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I have recently been diagnosed with fm and am having problems getting my family to discuss it let alone understand it. All my family have passed away and they are the only people i have to talk to. my first support group isn't until september. I feel like I'm screaming inside and don't know what to do...any suggestions? Jo
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Pinkgin64 josephine25095
Posted
I had difficulties at first as they were all full of ideas of what I should and shouldn't do. Although it was out of love for me I still found annoying as they weren't listening. I decided that they were going to have to sit and read about it so I went about researching as much as I could online and found some good stuff but so much drivel. Undeterred I opted for the leaflet approach. The Arthritis Research Council published a great little booklet on Fibromyalgia. It is concise and to the point and has a section regarding relatives and close friends. I know that my little tribe were more understanding once they had read what was needed from a relative/close friend. They are aware that stress is the greatest trigger, that I am in constant pain with little relief from pain meds and that I become tired more quickly than I used to. They are aware that the insomnia is a regular occurrence and that I can wake from a sleep feeling as though I have not slept.
I did get attitude from my youngest who is a male teen, he was resentful of the Fibro and, at times, it felt as though he was taking it out on me. I was patient with him and he's come to terms with it now. I had to reassure him that it was an illness, disease, syndrome thing and not terminal. Poor love was scared. My eldest knows better but has thrown a very large paddy as he has resented doing some of the housework. If you can reduce the level of stress at home and work you will benefit greatly. Mine is a work in progress.
I hope they understand the condition soon.
Good luck,
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