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Any new ideas I’m I missing something?

Posted , 4 users are following.

lori67
lori67

Diagnosed with Ls about 5 years ago. Its been miserable. Recently moved and found a new doctor that I really like. She gave me a small tube of Premarin to start with and prescribed Aquaphor and Clobestasol. It has really softened up the area but its been rough. At my

exam she said my labia hood was completely gone. My vaginal opening is about the diameter of a straw now. She says if i keep working the dilators and putting on meds the opening will widen and eventually unseal. The kit i purchased i have seven. I did finally get the first one in successfully and i was thrilled! Six more to go! All itching and burning has finally subsided....until i tear it again. Sex has been non existent for three years now. Thank goodness I have an incredible husband. He even goes with me to my doctor appointments.

sorry about my ramblings...I wish everyone good luck.

0 likes, 1 reply

1 Reply

  • beverly52803
    beverly52803 lori67

    Posted

    lori, may I ask how old are you? What did the original doctor who diagnosed you prescribe? Were you given a regimen for the 5 years after being diagnosed? You must have been very uncomfortable if you lost so much architecture, especially if it is your clitoral hood that is gone.

    I was diagnosed with atrophy at 66 but avoided using hormone cream due to breast cancer in my family. However, I was diagnosed with LS three years later and that gyn prescribed hormone cream and a steroid ointment. I use hormone cream nightly and the steroid twice a week if not more. My gyn said in my case the LS was caused by low estrogen.

    I am now trying to get my insurance to cover tacrolimus (an immunosuppressant prescribed by a dermatologist) because I don't want to use the steroid as often.

    I wish you luck with your current regimen and am happy for you that you found a decent doctor. You'll have to keep us posted re your progress.

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