Anyone else had trouble being diagnosed with fibromyalgia?

Posted , 8 users are following.

I have been unwell with symptoms of joint, muscle aches/pains, exhaustion, headache, pins & needles, hair loss, dislike light/noise, to name a few for 2 years. I kept visiting GP but as blood tests normal was just left. Eventually saw a Rheumatologist who implied I have fibromyalgia but said I will not diagnose patient's with this as can mask more serious conditions. Discharged with no diagnosis, no advise. I asked GP if i could see another Rheumatologist and he said no waste of time they only deal with inflammatory conditions. I have now booked a private appointment with a rheumatologist to try and get a proper diagnosis and some answers. Has anyone else had this battle to get answers.

0 likes, 7 replies

Report / Delete

7 Replies

  • Posted

    Up until recently FM was diagnosed based on symptoms . A medical test has recently been made available that is highly accurate  (99%) and is offered by EpicGenetics . Google EG and read about the test and a vaccine cure that is almost ready to go trial . An FDA approval is the last step.
    Report / Delete Reply
  • Posted

    1 and a half years and 20 or so medical professionals later I finally got a diagnosis.
    Report / Delete Reply
  • Posted

    Wow Nicole, how dare that medical professional say that about you seeing another rheumatologist.... I have kicked quite a few doctor's to the curb. If they don't say what I seem to know about my body he/she has to go. Don't let anyone tell you about your pain and when they don't want to say it's fibromyalgia then you have to go see someone else. Do your research and learn or listen to your body.

    Report / Delete Reply
  • Posted

    Oh and rheumatologist are the ones trained in fibromyalgia.
    Report / Delete Reply
  • Posted

     To be restored with your previous healthy state would be what you should pray for.
    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up