Anyone else having a bad day?

Hi Judy

i understand, really I do. I've been there so many times, I went through a stage when I seemed to be allergic to almost everything,particularly pollen then it was certain food stuffs etc. During that time it felt like I had a constant cold but felt like I had the flu all the time. Others do not really understand but neither did I before I became ill. 

What I will say Judy is that you do really well to keep going so well done. Somehow the body does manage to survive and with understanding friends you will get better soon. We have to learn to relive again so to speak and somedays we have to just listen to our body and slow down. This is not a failure on your part it is just learning to deal with this horrible illness. It does seem that all is against you at times but it will pass and better times will surface again.

remember there are some that both understand and can empathise with you, take care Paul.

Hi Judy, I feel mean saying it this way but it was so nice to see your message popup as I am having a terrible time today. I was diagnosed with FM and a couple of autoimmune disorders last May and they're ruining my life. I had a boyfriend, who I became too tired to drive and see. I have a good job but they're sick of me being off with pain and I have no energy or hurt too much to do anything fun or sociable apart from making it to my local pub which is full of old men, once a week.  Im only 33 but feel like the best parts of my life are over. I am always in pain with my lower back, shoulders, neck, knees, ankles and im so tired of it. Im not suicidal (although it may sound like it lol) but what sort oflife can I expect? I feel like bloody voldemort from harry potter, living a half life. Whenever I thimk about my future, I worry. Im sorry for bombarding you with my problems but every time I try to actually talk to anyone about these issues, I end up s complete blubbering mess.

But I also wanted you to know you're not alone at all! In fact, Ive bern told this is s great place fora good old whinge amongst fellows in the know!

 

have you tried cetirizine hydrochloride? My doc prescribed this as I was waking each night feeling I couldn't breathe or swallow and that there was always some obstruction. It does help with that bit.  I have been in bed for months and not getting dressed at all, till I returned last week. Only part time, an on phased return so just doing 4 hours a day, 3 days, but straight on my bed when I return. Its very difficult to get used to and sometim I really do feel like aking all my pa

my last message disappeared. Sorry for errors in previous its my blinkin ipad! I said that people in general dont seem to understand and I find people closest to je apear to resent me now as I am unable to do housework, cooking etc. thats when I really want to give up and when the oramorph doesnt seem to work too, but cant cos of the effect it would have on my children. I started with pelvic pain yesterday and within a couple of hours it was my neck, shoulders, back and legs also. It is so difficult to cope when it attacks all over. Try the anti histermine for the sinus probs x

Hello Judy 17848, I can relate to what you are going through, my day started with a headache then pain in my left ear and down my left leg.  I still had to work, very hard to deal with but bills have to be paid. My issues do affect my work but I try hard to keep my stats up so I can continue to work from home.  I have made my daughter and husband promise me that when I start getting down on myself to push me. When it gets to bad thats when I have to take off

and rest.  Everyday is a struggle with random pain nausea due to the IBS.

  It really helps to just talk with others that understand and don't think I am crazy.

hi judy...i feel your pain ! i try and try to be normal and i just can't..used to go around to 3 and 4 malls a day ...shop till i droped! now i cruise around with my walker for about 20 minutes and i collapse and have to sit down for another 20 minutes...it sucks! do you get pins and needles in your hands and arms...this has been happening for the last 2 weeks...mostly its fatigue, back pain and leg weakness that gets me down...also i get twitches on and off and my pinky finger had a distict wild tremor one day....verry odd...the whole thing is odd..right? 

hi judy...this a.m. like most i was lazy....went for a walk to the walmart its 5 min. away...walked around , walked home, all about one hour...had to take a warm to warmer shower , all muscles were sore including hands and feet...oh..i use a walker too....now its 6:00 pm and i can barely stand or move...i am walking like a jerky monster!  sooooooooooo good luck to both of us !!!!!!