Anybody taking Prolia?

Posted , 11 users are following.

Is there anybody here that can help me? what do you think abou mt Prolia, it looks like it ia one of medication with not too much side effects. What do you think? Thank you so much

0 likes, 8 replies

8 Replies

  • Posted

    Yes, I have my second injection today actually, and I had no side effects from the first. HOWEVER... 

    do your research and follow some of the other threads on this forum about Prolia. It’s not as innocent as it sounds, and once started you’re on it for life so make sure you actually need it. If you haven’t had a dexa scan then best you get that done first to see if you are in the osteoporosis or osteoporenia catagory, and check your risk factors using the FRAX chart.  I’m not saying don’t take it..I do...I’m just saying be informed because I wasn’t. I was told I’d only need it for 3 years and now my rheumatologist admits it’s life for me.

    • Posted

      My rheum also told me a couple of years !!! I did take the 1st injection and didn't bother  again. My Dexa score was not that bad (-2.85) and according to the FRAX chart my risks of fracture were only 5%. I have had bad  falls recently and haven't broken any bones . I am trying with running , diet and supplements     

    • Posted

      In your case I definitely wouldn’t take it. Although I have always taken supplements, eaten well, was fit and active, and never had a break, my dexa score was -4 and risk of fractures was very high. I felt I didn’t really have a choice. 
    • Posted

      -4 is very high and I think in your place I would do the same. 
  • Posted

    Doctor wanted me to, I had already heard about it from my friend that takes it, she had broke arm and wrist, twisted her ankle a rash that put her in the hospital,  it has a lot of side effect's I told him no way, I would take it.

  • Posted

    Prolia (denosumab) can apparently increase bone density quite effectively in just a couple or three years.  However it has been discovered that when discontinued many people are now suffering rebound osteoporosis and experiencing fractures.  So either you stay on Prolia indefinitely, or you need to take another medication for a certain amount of time until the possibility of rebound effects are gone.  I personally don't know how long you'd need to be on the second medication and it would probably be either a bisphosphonate, or maximum allowable two years of Forteo (teriparatide).  Reeceregan is right.  Don't take it unless you know for sure you need it.  Now that we know what happens it should only be offered as a last choice for people in serious condition who must take medication and cannot tolerate the others. 

    If your DXA results are not too serious you could consider using nutrition, a couple of supplements, and appropriate exercise.  In fact I'd recommend that anyway as it can only do good, even if you must also take medication for a couple of years.

  • Posted

    My Dexa scan showed ostepenia in the spine, osteoporosis in the hip, so my GP prescribed Prolia, just for a couple of years she said!   However she also referred me to a specialist since I also have hypothyroidism and over medication  for that could be a factor.

    I researched the possible side effect of Prolia and was not prepared to go there.

    Anyway, the endocrinologist was horrified, and furious with my GP, for prescribing it.  He confirmed, as others here have mentioned, once you start you are on it for life.  He felt that at my age (almost 60) and fitness level (extremely fit) we could look at other possible causes for the osteo and find better management strategies involving supplements and nutrition mostly.   The endo felt strongly that we can manage this without osteo medication.

    My case is different due to my thyroid issues, but I would not rush in for Prolia injections,  some of the side effects although rare are very nasty if you are unlucky enough to get them.

    I would also suggest getting a referral to a specialist.  In my case it seems my GP was not really well informed enough to be prescribing Prolia.

  • Posted

    I have taken Prolia with no side effects.If you Google Prolia you may not want to take it. One of the negatives that I’m concerned about is if you stop taking Prolia you can get hairline fractures which is the reason to take it in the first place anyway.

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