Anyone else feelng drained and ill using steroids?
Posted , 6 users are following.
I'm having an LS flare up at the moment so I decided to do the 6 weeks of clob application to try and keep it in check. I have been feeling very drained, tired and under the weather and thought it was because it's winter here in the UK and there are a lot of viruses going around at the moment. Then it dawned on me today that that it might be the steroid ointment that's making me feel so utterly awful because I can't think of what else it could be and I have been feeling like this for the last 2 weeks which is when I began the the steroid regime. does anybody else react to the clob this way?
Ive also been getting severe leg cramps over the past two weeks as well and this is one of the side effects of steroids. Im worried about it because we all know that the clob is the only thing that helps alleviate the symptoms of LS.
I would love to hear if anyone else reacts in this way and if you have come up with any solutions on how to help ease the side effects of the clob.
0 likes, 19 replies
sarah24152 deethebee
Posted
Hi ya !
You know your body best and what else is going on in your life at the moment. It's a busy time of year with so much going on, lots of virus' out there and you've got a flare up - it's no surprise you're feeling drained and under the weather.
Its easy to say but try and take things easy, be kind to yourself and get rest when you can.
My maintenance dose of Clob is 3 x weekly but a tiny amount every time I drop to 2 x week a start to feel bad because I use more. I had an appointment with a Derm last week who specialises in LS and took my tube along to show her. She reccommends that a 30g tube should last 6 months - mine will last a year and at the moment she could see no sign of the disease. She was happy with what I was doing I use half the dose of Ovestin per application ,when I had Amytriptelene I cut the tablet in half ( on advice of GP) so 5mg was enough. Some people (like me) are sensitive to the drugs and don't need as much at one time. I couldn't use Vagifem as the dosage was too high and made me feel awful.
Hope you get things settled soon !
Good Luck