.

    Your medical professionals should at least eliminate this possibility rather than dismiss this as just one of those things beyond their reasoning

     

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    • Posted

      Hi Bob, I wonder why GP's never put two and two together and look for these things, I have a follow up later this month and will be asking them about your thoughts. My GP does know when all this started so hopefully can look into this for me.  I am really not happy just to accept it is one of things because it was not there 12 months ago so something must have caused it. Thanks again very useful. 
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  • Posted

    you need to find out what you were prescribed. It is possible that you have been floxed. This is a bad reaction to an antibiotic of the fluoro quinolone class. Cardiac problems are possible. I myself have had this. There are other delayed reactions possible too like tendonitis and neuropathies. You really must find out if you have had this as a firther exposure to any antibiotic in this class must be avoided like the plague.
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    • Posted

      Hi Madge, I am so glad I posted on here as I now have a couple of ideas to put to the GP when I see her later this month, I also intend to ask for a full list of the antibiotics I was given, there were 3.  Whilst I appreciate that GP's and A&E docs cannot know everything, I have seen a cardiologist and each time they were told that this started after antibioitics and not one of them has made the connection. So rather than just accept this is my fate, I am going to take lots of prints out regarding your suggestion and the one Bob kindly posted and get some answers, even if they say is not the cause, at least I know they have been thorough.  Having looked at the list I do seem to recall one of them had a X in the word, I have also suffered with an achilles tendon problem for over a year, which will not heal, may be connected. You say you had these tablets, did your GP agree it caused your problems and if so are you now cured or are these problems for life?  Thanks again and I will report back once I have seen GP.
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    • Posted

      Hi just thought I would call GP and check, was taking co-amoxyclav, erythramycin and floxacillin (not sure spellings are correct) are these the problem ones as I cannot find on the flox list.
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    • Posted

      I found a list of QT prolonging drugs at http://www.sads.org.uk/drugs-to-avoid/ that would present a risk of causing heart irregularities to people with a long QT interval LQTS). Whilst it is called Sudden arrhythmic death syndrome (SADS) for those with LQTS it nevertheless is important list for any people with longer than normal QT intervals.

      Terfenadine (Triludan) is one of the drugs that I took as an antihistamine for an insect bite before it was banned as a QT prolonging drug. I blacked out and collapsed at work before it was withdrawn from the market.

      There are also issues arising from the use of co-administered drugs due to unpredictable reactions.

      Unfortunately the pharmaceutical industry was required some years ago to assess most new drugs for QT prolongation but the overheads involved in such drug development seem to have precluded a comprehensive rollout of the Thorough QT assessment as it is called.

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    • Posted

      Of the quinolone class antibiotics that Madge mentioned, ciprofloxacin (Cipro), gemifloxacin (Factive), levofloxacin (Levaquin), moxifloxacin (Avelox) are amongst the list of drugs to avoid if you have longer than normal QT interval.

      Erythromycin, an antibiotic  ( Macrolide class)  is also on the list.

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    • Posted

      Floxacillin does not exist. Do you mean Flucloxacillin? The three you list are not fluoroquinolones. BUT you need to find out ifif you have been given a fuoroquinolone in the past as your Achilles tendon problem could be a result of that. The problem withFQs is that you can have delayed reactions months and even years after finishing the course. This is because they are not normal antibiotics but act like chemotherapy drugs. They mess with DNA particularly mitochondrial DNA. I have had ongoing tendonitis for years as I am pretty sure I was floxed while still living in the UK. The more times one takes these drugs the bigger the chance of a really devastating reaction. You can look fluoroquinolone toxicity up online but be warned - the stories of what some people have suffereed are horrifying and can be very frightening. But yo need to know if you have been given this class of antibiotic within the last 10 years. You need to badger your GP about this. On the whole GPs are cluless about the dangers of this class of drugs. My GP here in France accepts that I have had a bad reaction to FQ and should never be given this again. More importantly my endocrinologist accapts that it was likely the Cipro that caused my A fib and not too much thyroid hormone as the hospital cardiologist tried to make out.
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    • Posted

      If you always use the same pharmacy they will be able to give you a list of the ones you have been on.

      Boots evidently have a record of us from our name and DOB no matter where you have been to them. I went to one branch and he commented that I used to live in Edinburgh. I asked which branch he had worked at but he he just smiled and said he had not but we were all their system. 

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    • Posted

      Hi, yes I think is must be flucloxacillin, trouble is I spoke to receptionist who went through my record and even though they know I had a bad reaction to anti b, no note has been put on my file as to which one, I only know it was just 3 tablets, 1 per day for 3 days and she could not see that one on my records. I have had a lot of anti b's for kidney infections and chest infections over the last 10 years but have an appointment on 25th to get thyroid results and will be taking print outs of what you have mentioned and also what Bob has mentioned as both floxed and Long QT are well documented. I do not intend to just let this go until I am satisfied that there is nothing sinister. This morning straight from getting out of bed felt heart racing, dizzy and sick, could not stand straight. Checked HR is went from 66 to 104 without any reason. I also think that maybe Derek has a point about my GERD as it does happen quite a lot after food. For me it is not that I want there to be a problem, just that I want to understand why it is happening and not panic that I am going to have a heart attack at any minute. I will keep you posted. Take care
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    • Posted

      HI as mentioned to Madge I intend to get a full list of meds from gp next week. Looked up GERD and chest palps today and read all about the vagus nerve, I am wondering whether it may be acid related, but will try to get to the bottom of this so that I can just get on with life and not worry about every little twinge being a slient heart attack.
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    • Posted

      Hi, I have printed off details of the meds that cause problems and details of this problem so that when I see GP next week I can ask about them. I looked at an ECG online that shows Long QT and seem to remember mine having the bit spikes, so will be asking about that when I have my 24 hour monitor. Thanks for the advice much appreciated.
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    • Posted

      Hi, thanks for quick reply, that it what I am going to GP's for next week to get results, when in A&E last time doctor said she did not like the look of my neck, prodded and poked around and ordered some tests. My GP usually call straight away is they find anything but they have not so not too hopeful that it will be that. They have mentioned this before but the tests always come back negative. I have a lot of the systems of thyroid problems but all mixed up ie, I have hot face, cold hands, thin hair and dry skin, but struggle to lose weight. I seems to be jittery a lot of the time like I am being midly electrocuted, but when I mention this to GP's they look a bit strange. I seem to hit 50 and the menopause and all sorts of strange things began happening, I also have fybromyalgia from going into shock many years ago, that is what I am told caused it, so at the minute trying desperately to remain healthy and upbeat but lots of things going against me. I am just a bit tired of being fobbed off, but struggling to make myself heard if you know what I mean. Take care
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    • Posted

      I've been having those twinges and worse for 40 years. At one time I used to get a cup of coffee and light a cigarette until it passed but since I stopped smoking in 1993 I tend to drink a can of 7Up  to bring up the wind or chew a Bisodol that I find is as good as any of the prescription meds. I've been taking PPI's since 2001 and they don't help all that much. 
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