Anyone else have these symptoms?
Posted , 2 users are following.
I was diagnosed with WPW last November in the ER. I was having chest pain, neasea and hypertension. My family has a history of hypertension. The gave me a stress test, MRI and X-rays and my heart was functioning normal and looked well. I was put on a 25mg Metoprolol but the med was too strong for me, and my doctor switched me over to a 2.5mg dose of Bisoprolol. Up until February the dosage had me feeling normal and it kept my blood pressure low. I started getting a lot of chest pain in my middle left chest and along my back chest and arm. I had a lot of anxiety, which I never get, but I felt devestated to the point where it was dibilitating. I started getting stomach aches and I could not eat much, my bowl movements were a dark brown/black. I went to my primary and they increased my bisoprolol to 5mg and said I should take a probiotic. I increased the dose but held off on the probiotic because I didn't feel well enough to take it. I ended up going the the ER again and they decided to put me on 25mg Metoprolol twice a day, Amlodipine 5mg to help with my angina, and a small aspirin. It took my body a whole week to get use to the meds, they made me really weak and tired. Now I've been seeing a cardiologist who has had me retested for a echocardiogram, on a monitor for two weeks, and I'm going in for another stress test soon (the hospital stress test was negative.). He also referred me to an electrophysiologist that I will be seeing in two weeks to see where I'm at and discuss an ablation. Some days are good and some are hard. My chest still feels sore most days, and if I'm positioned certain ways it's uncomfortable. Does anyone else have symptoms like this? My blood pressure only seems to be staying normal because of my medicine, because right before it's time to take my dose again, it's usually over 140/80, but on the meds it does a good job of staying under 120/80. That's what's confusing me, should I still be feeling uncomfortable some days on these meds? Will the ablation help with my chest pain? I'm worried I might have more issues then they know but I'm trying to stay positive and hope that all I need is an ablation and I will feel normal and be able to be on a regular blood pressure medicine with no beta blockers. I've been on a low sodium diet and I've lost weight. From 280 lbs to 243 lbs since November. I'm trying everything I can do personally, but I get discouraged when I feel my chest strains.
0 likes, 2 replies
ehawa david0601
Posted
Before I had the ablation in January I was put on metropopol 25mg twice a day. I honestly didn't know what it was doing , I was used to having wpw attacks for years which could happen once or twice a year, but last year it was frequent. The attacks were much different from yours. Btw was the nausea, hypotension and chest pain constant ? Or did it occur on that day when you had to go in ? Did you have it a lot previously. Sorry for the questions I was just wondering if that is what an episode of your wpw is. My one used to be pretty sudden , super fast heart rate, chest ache, like my heart wanted to jump out of my chest.
They put me on the meds only because they had finally caught me having an episode , after ten years of experiencing them on my own and dealing with it on my own they were telling me that it was dangerous having it happen for more then 3 hours when I've had attacks lasting longer then that. Which kind of makes me think wether it was actually that bad.
I felt okay on metropolol but I couldn't tell if it worked or not , I had a few pvcs whilst on it which was okay
Then my cardiologist decided to put me on flacinide acetate which is when all hell broke loose , I was feeling exactly how you felt on top of this really depressing anxiety. I had a mini episode whilst on it and after it made my body feel weak like I couldnt stand up I felt like I was seeping into my chest causing me to panic and call 111 for help , they then took me off of the flacinide and put me back on metropolol which after taking the flacinide made me feel the same as if I was still on it.
Tbh I can only tell you what I experienced while on meds which wasn't really good for me, it may have been the meds that caused the pain I was having or the anxiety I built up from it. Having the ablation however I can't say if it will help or not however I feel that since your experience of wpw is much milder ( from what you said ) then mine, I feel as if it might help you a lot and may be a much smoother ride then it has been for me. There was a time after the ablation ( 2 weeks ago) where I couldn't sit in certain positions without feeling chest pain, pressure on the bone and frequent pvcs. Baring in mind that my ablation was done nearly 3 months ago. I am still experiencing weird sometimes worrying things but since my last post it has eased up a bit it's not constantly everyday it comes and goes so it is bareable when it happens I can deal with it knowing it will pass. I have been to ER many times since that post just to check up on my symptoms which is now just a lot of pvcs more then I've ever had in my whole life which must be due to the ablation. I haven't however had any episodes I used to have, hopefully I never will but I was told by my cardiologist that he did not burn everything give me a 50/50 success rate.
When I say my cardiologist I don't even know who is , I've had so many consultants. I never had a 6 weeks check up despite how many times I've been to ER and they message him and send letters to him and call him. The guy who performed my ablation hasn't bothered to see me, it's been so long now and I'm really frustrated. Even the ER doctors are always shocked at what I tell them. It's ridiculous. It felt rushed and I feel brushed aside that I'm considering going private. My consultation which is the only one I will have after my ablation is in June , with a completely different guy. The nurse in ER said it may be because I'm young their not taking my case as seriously as elder patients as my symptoms would be way more dangerous to them then to me , which I still don't understand.
However on the bright side many and I mean a lot of people have had positive experiences and a successful ablation. I feel as if I'm at fault because I was scared during my ablation and I kept constantly moving after they would burn an area. If I have a next time I will go in positively.
I definantly think you should consider it but it is your choice, read more around it and maybe find someone who has had similar symptoms to yours and had an ablation and can say that the chest pain I experienced on the meds before the ablation is better now then before and it is less frequent.
Sorry if I didn't help at all
Emma
david0601 ehawa
Posted
Thanks Emma,
you've been through much worse then I have and I hope that you are able to get the care that you need soon! I'm not sure what an "episode" of my WPW is, but I have gone to the ER a few times feeling neaseas, with high bp and angina. Some days my chest "strain or pain" is worse then others but over all I can tolerate it for the most part once I make sure that my heart rate and bp is normal. I'm hoping that when I see the electrophysiologist in two weeks he will be able to shed a lot of light on what is going on with my WPW and hopefully link my issues to it. Right now all the cardiologist that I've seen have just been able to tell me I don't have cardiovascular disease (which I'm glad to hear, but that's not fixing my issues!) and that an ablation should do the trick. Good luck on your journey! Be strong!
-David.