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Anybody on rituamab

Posted , 4 users are following.

maccy
maccy

Starting next week

0 likes, 6 replies

6 Replies

  • Rowbirdie
    Rowbirdie maccy

    Posted

    Do  you mean Rituximab?

    Several of us on the forum have this.

    I am just about to have the second infusion of 2 after my first set 7 months ago. It has made a significant difference to me.

    • maccy
      maccy Rowbirdie

      Posted

      Thats the one spelling not good for me i start girst in fusion on 15th really hoping it works how long did it take for you to feel a difference thanks
    • Rowbirdie
      Rowbirdie maccy

      Posted

      In with the infusion they also give you an antihistamine and steroid ( similar to prednisolone if you ve had that) This is to stop any allergic reaction to the rituximab.But it also means you get some relief almost straight away due to the steroid- 

      For me I had improvement after a few weeks, certainly after a month( though think they say up to 8 weeks) i

      Take something to read or music to listen to as you re there a long time- though I usually have a doze as well as the antihistamine makes you sleepy.

      Really hope this works for you- been brilliant for me.

    • maccy
      maccy Rowbirdie

      Posted

      Thank you thats great will let you know how i get on have a good xmas
    • Light
      Light maccy

      Posted

      Been brilliant for me too! Due for my second infusion in Jan.

      I waited an extra month because I was doing so well, and then the rheumy waited another for the same reason... I'm into my 9th month and still feeling great!

      Not everyone gets that extension though.

    • maccy
      maccy Light

      Posted

      Thanks for reply i have 1st on 15/12/15 then 2nd on 31/12/15 hope i have good result been horrible this past two months on nothing not been good at all
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