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Anyone else had trouble being diagnosed with fibromyalgia?

Posted , 8 users are following.

nicole45099
nicole45099

I have been unwell with symptoms of joint, muscle aches/pains, exhaustion, headache, pins & needles, hair loss, dislike light/noise, to name a few for 2 years. I kept visiting GP but as blood tests normal was just left. Eventually saw a Rheumatologist who implied I have fibromyalgia but said I will not diagnose patient's with this as can mask more serious conditions. Discharged with no diagnosis, no advise. I asked GP if i could see another Rheumatologist and he said no waste of time they only deal with inflammatory conditions. I have now booked a private appointment with a rheumatologist to try and get a proper diagnosis and some answers. Has anyone else had this battle to get answers.

0 likes, 7 replies

7 Replies

  • gerry09721
    gerry09721 nicole45099

    Posted

    Up until recently FM was diagnosed based on symptoms . A medical test has recently been made available that is highly accurate  (99%) and is offered by EpicGenetics . Google EG and read about the test and a vaccine cure that is almost ready to go trial . An FDA approval is the last step.
    • darcik10
      darcik10 gerry09721

      Posted

      This is so encouraging. Have you taken the test? I am getting the information for my Dr to approve this. Thank you for sharing. 
  • Guest
    Guest nicole45099

    Posted

    1 and a half years and 20 or so medical professionals later I finally got a diagnosis.
  • delores08034
    delores08034 nicole45099

    Posted

    Wow Nicole, how dare that medical professional say that about you seeing another rheumatologist.... I have kicked quite a few doctor's to the curb. If they don't say what I seem to know about my body he/she has to go. Don't let anyone tell you about your pain and when they don't want to say it's fibromyalgia then you have to go see someone else. Do your research and learn or listen to your body.

  • abrasive
    abrasive nicole45099

    Posted

     To be restored with your previous healthy state would be what you should pray for.
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