Any other ladies that have had Dermoid Cysts from both Ovaries ??
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Hi ladies,I decided to start my own thread as i dont want to freak out anyone whose new to the dreaded Dermoids!!though im not happy to see how many of us suffer with these things.I won't bore you with all my medical issues...In 2011 a year after having Gallbladder surgery,with Major complications,I was still in pain so had a CT scan that showed up a Dermoid Cyst 8×8 cm with a piece of pointy bone in it which was causing all my pain.I got referred to an Oncologist/Gyn and had it removed within 5 weeks.The Dermoid had grown from my left ovary and under my Uterus poking my right ovary (which is where I got most of the pain) I had to have the ovary and both damaged fallopian tubes removed via keyhole.I was 42 and lucky enough to have had 4 children.I was told after that I would have no further problems,Dermoids are rare and that my periods and hot flushes would calm down now as the Dermoid had caused it all.I have felt like blah ever since,periods between 3-9 weeks,constant hot flushes and now tearful (all pointers to the Menopause) I had an MRI on my spine and it has showed up more Dermoids in my Pelvic area.Im gutted and in pain and annoyed that I didn't know any would grow from my seemingly healthy Ovary!!! I'm going to a Well woman's clinic on Monday and paying for some scans so I can get referred quickly.Last time I got the Cancer talk due to my age but at least I knew that one hadn't been growing for long as I had alot of scans for the Gallbladder.But I can't help but worry now I'm 46 and suspect these ones have been growing for 3-4 years.I had just reached the point of seeking a GYN as my periods and ovulation have become unbearable and I'd no idea I was at risk of more Dermoids!!!..I feel better for finding you ladies and talking to people who are going through this who totally understand.Thanks for any help/advice
0 likes, 14 replies
amy65421 dobb34487
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dobb34487 amy65421
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amy65421 dobb34487
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dobb34487 amy65421
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I nursed my Mum through Breast cancer Surgery,Radiotherapy &Chemotherapy last year so I can understand the hell you went through.I never knew much about it all,I suppose we don't until ourselves or someone close to us gets that shock diagnosis.Well done for sharing your story and educating others.Take care x
Cachermum dobb34487
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I'm interested to know if they scanned your right side when they found the dermoid cyst on the left....? Or if they spotted anything during surgery.
I'm having an MRI on Monday as I have cysts on each side, both suspected to be dermoid, though the smaller one is just the size of a grape so far.
These complex cysts are less common than the simple fluid cysts but the gyn told me that 15% of dermoid cases are then bilateral, and once both taken out they very rarely recur.
so perhaps you had the early stages of a cyst on the right and they just didn't spot it at the time. After the left one was removed perhaps your hormones fed the right one instead so it grew. Just theorising!
Although only my right cyst has caused real pain I'm asking them to remove both while they're in there! Save future complications.
I hope your issues are resolved quickly and you can start to feel healthy.
dobb34487 Cachermum
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I've been confused and was assuming that when the last one was removed that I'd feel normal again...but that didn't happen.Ive had the same dull ache in my right side since then (possibly thought to be Adhesions from both surgeries) so I wasn't worried and learnt to live with it.Though I had reached my pain limit a few days ago.I know when I Ovulate due to the pain and my periods do a painful announcement a week before they arrive!! I've had 3 periods that were late by 9 weeks,I think they may be the culprits and became Dermoids.Ive a busy few days so will been nicely distracted and Monday morning I'll have some answers and information.
You'd be better off having both sides removed, though it brings the Menopause earlier,and avoid any more complications.Do you have lots of hot flushes and feel very tired and hormonal?seeing as both sides are involved.
Good luck with your MRI on Monday and I'll let you know how I get on too.
Thankyou for replying,it feels like therapy x
Nessanay9 dobb34487
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dobb34487 Nessanay9
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From what I've read there's only a tiny chance of them being Cancerous but mainly if you're over 40,so try not to worry about that too.
Yours are still medically classed as small,and diagnosed before they got too big and destructive,so you've a good chance that your Ovaries could be saved and Docs are very good at preserving fertility when the patient is younger.
You could start your own thread specifically asking about fertility with Dermoid Cysts and it's surprising how many of us sufferers are out there looking for advice and help.And also for you to hear that there is hope sometimes.You must be so worried.Take care and don't scare yourself with what's on the Internet. Everyone's outcome is different.Good luck x
sha02133 Nessanay9
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elsj201634 Nessanay9
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My case is now being considered as urgent, and my consultant is attempting to get me NHS funding to have some eggs removed and frozen. (He is concerned that he may not be able to save any of my ovary; and i don't want kids now because i am still at school but want to have some in the future!) The only problem with freezing eggs is that they don't thaw too well, meaning that the whole process may not even work. A much more successful method is freezing embryos, so fertilizing the egg and then freezing it. I decided not to take this path, as i wasn't too keen on having a donor sperm, but if you are in a stable relationship, you could use your partners sperm and use this as a backup, just in case your ovaries cannot be saved.
I hope you get your case sorted asap, i understand how upsetting and stressful it can be, especially when it could affect having kids in the future!
Good Luck x
sha02133 dobb34487
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dobb34487 sha02133
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Please try not to worry about the possibility of Cancer.I went privately yesterday about my 2nd one that is 6×6cm and has a calcified lump and hair!!! I'm 46 and the Cancer rate goes up higher once youre older and I'm not worried one bit.I would worry more if it was an unidentified growth/Cyst but knowing it's a Dermoid means we should be fine
I know it's a worry and I won't lie the surgery takes a bit of getting over,so make sure you have someone to help for a week or two as you have a baby.I hope your reply gives Nessanay Some hope.Let me know how you get on with everything 💖
sha02133 dobb34487
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dobb34487 sha02133
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