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Any one else have to hide there fibro in order to get help from the doctors ?

Posted , 7 users are following.

phill26750
phill26750

A few days ago my back started to play up ten times worse than it normally does. I had to hide my fibromyalgia from my doctor and hope he didn't see or mention it from my notes otherwise it would just be more pain killers. In the past I've suffered from pleurisy which led to me haveing 2 broken ribs. I was scared that this was pleurisy again and I thought If I mentioned fibro he wouldn't even think of looking for pleurisy. Any one else have doctor problems ? 

2 likes, 7 replies

7 Replies

  • anthony00827
    anthony00827 phill26750

    Posted

    Hey buddy your not alone there I have tried 7 different doctors still have know real answers I have also found some triggers for fibro stress and food additives such as msg  sulphites and also found that high doses of tumeric seemed to help away mate go to another doctor and see if they have a different treatment Tony from OZ.
  • Xxxxxtttttttttt
    Xxxxxtttttttttt phill26750

    Posted

    Yes, I hate mentioning it cos you know right away that they will put it all down to fibromyalgia, and depending on their belief, may even think its all in your mind. I dont mention it either if i can get away with it.
  • phill26750
    phill26750

    Posted

    Thanks guys. I know the whole shabang is right there on the computer but most doctors don't even check up on your history these days. Think I'm going to ask for a referral.
    • sunshinemb
      sunshinemb phill26750

      Posted

      Hi Phil

      The problem with the fibro/me/cfs patients' diagnosis is that everything can be attributed to that, because very few doctors think outside the box!

      I have had gall bladder symptoms for over 2years and it took a newly qualified young GP to find the problem! Now I am waiting for surgery!

      Don't get me wrong I have a very sympathetic GP re the fibro/me/cfs

      but unfortunately they cannot always see past your existing condition

      especially as there are so many symptoms!

      I would definitely ask for a referral or try and see another GP!

      Good Luck Phill and hope you get some help soon?!smile 

  • jill128
    jill128 phill26750

    Posted

    Hi Phil

    it depends on which doctor i see, more often than not, i dont go anymore, as fed up of been told its the fibro. Its all across my notes so any of them can see it. Sometimes i feel fobbed off when just need reassurance and some testing that it is nothing worse . Hope your pain improving

  • Bouncyville
    Bouncyville phill26750

    Posted

    I'm very lucky with my gp. If I question symptoms being part of fibro he tells me off for ignoring things that could be something more serious.
  • hope4cure
    hope4cure phill26750

    Posted

    Phil,

    pleurisy is extremely painful and very different than FM. So soory u had broken ribs. That's is worse than Plurisy. 

    i have both . If u have FM  see a Rumy. They will help u with it and ask for PT to help with small stretches and exercises designed to keep the body from becoming stiff and cramping muscles.

    Good Luck biggrin

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