Anyone experienced the same, advice and comments appreciated

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I am 17 I have chairi and syringomyelia, a few days ago I expericence severe pain and when I touched my head it was almost as if I had a soft spot (almost like a baby's soft spot). When you touch the certain sport it is servere pain and if I move my hair bet lightly it feels like someone is pulling it really hard, it is on the right side at the crown... I have been to the hospital and they have discharged me again with no reason or explanation of what it could be.

Wondering if anyone has experience the same thing or similar?

Danielle X

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  • Posted

    Hi Danielle, I've never experienced what you describe but I do get a sensation of like ants crawling over my scalp. I've just put anything like that down to irritated nerve endings becaus e of all the problems we have. Remember as well that we are all different and what one person experiences another might not have the same. X
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  • Posted

    I expirience sharp "ice pick" pain on the right side of my crown above the ear; each time it only lasts for a short while. I have heard of it happening to others.
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    • Posted

      Hiya Yeltzer😄, yes they are ice pick headaches, one of the symptoms of Chiari, mine were always on the top of my head but they can be anywhere.  Hope that helps X
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  • Posted

    I'm having lots of sensitive symptoms moving hair and tightening feeling since had decompression surgery 1yr 6month ago. It's all on one side of head.
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