Anyone else share my symptoms??

Thank you. Its eased my fears a little. Also i know with my age that something sinister is unlikely. However its the not knowing that makes things worse!! Thanks again for your reply. 

You will be fine. I felt the same. Keep us posted.

Thanks for that. 

Thanks for your reply.

Its reassuring to hear other members have been through the same thing i am.

I am very anxious but have been told by my GP that its probably nothing serious, I have also contacted online consultants who again have said it needs investigating but the chance of it being something serious is very minimal. One consultant mentioned the symptoms do not even warrant a thought of it being cancer (visible blood, pain and weight loss is the symptoms you generally will have). My age is also a factor. Do you mind me asking how old you are?

Did the consultant say what the probable cause was for the symptoms or is it quite common to have these without a diagnosis? 

Thanks again

I am 44. I still didn't get a cause but I have been told that some people get it, live with it and sometimes goes away. In my case I had an infection prior to having blood in my urine. However the infection was cured from antibiotics months ago and I still had blood. At this point I will just keep checking every once in a while to see if it goes away. I will say that the amount of blood seen as decreases since my last urinalysis. It's kind of confusing because I never really got a cause but I am not bothered too much since its nothing serious. Not sure if I helped.

I am 46 and still in the process of trying to find out with my GP.

I have done a lot of research and something that has been mentioned to me is "nutcracker syndrome".  You get microscopic blood in urine and left and right sided flank pain (which I have). "he nutcracker syndrome results from compression of the left renal vein between the aorta and the superior mesenteric artery".  It is not very well known disease in the UK so unsure if I will ever get to the bottom of it.

Do you have dates for your tests yet? What did your GP say they were requesting?

Hi 

I also had a uti last August, blood in urine and treated with antibiotics (symptoms went and never went back until they returned in March) obv no infection found this time.

The cystoscopy will be my first procedure (apart from urine tests) on Monday. I don't understand why they don't go straight to the ct scan or ultrasound which would pick up the same ..... unless I'm wrong with that!? 

Hi 

Mine is also a 2 week urgent referral (apparently because I've had numerous samples taken over a 6wk period I fall into that category). 

Yes I've been told bladder cancer comes with sinister symptoms. Unfortunately we all think worst case scenario. 

I'm glad I will receive my results on Monday, it's funny how you had the ultrasound first and cystoscopy second. Looks like mine we be the other way round. 

Thanks for your input 

Jpell you sound like me a few weeks ago. I was looking at this diagram that showed the age and chances of getting cancer from microscopic hematuria and it was like .35 percent chance between the ages of 40 and 44. I of course always think the worst thought I was in that bracket. To say the least I'm sure you are fine. Most cases they say are those who show visible blood.

It's funny how irrational we are. With no pain, weight loss, family history and a non smoker decreases that percentage even more. Some days you have to trust what the medical experts tell you!! 

Was that .35% for bladder cancer or did that cover all urological cancers? Just interseted in stats 😉

It’s crazy what we put ourselves through isn’t it Maria 🙄. If only we had listened to others, we would have not made ourselves so ill.

I will always try and reassure others going through finding microscopic blood in urine through routine urine test.

McMillan Cancer Research (I was also on so many forums/research) actually sent me a link to listen to where a Urologist was interviewed and he said that a lot of their cases are now coming from GPs doing routine urine tests.  The urologist said in 99% of these cases nothing is ever found!!

 

It covered all urogical cancer and with all the other factors as you mentioned still put me in fear and anxiety. It was just a crazy experience but a lot was learned from it.

Yes sharon if only we listened. I also did online chatting with urologist. There was nothing I didn't do when it came to finding about cancer. I even thought they might have found another type of cancer with CT scan. So researched all the cancers of the abdominal area. I drove myself crazy day and night. So yes now I am going to try to reassure others that it is unlikely the case. I hope u get that pelvic pain taken care of. I cant imagine how frustrating it is to keep having it and not getting a diagnosis. I just contacted my GP about something I noticed on my blood test. It appears that I may be anemic. Here's my next issue.

