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Anyone been diagnosed with enteropathic arthritis due to UC

Posted , 6 users are following.

diane03986
diane03986

I was diagnosed with left sided UC 2013 I have been up and down with it. 

I started in February with server joint pain I got a lump on my sternoclavicular joint I had to have it aspirated my diagnoses is enteropathic arthritis due to my UC I have also been admitted to hospital with a grade 4 thrombosis hemerrhoid and prolapse I have been in so much pain. I have been suffering with severs constipation I've had all sorts of laxatives I go from one extreme to another. I'm having transit studies done tomorrow and ano-rectal manometry test. I have been off work now for a while and am in fear of loosing my job. I think I have been through the alfabet of drugs the last was sulfasalazine which would of helped my UC and arthritis but got a bad reaction swollen eyes, mouth and tongue. At the moment on nothing!! 

0 likes, 5 replies

5 Replies

  • ann_and_nick
    ann_and_nick diane03986

    Posted

    Diane, I know your not on an easy road...you've a war in your digestive system...and there is no easy way to stop it...as you well surmise.

    Researchers in this field strongly believe UC is a digestive bacteria imbalance mostly within the 3 compartments of your colon...and to a lesser degree an auto immune disorder in many UC cases.

    Their reasoning holds water IMO...if corticosteriods are unable to stop the progression.....its not caused by an autoimmune disorder.

    While the following  is yet to be proven...Evidence is mounting that EA is a breach of your Tight Junctions ( TJ)...these are the spaces between your mucosal lining cells..they must be tight to prevent pathogens from entering your blood stream...chronic inflammation "can" compromise these junctions, in addition an absence of helpful proteins and other beneficial bacteria that "protect" these junctions. Once compromised, pathogens can enter your blood stream.

    The treatment that has shown to be quite effective is FMT but for many government fears, it will be years before it becomes readily available beyond CDifficle. At one recent time, there were UC and CD  FMT trials in the EU and elsewhere, search for FMT Trials to see if there are any openings for UC.

    The new biologics are a possibility, I have'nt followed them closely enough to provide advice but ask your dr's.

    I have strongly suggested  UC patients that have failed drug treatment  to begin a supplemental program of frequent daily pre and probiotics of all sorts (not tablet form)..capsule, and  fermented foods including kefir/yogurts along with 180/120 mg of epa/dha...twice daily. A gastritis type diet. There is scientific evidence with this protocol..in some cases it slows down or stops the progression. Ibuprophen at 200 to 400 mg helps "some" patients whereas other NSAID;s cause more problems. Of course tolerability varies but if one path is blocked try another.

    This protocol is to modulate the colon’s bacteria, and activate TJ protectives. (epa/dha)

    EA is not an uncommon consequence of UC...it’s just not readily diagnosed as a consequence.

     

    • diane03986
      diane03986 ann_and_nick

      Posted

      I had a faecal calprotectin test 2/6/15 colonoscopy 22/6/15 transit study's and ano-rectal monametry on the 9/7/15. I have just read a letter the consultant has wrote to my GP saying

      . Inerestingley this lady's feacal calprotectin was significantly raised at over 300 but my colonoscopy was microscopically normal they are now waiting for the results of the study's I have had. The monametry test was not good I have to go for biofeedback training.

      I have a appt with with my IBD nurse on Thursday hopeing she can give me some answers. I have a meeting with my manager on Friday and if I don't have any positive answers my contract is terminated! That's what you get for working for the NHS.

    • ann_and_nick
      ann_and_nick diane03986

      Posted

      Diane,

      Your far to adroit not to have "positive" answers..."IF".You know they have already made up their minds... you'll "undo" their thinking...asking the questions and have proof nearby (only if needed)..If there are reviews/legal probabilities, this meeting with your positive answers could become invaluable)

      .I know in addition to being smart you are what I consider a "trouper".. And you will overcome this UC issue.

  • ehsan18513
    ehsan18513 diane03986

    Posted

    There is already a successful treatment using clean poo from a healthy person to populate the intestine. Trials already happening in Liverpool hospital/Australia, as well as a medical clinic in Sydney. It has had a good success rate.
  • ehsan18513
    ehsan18513 diane03986

    Posted

    During the time I was diagnosed with proctitis, I also developed burning sensation during urination, as well as occasional slow flow which was painful. After cutting down on normal bread (possibly yeast alergy) and gluten, proctitis vanished and urination back to normal. I assume inflamation of the intestine was pressing on the prostate. I was told this is due to old age!

    Somehow, specialist refuse to believe in so many food alergies out there. 

    Genetically modified wheat is used to reduce use of pesticides, hence higher yield + cheaper. However, the reason is wheat generates internal poison of its own to defend against the pests, and we eat it....

    So far there has been near zero understanding of what causes food alergies.

     

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