Anyone else fed up trying to find a cause of their dizziness?

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I have had dizziness since September 15, started off with what they thought was a bought of Labrythitus and then been diagnosed along the way with pretty much lots of different things while they try to work out what's the cause?!

Had so many tests tried all the meds and still no closer to the cause! Apparently it's vestibular migraines (silent ones most of the time), all my tests are clear apart from I have hearing loss in both ears but it's wouldn't effect my balance or cause dizzy spells!

Anyone else fed up of trawling the internet looking for answers or trying to find someone who has the exact same symptoms so they can just sympathise or relate to how you are feeling.

I honestly don't know where to turn or what to try next, the doctor have basically said they just don't have the answer which is upsetting as I went from a healthy ish 35yr old to a blubbering anxious mess overnight.

Do I believe the doctors in what they say...! Nope not one bit, do I try to self diagnose? Absolutely all the time, I have managed to convince myself I have got everything from cancer to diabetes and yes I am still here 1yr later and still breathing so I should accept what they say but my mind is telling me nope you have something more serious as you shouldn't be feeling this way for this length of time 😢

Anyone else relate? Cc

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  • Posted

    You are definitely not alone. I have been dealing with this since December and I am not the person I used to be because all I do is worry about every little ache and pain, then the anxiety kicks in the dizziness starts. It is a vicious cycle that I just can't shake. If I know i have to go somewhere and I have to drive my day starts off with anxiety because I am afraid I will get dizzy while driving. I always wondered does the pain cause the anxiety or the anxiety cause the pain. It's crazy but I hope you and all of us feel better

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  • Posted

    I've been dealing with this junk for about 6 yrs now. First it was anxiety ..depression ..vertigo migraines. I've had CT scans..MRI ..blood work like you wouldn't believe. Checking for lupus , MS, Lyme disease. It started with anxiety..yes. Then that weird feeling of wanting to jump out of your body. Pacing back and forth. Couldn't eat or sleep. Palpitations. ..nausea ...lightheaded ..faint like feeling. Then one day at work..back in 2011 ...I felt this swaying while at my desk. The computer seemed liked it was swaying so I freaked out and panic set in. I couldn't be at my desk for long. Always stepping away and going outside. Felt like I needed oxygen to my brain. Now its super intense. My neck and shoulders hurt all the time. My head feels heavy ...unbalanced ..unsteady ..faint like ..headache ...eyes hurt as if I didn't sleep at all. Constant pain in neck ..everything from shoulders up. Even my face and jaw sometimes. I cry. I can't work.I barely drive. And its a challenge. I feel weak fatigue. Saw rheumatologists and said i may have fibromyalgia. Im miserable. I know Im not who I was before. This pressure in my head. I don't want to take meds. Neurologist prescribed topomax but I never took it. Im just fed up. It makes living difficult. This is an everyday battle. All day. All I can do is pray and stay hopeful.

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  • Posted

    Hi Emma,

    Could you share your symtpoms.  I think there are quite a few people out there that might be able to help.  Example, do you have dizzy spells and if so how long to they last.  Or do you have more of an imbalance dizziness that is always there.  There are lots of different symtpoms and also many different conditions.  Really sorry to hear that you are getting fed up.  I can relate, it took me many years to get a correct diagnosis.  

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  • Posted

    Hi Emma. I totally relate to what your saying and have suffered 4/5 years of this I was exactly the same trying to self diagnose and fearing the worst all the time.

    I've tried a few diff tablets and now hopefully have found the right one!! Cinnarizine... There is such a thing as silent migraines you are not alone , loads of people suffer. Please stop stressing out as it will only make you feel worse

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