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Anyone Experiencing Tingling/desensitized sensations?

Posted , 9 users are following.

starrA
starrA

I started getting tingling off and on all over mainly upper body/face-

it started after taking Three doses of Elderberry-

Now my touch sensations feel off-

when its not tingling my skin feels dry/hurts?

Now all of the pain I typically have after using my legs/this whole duration is dim and I'm not feeling pain but I know its there -again desenstized

getting concerned

Diagnosed with EPV /sick since 8/18

Never had this tingling and now its making me think I have something else like MS? Very frustrated......

0 likes, 36 replies

36 Replies

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  • Sweebee
    Sweebee starrA

    Posted

    Hi Star

    Yeah I to have had this feeling, mostly in my left hand and foot. Im currently at 16/17 months and only tend to get the tingles if Im stressed out and do too much. One of my GPs too thought it was MS, but all the tests came back neg. So Ive personally just put it down to the EBV. Try not to stress about it, but do let your GP know about it next time you go see them.

    Stay strong

    • starrA
      starrA Sweebee

      Posted

      wow 16/17 mos huh?

      thank u for your insight-

      ive never had it

      but the six month mark has brought on a great deal of new symptoms/old symptoms and some in between

      my whole body feels desenitized then tingling

      but it could be b12 lacking*

      i went to dr to check blood

      nuerologist says i can get brain scan if i want too

      just to play safe-

      this has been happeing for about 1 week

      and i feel sicker too with other things....old/new symptoms

      this game is getting old....im so ready to be whole again~

      best of luck and healing to you!

  • dominika20801
    dominika20801 starrA

    Posted

    hmm.. I kind of got tingly feet and legs and they would sort of lose sensation if i kept them still for a while but as soon as i moved them it would go away. i never experienced any pain though. I'm afraid this virus just causes many strange unexplainable symptoms and sometimes all we can do is wait it out. if you have pain maybe it is worth visiting a doctor if it worries you. it is always our tendency to think the worst and sometimes reassurance can help settle your mind. all of us with this virus have had these scares, you are not alone!

    • starrA
      starrA dominika20801

      Posted

      yea

      it varies.....

      thank u for your insight

      ive been in pain 6months

      i cant keep up

      this virus is straight from the depths of hell

      im so tired of it

      ready to heal!!!!!

      working hard daily to heal eating healthy

      juicing

      im working towards recovery

      just feels like it isnt moving.....

      much?

      strange

  • Clidecjay
    Clidecjay starrA

    Posted

    14months in... my arms and hands itch like pins & needles the last 2 months. I HOPE this is a sign that this virus is ending?? This virus is weird and strong. When you get better from one pain it seems to go elsewhere. Never wants to give in...we just have to show it we are stronger!

    • starrA
      starrA Clidecjay

      Posted

      so true

      last 6weeks my symptoms change weekly!

      old/new

      i cant keep track

      now my muscles feel weak, which is nothing new/but really intense

      i cant feel my pain in low back/muscles/legs all that well

      like its desensitized

      not numb

      i can feel anything from outside but im in pain 6months all the sudden its numbed/no pain

      ? seems strange

      two days ago tingling pain

      now pain dimmed/less tingle-

      i know its there dull ache slight throb burn

      im worn out thinking about this

      very tired on top of tired

      im ready to heal up

      good luck and healthy healing to you!

    • craig07920
      craig07920 starrA

      Posted

      Hoping and praying for much better times ahead for everyone on here, everyone has suffered with this awful virus and I just hope and pray so much for healing from God and new hope and health and peace in everyone's lives.

      Thinking about you Starr, Sweebee, Cjay, Dominika, everyone. Keep believing in your recovery, the enemy wants us to stay discouraged but he won't succeed with that. God tells us all things are possible to those who believe. I know it's easier said than done when in the midst of terrible trials, but I am believing that God is going to pull each of you through, remember others are believing for you, something to hold onto in the moments you are finding it hard to stay strong and optimistic yourself...

      Craig

    • starrA
      starrA craig07920

      Posted

      thank u

      Craig

      i do value all of your pure of heart words

      you have a true gift!

      i hope you are holding up too......

    • craig07920
      craig07920 starrA

      Posted

      Thank you for your words of encouragement Starr, it means a lot. I know how much daily encouragement and help I needed from others when going through this virus, and was so lucky to have amazing family, friends and colleagues who were supportive. I know not everyone going through it is so fortunate and just want you and everyone to know recovery and a new dawn comes after the darkest and most horrendous storm of this virus.

      My week has been a good and settled one Starr, very grateful for that. Thanks for your kind words and hoping for a good week ahead for you and all of us on the site with God's help!