Not sure if your anemic would mean? Keep in touch hunni.

Yes I am still back and forth to the docs.....they say diverticulitis or IBS which I do not think is the case!

Someone mentioned “nutcracker syndrome’ (you get microscopic blood) which I think is more recognised in the US than the UK but I just have to get each test out the way and hope I get an answer x

Oh my goodness, sounds like a handful. Well all u can do is keep taking testing until they figure it out with the correct diagnosis. Nobody should have to live with pain. I spoke to my GP today she wants to talk to the urologist to find out what he thinks about me still having microscopic blood. I really I'm not bothered by it. As for anemia I will just have to do some more blood work to see if my rbc count continues to decrease. She said it might be from the blood I was getting in my urine who knows. As we continue on our adventure. Keep me posted on your pelvic issue.

Hi 

Just had cystoscopy - all clear!! They then sent me for an ultrasound, which again seemed ok. Now waiting for an x-ray because ultrasound does not show stones. 

Funny how you guys went for ct scan and I was given different tests??

Thanks again for your advice and sharing your story.  

That's brilliant news 

I had a ct scan and intravenous urogram  hence the worry ha ha!!  It is strange how they go about the tests as I had cystoscope last.

You will be having a celebratory drink tonight 

 

Congrats glad everything was clear. I think if u had the CT scan they would have been able to see everything including stones. All the best!!!

Hello dear , well I have to tell u what happened today. My GP calls me and tells me that she received the test results which showed all clear. However she did some research and found that patients who still have hematuria sometimes just have blood in their urine. However, other research points out that u should do a urine cytology for 3 years to check for cancer cells. I am not sure if I want to go through that stress for next 3 years. I am trying to see how I will handle this or if I really agree.

Im guessing you still must be pleased!? I'm pretty sure the urologist would of recommended keeping an eye on things rather than your GP if there was any concern going forward? 

How's long have you had microscopic blood and are you still having symptoms like frequent urination?

I see my GP in a few weeks so will certainly bring this up. Is it a yearly cystoscope they recommend or urine samples? 

I honestly do feel that the blood has to be coming from somewhere.

With some of my symptoms I posted on another forum someone stated nutcracker syndrome where you get blood in urine.

From what I've read, many situations like ours come back with nothing found and no explanation. 

One thing I do remember from my hospital appt, after the cystoscopy I asked the consultant what he thought the issue maybe ..... his answer was probably kidney infection. However I've had so many urine samples sent to the hospital I'm pretty sure this would of been found!? Im guessing the consultant hasn't looked through my notes thouroughly, or are there cases where infections are not picked up!? Confused!!  

My frequent urination was mostly because I was taking a diuretic for BP. I changed medication and it's better. However I have always through the last 20 years had an overactive bladder urologist said I was fine. However, she is still concerned about the microscopic blood. My urologist thinks I'm ok but I am going to follow up with him to see what he says.

This is urine cytology not cystoscopy. I am certainly hoping that the blood goes away. I can't take this stress. A urine test for cancer is quite disturbing to me. I really hope u can find out about your pain, I can see your concern.

Yes it is confusing! I think I have something wrong with my kidneys and a lot of forums Ive been on say they just look for cancer on scans and ultrasounds etc and if that’s not found then you just get discarded. It takes someone experienced who looks thoroughly and knows what they are looking for to find something.

Ive not heard of urine cytology - please keep me informed of what you find out but I will certainly be googling it.

I have had tests on my ovaries, womb, kidneys, bladder, liver, lungs and pancreas and no one can give me answers for my pain!

Blood tests taken again today so it goes on 

Urine cytology is just a urine test that looks for infection of urinary tract and cancerous cells. I have also seen a lot of research with unexplained causes for blood and I cant understand why they cant get to the bottom of your situation. Its interesting how nobody can detect these problems.