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anyone else suffer from post herpedic neuralgia from genital herpes? ?

Posted , 8 users are following.

rae2710
rae2710

Ive just had my first outbreak and have been with the same person for 13years..it was so bad i ended up with catheter for a week because I couldn't pee at all..it lasted 2weeks ..now im having so much pain down my right leg with extreme itching and stabbing pains and electrical shocks. Dr put me on gabipenton and hydromorhine sad Has anyone had this happen? Now i feel like im going to have another outbreak because it burns when i peesad it would really help to know im not alone..im so depressed

0 likes, 18 replies

18 Replies

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  • Koolredd
    Koolredd rae2710

    Posted

    Holy crap I've never heard that it could get this bad and this just scared the hell out of me especially since I just got diagnosed with type 2...

    So we're you on suppressive medicine / therapy ?

    They say if you do that you don't have as many breakouts as someone who doesn't ..

    • rae2710
      rae2710 Koolredd

      Posted

      No..this was my first outbreak. ..sorry if this scared you..this was just my experience. .i dont think this is common..my family dr is away so im not sure how he will be treating this..ive heard about suppressive therapy
    • Koolredd
      Koolredd rae2710

      Posted

      This is your first breakout and it's been 13 years since you've had it ? That's awesome ! That's really good .

      And you haven't taken any suppressive medicine ?

      How are you holding up.? Are you at learn getting a little better ?

    • rae2710
      rae2710 Koolredd

      Posted

      Ive been with my husband for 13 years and i didn't know i have herpes. .which im very confused about sad thats why im not on suppressive therapy. .this all just happened. .im waiting for my family dr to be back to discuss how we are going ti treat this. Im really emotional and depressed as i also suffer from bipolar sad
  • caroline36678
    caroline36678 rae2710

    Posted

    Hey rae!

    Sorry to hear about that...i'm pretty much in the same situation.

    I've been with the same guy since my sixteenth birthday. We have been married for 10 years now and i just had my first outbreak 2 and a half months ago. I have type 1, got it from my husband's cold sore ( even though he didn't have one at the time he gave me oral sex)

    I know how you felt, i couldn't pee either but i had the catheter after the birth of my son 3 and a half months ago...i didn't wanted it again and i am really stuborn so i did not go to the hospital for that. The only way i found to make it bearrable was to apply aloe vera gel before and then pee in the shower...OK it sounds distgusting but it was really the only way...

    Also, i m inconfortable down there since it happened...the doctors are telling me it's because i gave birth but the truth is i was fine before herpes...

    You are not alone...i have found confort here in a way i can't get anywhere else because i don't know how to tell people i have herpes...

    What type do you have?

    • rae2710
      rae2710 caroline36678

      Posted

      Im sorry to hear about what you've been through sad i have type 2. .worst pain ive ever been through. Thank you for telling me im not alone. ...im new to all this as i just found out. ..i know how you feel about not telling people. ..i feel so ashamed and disgusting. ..sad
  • malory17539
    malory17539 rae2710

    Posted

    Is it possible you have a herniated disc? I had a disc herniate and was put on gabipentin for sciatic pain. I had the same problem going to the washroom and felt like my leg was being electricuted, I also had drop foot.

    I think having an outbreak and an injury like that at the samd time would be horrible. I'm so sorry you're going through that.

    • rae2710
      rae2710 malory17539

      Posted

      No i dontsad they call it postherpedic neuralgia. ..im sorry for what you've been through. ..thats awful sad
  • katie42587
    katie42587 rae2710

    Posted

    I had almost exactly the same as you. I had my first outbreak in April this year which was frankly horrific for 2 weeks, I had a few days of relief and then the stabbing pains and extreme itching started. It got better and it will for you I'm sure of it.

    It sounds like at least your doctor has taken it seriously and given you something to help, I was told by the clinic that I was probably paranoid about another outbreak and I had no reason to be experiencing the symptoms I was.

    From my personal experience the first outbreak really is the worst and once you get through it you honestly do get back to your normal self...most days I completely forget I even have it and subaequent outbreaks have been so minor I haven't really noticed them.

    I hope things start to look up for you soon but if not I'd just keep on pestering your doctor for help as I regret not asking for more help at the time xx

    • rae2710
      rae2710 katie42587

      Posted

      Thank you so much for your response. ..its nice to hear that it gets better cause im really feeling all alone and like it will never endsad
    • FelizCastus
      FelizCastus rae2710

      Posted

      The first outbreak is usually the worst and longest. It does get better and become milder afterwards. The shooting nerve pain may just be temporary. I had some (albeit very minor) temporary nerve issues after my first outbreak, then they just disappeared. Hopefully it will be like that for you.
    • rae2710
      rae2710 FelizCastus

      Posted

      Thank you for your response. .i hope your right...this is awful sad
    • ouch109
      ouch109 katie42587

      Posted

      Hi kati

      How long did it take for the neuralgia to go away

      Do you remember?

      I am looking for a light at the end of this awful tunnel

      Thanks

    • katie42587
      katie42587 ouch109

      Posted

      The stabbing pains lasted a couple of weeks after the outbreak had cleared up and I then had itching for about a month. In total I think it was about 6 weeks after my initial outbreak until I felt completely back to normal. But the important thing is that I did feel normal again and aside from the occasional very mild outbreak I usually forget I've even got it.

      I know everyone's experience is different but I promise there is hope of your life getting back to how it was before diagnosis smile

    • ouch109
      ouch109 katie42587

      Posted

      Thanks katie

      I am going on week 5

      I am certainly better than week one, but a long way from normal

      Ugh

      Thanks so much for your reply. Its helpful to know it gets better. I have days when i wonder if this is permanent and it scares me

      Thanks again

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