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I’m hoping anyone may have any thoughts or advice on my current situation.
After a car accident in 2014 – which I had not apparent injury’s but 2 weeks later I collapsed and after 3 week hospitalised – EEG’s EEG’s CT’s, MRI’s and finally a lumber puncture which all had no apparent results or reasoning for my diagnosis on epilepsy. The choice was we can keep you hospitalised for another month, do more tests etc. or we can diagnose you as being epileptic. I made the 2nd choice.
There has been no epilepsy in any of my family – both on the maternal and paternal side. No use of drug/alcohol addiction etc. etc. but at 44 I have been diagnosis of being epileptic.
I was originally on 350mg daily of TEVA (Lamotrigine) but that has since been increased to 500mg daily. There has never been a full epileptic ‘episode’ again but the Tonic/Colonic diagnosis is of nocturnal (between 3am – 5am for some reason!), and I was having ‘precursors ‘to an episode, smacking of lips etc. but it has never went onto a full seizure.
I discussed this will my GP who upped my dosage to 500mg a day. Initially this worked great – but in the past few month is seems to be wearing off as I am once again having the exact same thing happen overnight and I cannot go any higher a dosage as it moves onto being toxic.
Now when I has initially diagnosed as being epileptic in 2014 I was on a Phenytoin/Lamotrigine, high one the other low, balancing and eventually moving onto the high Lamotrigine dosage and no more Phenytoin.
Now as I say after a discussion with my GP this was upped to 500mg as I was having what seemed to be a pre-cursor of a full episode again?
This worked great initially but now I am having the same thing happen to me and now but I am very reluctant/cautions/scared to go down the Lamotrigene route, maintenance/ therapeutic dose as I come off one and onto the new medication. Last time it was hard!
Any suggestions/input would be grateful?
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