Any ideas ? Bppv

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Hi guys

I have been back to the doctors today and the doc seems to think I have bppv. One of my main symtoms seems to occur when siting talking to people or being on the computer typing !

Last week I got told it was anxiety however I was sitting today talking to someone who had hand moments while talking would this make it worse ?

So my questions are ...

Would bppv get worse by just being on the computer?

Could bppv get worse simply by sitting talking/observing someone ?

I don't get any dizziness during the night now which I did at the start (8weeks ago )

I am just trying to confirm it is bppv or could it be something else ?

My doc has gave me cerizeen and beta blockers

Your thoughts are appreciated !!

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10 Replies

  • Posted

    Hi Keith

    I started with BPPV when i rolled over in bed one night.  I then had a couple more episodes spread a few months apart.  Once you have a problem with your inner ear it affects every aspect of your balance and visual perception and takes time to regain whilst the brain compensates, so anything from following a line of text, to bright lights, to someone moving their hands about takes it's toll on perception.  Hopefully you are on the mend but perhaps it might be best to ask your GP to refer you.

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  • Posted

    Hi, Keith,

    I'm not sure if there's a big difference in symptoms between BPPB and VN (vestibular neuritis). I'm treating mine as if it were the latter, but I have to wait to find out for sure when I see a specialist at the end of the month.

    But my main symptom is spinning or dizziness plus nausea for several seconds at a time, about 5 times a day now. Sometimes I take meclazine if the nausea lingers. Mostly I depend on the Elpay maneuver daily (holding head in specific positions for 1 minute). I AM able to work on the computer with no problem. My Physical Therapist says that's because I'm focused on one thing, not moving the head much. I can also read for the same reason--focused on one thing.

    I do get dizzy in a busy supermarket or overstimulating visual. That might account for your dizziness when the person speaking to you was waving his hands around. Do you get dizzy if you just look into someone's eyes when talking? In that case, there would be no movement distracting you.

    I've also pinpointed some things that can trigger a spell:  looking up, say at a high cabinet, quickly sitting up in bed or the dentist chair, and getting out of a chair quickly, pivoting to one side. When I walk on the street, I can move quickly but I don't swivel my head much, again looking straight ahead.

    While I don't get overly depressed or have panic attacks, I do find, on a bad day, I am cranky and tired.

    I hope some of this may be helpful to you.

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    • Posted

      Thanks Marion

      That's a big help! I think the computer issue is prob me looking down at the computer keyboard !

      How long have you had this now? I am onto 9 weeks I got the twisting ect which lasts a few seconds at a time it does gow away it will just stop after that my focus wasn't great but that seems to have gone back to normal now.

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    • Posted

      It's about 7 weeks for me. One thing I know about the computer, even if you don't have dizziness, the height of the screen is very important. If it's too high, you have to look up. Which also hurts your neck; in my case once, it also hurt my shoulder and wrists. Chair height has to be perfect so your arms are on level with the chair arms, and you're looking straight ahead. This really fights against dizziness because you're focusing on one thing.
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  • Posted

    Keith,

    I have copied some info from a couple different web sites here to try to make it simpler for you to get a feel for what you have and what's going on and the fix.  If I give the web site the webmaster will not let this post, so don't think I'm a doctor or even smart, I just went there and read about this so many times I thought I would try to give you a condensed version of a lot of information. 

    Benign Paroxysmal Positional Vertigo (BPPV) is the most common disorder of the inner ear’s vestibular system, which is a vital part of maintaining balance. BPPV is benign, meaning that it is not life-threatening nor generally progressive. BPPV produces a sensation of spinning called vertigo that is both paroxysmal and positional, meaning it occurs suddenly and with a change in head position

     

    BPPV occurs as a result of otoconia, tiny crystals of calcium carbonate that are a normal part of the inner ear’s anatomy, detaching from the otolithic membrane in the utricle and collecting in one of the semicircular canals. When the head is still, gravity causes the otoconia to clump and settle ( When the head moves, the otoconia shift. This stimulates the cupula to send false signals to the brain, producing vertigo and triggering nystagmus (involuntary eye movements).

    Subtypes of BPPV are distinguished by the particular semicircular canal involved and whether the detached otoconia are free floating within the affected canal (canalithiasis) or attached to the cupula, in the middle of the center bulge,at the base of the semicircular canal, where the nerve attaches, sort of like where roots are attached to plant.  When this happens it is called cupulothiasis. BPPV is typically unilateral, meaning it occurs either in the right or left ear, although in some cases it is bilateral, meaning both ears are affected. The most common form, accounting for 81% to 90% of all cases, is canalithiasis in the posterior semicircular canal.

    The fix recommended for most forms of BPPV employs particle repositioning head maneuvers that move the displaced otoconia out of the affected semicircular canal. These maneuvers involve a specific series of patterned head and trunk movements that can be performed in a health care provider’s office in about 15 minutes. There are several types of maneuvers to be used depending upon where the crystals that are out of place are located.  Try googling "BPPV repositioning maneuvers".

    I hope this helps you out and that you keep faith.  If you have been diagnosed accurately and indeed have BPPV it is a lot better than having Vestibular Neuritis (VN).  VN is a real bummer, it takes a very long time to get over.

    Feel better soon.

    Ben  

     

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    • Posted

      Thanks Ben

      This is very helpful and hopefully to others to.I am still waiting on the confirmation from a specialist to confirm bppv but my doc is 90% sure which is good enough for me.

      Thanks again

      Keith

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  • Posted

    It definitely doesn't hurt to make sure you've been diagnosed right. What made your doctor say it was bppv? Did they do any maneuvers in the office such as an Epley? Also was this just a general doctor or an ENT or neurologist? I'd always recommend speaking with an ENT when it comes to dizziness. They just handle a lot more cases then a general doctor would, especially since it’s been going on for so long. 

    On a side thought, did you have any type of infection, especially in the ear before all this started? Only reason I ask is because it’s not uncommon for that to trigger vertigo. This form of vertigo is usually associated with labyrinthitis and in most cases clears up within a few weeks or months after the first onset. 

    Any form of vertigo I feel could be made worse being at the computer, especially if you’re looking up and down a lot like you mentioned. I've never had vertigo start just from talking to others though. Usually bppv starts when you first get out of bed or move from looking down to up quickly. At least that’s what I’m use too. These movements usually cause ear rocks to move which is what causes bppv dizziness. Good luck and let us know how you make out at the doctors. 

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    • Posted

      Hi been into see neurologist she thinks I have a silent migrane !

      The dizziness has eased a bit and my focus is slightly better now I have been given tablets ( only took a few )

      I now have and anxiety problem it's never ending

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    • Posted

      Forgot to write never had and infection I did however get a lot of stress around the time of this so the silent migrane makes sense.

      Neuorlgist did say it could be lab however more likely migrane

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