Posted , 25 users are following.
And if so, plase supply some feedback.
Also, is it true that remecade is the choice of drug for AS patients?
I was on humera for a short spell and the results were not good so I went back on remecade.
Eventually once again I would like to "try" something else, humera was not the answer and embryl will probably not work either.
2 likes, 65 replies
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kay72736 jim93390
Posted
I dont know about Remecade. I am on Enbrel and Sulfasazadine. Only 2 weeks on Enbrel and feel pretty awful for 3 days after the 50 ml pencil injection and no change to the back and SI joint pain nor fatigue and headache and chest pain. Can you tell me about your experience with Enbrel? I have been told Humira is good? (by a Rheumotolgist) though Enbrel has less side effects. All the best.
jim93390 kay72736
Posted
Never was on Enbrel. Tried Humera with disastrous results. Our bodies all react differently to the biological drugs out there. I was on Sulfasazadine about 12 years ago but built up an immunity to it. Next line of defense is methotrexate. After that an combination of methotrexate and biologicals. been on biologicals for ~12 years with methotrexate and occasionally have flare ups. Considered many times to switch to something else and one of my choices would (possibly) be Cosenoix. That's how this discussion originated: me asking about users of this drug.
The ONLY dislike for Remecade is the infusions every 7 weeks with the driving and 2.5 hour downtime.
kay72736 jim93390
Posted
jim93390 kay72736
Posted
Kay, it is time for U to be on something more potent. Once the damage (fusing) is done you cannot turn the clock back. Me, I maintain my sanity/health by exercising daily: yoga, spinning, pilattes, sculpt and tone, hard bodies, etc. Have to watch my sugar intake...diffuclt to accomplish but the benefits outweigh the consequences. Rhume told me that remecade was the best treatment and so far she has been correct. I was in sulsafine for 2-3 years and it did seem to help for a spell, but my body developed an immunity to it and had to go with something more powerful which was methotrexate, and then combo of methotrexate and remecade. I am awaiting the comments from Cosentyx, as to my inquiry about how their drug works differently than remecade.
will keep in touch,
Jim
kay72736 jim93390
Posted
Jim I agree with the exercise and diet. I have cut out Dairy and Gluten, ofcourse one gets xaught out every now and then when a restaurnat tells 'fib's' about what is in the food! And exercise too, I do my own physio at home, swim and walk (though that seems to hurt these days). Enjoy this and ambition is to do Yoga or Pilates. I am on Enbrel now. Side and long term affects of these drugs concern me greatly though on the really bad pain and fatigue days one is grateful. Occasionaly i take pain medications too and use the cream. I would love to be certain what triggers the worst days.??!!! My brother has As very early in life and has no drugs and no xray damage now at 60 years old, by lifestyle. I am unable to work for some time now but hope to again in the future. K
jim93390 kay72736
Posted
You have to think of who made up the side effects? probably attornys to protect the mother company. Crap, more people die from aspirin (and aspirin deritives) than car accidents. You do not see this kind of warnings on the aspirin bottles.
We just need to outlive to the day that they can solve this riddle that we have. Myself, I do not like being treated for the effects and not the cause either. We have about a handful of choices out there.
bazfraz jim93390
Posted
Hi I'm currently on cosentyx and it's possibly the best thing Iv ever done I went from from not sleeping from back pain and pain around my ribs to no pain at all and I'm only on my third injection Iv had AS for over 10 years now with a fair few flair ups in that time I'm 30 btw but I can now safely say I'm excited for the future these injection have given me back my life I highly recommend them!
jjn80 bazfraz
Posted
That is so great! Just curiously, why is that the drug of choice, and not Humira, Remecade or other biologics? I'm pretty sure I'm going to start a biologic in a couple months and I'm still not sure which one I'm choosing.
bazfraz jjn80
Posted
Well I had a choice of all of them and was told they were all slow acting taking a good month before the results were seen but with cosentyx it works straight away and I was also keen on trying something new and so far I have no complaints but with it being relatively untried im not sure what the future holds but atleast I'm now away from taking 6 tablets a day and having regular injections in my back which is amazing and money saving!!
jim93390 bazfraz
Posted
bazfraz jim93390
Posted
Yes I do self inject once a week at the moment then I move to once a month in two weeks it's just a simple epi pen it takes about 1 minute to inject
john45638 jim93390
Posted
Guest jim93390
Posted
Hi, I have recently been diagnosed after suffering with RA for 17 years. Would say I am chronic at the moment and so tired I just want to lie down and sleep but I know that's probably the worst thing I could do!! Due to start Cosentyx next week but concerned about side effects. Read on here that someone had to have their bowel removed after difficulties and they said they were sure the drug caused this, although medical professionals won't accept that.
My initial concern is lung problems as on Methotrexate I contacted Pneumonia. Scared in case I get the same problem.
Would really appreciate Consentyx feedback.
Thanks
jim93390 Guest
Posted
ALL of the biological drugs make a person more susceptible to colds, viral and other assortment of illnesses.
To protect you from SOME strains of pneumonia their are injections available.
Do that, for sure.
Wash hands religiously, stay away from sick people...etc.
cameron14972 jim93390
Posted
Recently I had an unprovoked pulmonary embolism. I have since stopped the Indomethicin and Humira. They were replaced with Cosentyx. I took my first shot five days ago without a loading dose.
Now I am not a sales rep for Cosentyx and I know its only been five days, but I feel better than I have felt in years. It may just be a coincidence that I am feeling this good, only time will tell.
Cameron
harold75373 cameron14972
Posted
Hello Cameron, Just curious if your still experiencing improvement with Cosentyx? I'm 51 and was diagnosed with AS in my late 20's and have been taking Humira for several years now, but, thinking of making a change to Cosentyx. My doctor added Gabapentin about 6 months and thats really helped, however, hopefully more improvement to come.
Harold
jim93390 harold75373
Posted