Anyone else having issues with uncontrollable eye movement with Gabapentin?
Posted , 11 users are following.
My doctor prescribed Gabapentin for my fibromyagia and osteoarthritis as I'm in pain all the time. I thought this would be a 'safer' alternative to Lyrica. After 12 days of 1 - 300mg of GB a night, I seemed to be doing okay with it and increased to 2 - 300mg of GB last night. My doc told me, once my body adjusts to the GB, I can take 300mg in am and 300mg in pm, and eventually increase to 3 a day.
I woke up this morning with uncontrollable eye movements (really bad, had to close my eyes as I couldn't get them to stop) and a feeling of motion sickness (which I never get, but the eye movement probably brought that on) Very scary. Luckily I am off today, but unfortunately the only one home, and at one point I bent over to get something from the fridge and slowly went down to the floor. I got so dizzy and at one point, wondered if I was starting to have a seizure, which thank God I didn't. (on a different note, I thought it was strange that my lab that has seizures, was standing over me and wouldn't leave. kinda like he was taking care of me, as I do with him when he has seizures)
Have you been prescribed to take 2 GB at night and/or experienced this very odd side effect? I had read that it can cause this, but many meds can and I've never had an issue. I started reading posts on this site regarding the difficulty in getting off this stuff, which has been very helpful as that is my next step.
0 likes, 105 replies
beth47873 heidster
Posted
I recently had a nerve study done with electrodes put on 30 muscle groups as well as wearing an EEG cap. My muscles measure 12 - 14 HZ. They came to the conclusion that I have orthostatic tremor which I discovered goes along with Parkinson’s disease. I have two friends with that disease but I don’t have their wavy type of tremors.
beth47873 heidster
Posted
For some people, their twitching or jerking might wear off. In my case it won’t wear off, but I was hoping I would receive validation.
While standing in a restaurant waiting for my husband to pay the bill, my left arm punched out uncontrollably and I accidentally hit a woman in her arm. I apologized, and told her I have an uncontrollable movement disorder.
I thought I could be held liable if I accidentally knocked someone down.
My neurologist never gave me a diagnosis after having my first brain MRI. Instead I was told that my MRI results weren’t in yet. My primary doctor referred me back to my neurologist who said, “You have the worst case of Ballism I have ever seen.” He sent me to a movement disorder specialist to verify his diagnosis.
His referral was dismissed as though I went there without one. That doctor even claimed in my records that she had to ask me what my movements looked like, as though I could turn them on and off.
Ten years later, after undergoing 4 brain MRIs, no one has ever given me an MRI review, so I’ve concluded they are hiding something, but they want to do a surveillance on it every year.
I recently learned that Gadolinium, a heavy metal they use for contrast, is dangerous. Thanks to Gadolinium Awareness, I have received a warning, and I won’t be subjecting myself to an annual brain MRI that was recommended.
I doubt that I will ever receive validation because the last neurologist expressed her doubts that I’ve had this condition for 10 years.
jaime93579 heidster
Posted
when i was an teenager i was on it ended up in hospital so many times cause i couldnt function with the eye movement my eyes kept going up they trying to put me on it for nerve pain i denied