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Anyone else had similar problems with thier Liver

Posted , 4 users are following.

ChrisA15
ChrisA15

2 years ago I had far higher thab usual Liver function test results and was referred to a hepatologist, I had a lot of ultrasounds on my body and was told I had scarring on my Liver. Recently I have been told that Fibroscan results suggests potentially early stage Cirrhosis. This scares me a bit as I am only 19, I have never drunk alcohol or smoked, yet I have these unexplained liver problems - is anyone else having similar problems?

0 likes, 11 replies

11 Replies

  • Gem1384
    Gem1384 ChrisA15

    Posted

    Hi Chris,

    Sorry to hear about you recent test results. It would worry me to be told I had early stage cirrhosis.

    Did they do a full liver blood panel?

    I don't mean liver function tests. I mean genetic markers, auto immune disease, full hepatitis panel, HIV etc.

    If you have honestly not drank a drop of alcohol and your diet is good. I think the reason for this must be something along the line of genetics or hepatitis. Lupus can cause liver problems. Have you done any research?

    Gem

    • ChrisA15
      ChrisA15 Gem1384

      Posted

      Hi Gem,

      I have had Glomerulosclerosis since birth so I don't drink alcohol to avoid further damage to kidneys and diet is fine. I have had the full blood tests several times which all came back fine, I have been referred to the Liver specialists at the Queen Elizabeth Hospital in Birmingham and even they are not sure of the cause of my liver problems. I had told them that my mother had Lupus but they don't seem to think it is that. I am certain it might be something genetic, because I recently looked at my medical history and it seems I was diagnosed with an enlarged spleen, which the doctors seem to think is related to the liver problem, when I was 2 so I plan to mention that when I go back up to Birmingham in a couple of weeks time - although no one in my family has any liver problems.

    • Gem1384
      Gem1384 ChrisA15

      Posted

      I have heard the liver specialists at the QE are very good. So you should be in good hands. I hope you get everything sorted. I can't imagine how you must be feeling. When my liver function tests came back high and my scan showed an unknown shadow I freaked out. Researched everything about anything to do with liver issues. Turned out it was just a fatty liver and I've now put that right and recent scans showed normal healthy liver but got debris in my gallbladder so gotta have that looked into.

      Good luck with everything. I would recommend Dr Google for something's and this time it may help you to be ready with all the stuff they might do or look at. I don't let the consultants pull the wool over my eyes and I know a lot about everything now which does help me. So try and be prepared. You might be able to suggest things or know of things they might not of thought of.

      All the best.

      Gem

    • ChrisA15
      ChrisA15 Gem1384

      Posted

      Thanks Gem

      Been doing a bit looking around on Google, the guys at the QE seem just as stumped about my liver problems as the Doctors at the RBH in Reading, Berkshire. Well I all can  is be optimistic I suppose.

       

  • just_me26595
    just_me26595 ChrisA15

    Posted

    What are your symptoms?
    • AlexandriaGizmo
      AlexandriaGizmo ChrisA15

      Posted

      So what treatment did they give you for your enlarged spleen and do you know the reason your spleen was enlarged as that could have a bearing on why your liver is playing up.

      Do you have a copy of your blood results as that can also show what your problem is.

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