Anyone do PAE with an IPP (median lobe pushing against bladder) --how did it go?

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My IPP is between 5 and 7mm my uro says (grade II). PAE research is mixed on this and even says it doesn't work when the IPP is taller than wide. Anybody have this and had a good result with PAE? How long did it last?

0 likes, 12 replies

12 Replies

  • Posted

    I have a 100g prostate with Median lobe pushing into the bladder, don't know how many milimeter. I had PAE done at Oregon Health and Science University in Dec 2013. It did not help, but caused no problems.

    • Posted

      100 g prostate is very large. What will you do after PAE did not help?

    • Posted

      I was able to urinate on my own with the help of Tamsulosin 0.8mg dose until May 2018. The flow slowed too much and the post void residual got to about 260 ml.

      I started using intermittent catheterization then, and have been doing it until now, Dec 2022. It works well for me, no drugs, no surgery, and retained all sexual function and no incontinence.

    • Posted

      do you mind me asking your age and how many times a day your catheterize? I tried doing it once and it was too tough for me to complete. It seems like for everyone here doing it it eventually gets easier.

    • Posted

      I am now 74. I started using catheters when I was 69. I learned how to do it at a Urology office. They had me start with the Bard red rubber catheters. They are very soft and flexible, so not irritating. You have to use external lubrication with them though. You squirt some lube on a paper towel or other clean paper, then twirl the end of the catheter in it, to coat the first several inches. That type of catheter is very flexable so you have to feed it in with your fingers which must be very clean. I cleaned them with antibacterial soap and water, and finally with alcohol. The first time I did it I had some bleeding and got a UTI, but they didn't tell me to wash my hands first.

      After the first few times it does get easier.

    • Posted

      Have you tried 5-alpha reductase inhibitors to shrink your enlarged prostrate?

    • Posted

      i tried Avodart for about a year. It caused some erectile dysfunction. The effect is more lasting than urologists might lead you to believe. I don't use it any more. I was able to urinate on my own at that time so not sure if it helped. I would not recommend taking it

    • Posted

      Why not consider the procedure but self-catheterization?

  • Edited

    I had a PAE. Didn't work. Scheduled for FLA (focal laser ablation) on Jan 10. I'm scared of possible bad outcome and/or it won't work either.

  • Edited

    Poorly. Surgeon failed to mention this little tidbit, that PAE does not work well for people with enlarged median lobes. Regret the surgery, as it resulted in minimal improvement, and complications that ended in Acute Kidney Injury. Four years out now, and any benefits are gone, and my prostate continues to bleed due to ruptured blood vessels apparently.

    • Posted

      Drivewest, how do you know that your prostate is bleeding ? The reason I ask is I had a PAE done that was very successful despite having a very large median lobe, however about 11 months after the PAE I started noticing blood in my semen which still continues to this day. The blood is just in my semen ,not my urine. Are you seeing blood in your semen or urine?

  • Edited

    Blood in ejaculate (hematospermia) since right after surgery, going on 4 years now. Surgeon said this was a known side effect, and that I should not worry about it, and that it eventually would go away. It hasn't. Ejaculation volume decreased by at least 50% after surgery too. Seems something involved in seminal fluid production was damaged or blocked, probably by scarring. There was a lot that I was not informed about prior to the procedure.

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