      Craig

  • craig07920
    craig07920 starrA

    Posted

    I think that tingling, tremors, strange crawling feelings on the skin can all be VERY common during mono Starr, I absolutely want to reassure you. If you find the low grade fever is a symptom which bothers you a lot, then these things can be particularly present, but this low grade fever does cease with time and so do all the associated tingling and strange feelings / sensations on the skin.

    It's so hard not to worry about other conditions - I went through the same horrible cycle of googling things and picking up on scare stories which frightened me and made me feel worse....it's an awful experience Starr and I do empathise. But remember that 90%+ of the western world get this EBV virus at some stage in their lives, many as babies or children when they don't get the full effects of the illness like adults do, and the vast vast majority of these people fully recovery and get well again, even if it is after a period of several months, and don't go on to have any other complications or health issues - please be reassured Starr. I know it's so hard not to worry, but none of the symptoms you have described sound out with the realms of mono to me, in fact much of it sounds like classic mono so just hoping very much that your mind can be put at ease - definitely discuss any fears / concerns with the doctor Starr, it's always wise to do that and just hoping that you can feel a bit more settled within yourself over the coming period.

    Thinking about you still and believing fully you ARE going to get back to FULL health again with a little more time.

    Craig

    • starrA
      starrA craig07920

      Posted

      thank u so much for that

      im just traumatized every time i hit cruise control

      something changes then i have to reacclimate its tiring on top of being drained/sick

      im just boggeled by this desentization factor?

      its wierd

      but i started on B12 today

      i may be low/contributing to symptoms

      ive heard EPV depletes you of B12

      i was going to get bloodwork done but the nurse said i looked too sick this am

      i was struggling

      all day really

      pain is dim like a wire got cut

      i was in pain three days ago/& for pretty much this whole duration

      now i feel it just really dim

      its strange feeling like not numb but numb-ish^^

      now im having bruising all over legs?!?!

      whaaatttt?

      is that all about.....?!?!-:-{}

      hoop jumping i swear this virus is so cruel

      i think GOD should help us find a cure

      i feel like HE put things on this planet- nature wise to cure all evil illnesses ~

      HE is the GOD of the living right!?

      i need a direct phone line to GOD, as I am keeping HIM busy lately -:-)

      have a great weekend^^^

    • craig07920
      craig07920 starrA

      Posted

      Oh Starr, God has heard and is hearing all your prayers. Just grateful that Jesus is the good shepherd and is with us always, even when we don't feel that way or feel alone, he is there and knows the bigger picture.

      God works for our good Starr so you can be assured that He has plans to prosper you and give you a future and a hope and get you back to good health again, so hang in there...

      Craig

    • craig07920
      craig07920

      Posted

      P.S. Keep praying and DON'T GIVE UP!

    • starrA
      starrA craig07920

      Posted

      thank u

      so much

      for your uplifting words

      i pray and chat w/ GOD all day everyday

      im asking HIM to help me heal and make full recovery and to take my fears

      HE has always guided me

      its just different because i dont feel well so im not super strong and in tune with HIM like i usually am

      things feel a little blocked because my head/fog/headaches

      overwhelming

      i also have pulsing all over and terrible nights sweats which started 5+ months in-

      i guess my body is working hard?

      i pray for GOD to heal me up quickly so i can be free

      HE gave me this temple and i want to be whole again

      its my body not this evil viruses ~

      -:-|

      i hope you are well!

      how are you feeling?

      thank u again for all of your kind words-

      you have a gift Craig.....

      i see youre from Scotland

      i live in US

      my great grandmother was from Scotland

      from the Highland Clans area

      MacGillivray is our name

      our land was just below the Mackenzie Clan-

      i have our Tarten as well......

      our motto is "Touch not doth cat,bot a glove"

      interesting the history of the Highland Clans.....

      have a great wk!

    • craig07920
      craig07920 starrA

      Posted

      Hey Starr,

      Ah great to hear that you have a Scottish connection in your family! You are hereby an adopted Scot then! I have a friend through Church who is also a MacGillivray (spelling may be slightly different not sure).

      It's not easy to keep holding on and to feel positive and optimistic when things are so intense and long-lasting, I just hope and pray for a breakthrough with things for you very soon Starr. It's not easy but we must remember that God knows what's best for us and His timing is perfect - praying for His mercy, sometimes we are pushed to the limits before we are brought back again - praying for God's healing and peace and strength in your life at this time and over the coming period.

      Another person kindly posted the below links on another thread of the forum - some good advice about diet, herbs, supplements, etc for the EBV virus, and information about researchers working to produce a vaccine:

      https://www.pathology.umn.edu/sites/pathology.umn.edu/files/chronic.mono_.7.9.18.pdf

      https://www.pathology.umn.edu/sites/pathology.umn.edu/files/herbals_1.pdf

      Hoping for a good week ahead Starr, hang in there still thinking about you and keeping you in my prayers.

      Craig

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