Anyone go in for myomectomy and come out without uterus?

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My myomectomy is scheduled for two weeks later. I have a ~11cm intermural myoma and have decided to go with a open myomectomy. The recovery seems brutal too, when reading about it, but more than that I am absolutely petrified that I will go under and wake up without a uterus due to complications during the surgery. My doctor assures me that happening is really rare, and she's personally never had to do that, but I am scared that it might happen. Have you ever had this experience, or heard of it happening to someone you know?

Thank you.

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  • Posted

    I had a myomectomy 2 weeks ago today. I had 5 fibroids removed... one of which was growing into the uterus wall( this wasn't known until the operation itself) so I had to have an incision in my uterus as well. I have been surprised by the recovery... I was only in hospital for two nights and the pain is much less than what I had imagined. It's more of a feeling of tightness than pain if anything. Like you I was worried about something going wrong during the operation but my consultant too said he had never had to perform a hysterectomy during a myomectomy, and I didn't lose a lot of blood. In my personal experience it's been a lot easier to cope with than what i thought and I am glad I have had it done. Hope this helps somewhat .

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  • Posted

    My open myomectomy was 7 years ago and was a pretty big op that took around 4 hours. I had over 20 removed and bled a lot. My surgeon at no point felt that he needed to remove my uterus - it is very rare for this to happen. Friends and family have had similar ops and have received the same advice that it does happen but very very rarely. 

    As for my recovery, it was painful but I saw progress as the weeks went on and my symptoms were better (heavy periods, pressure etc) after a couple of months. 

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  • Posted

    Hi Susan

    I am 2 weeks post op and mynrecovery is slow but steady. We knew I had 4 inside my uterus however when the doctor went in he found one huge one sitting against my bladder (on the outside) and he decided to remove that one. He left the others in (they're small) in an effort to save my uterus. When I visited him at the office he explained to me what happened. At first I was sad to think I still have some in me however the bigger picture is he did not want to compromise my chances of conceiving as removing the others would Compromise my falopian tubes. I am 40 with no children so if conception is going to happen I will need to try at the end of this year. I totally trust my Doctor and I am glad he made the decision to not remove the others at this time or my uturus. I'm hoping they don't grow. Before you go under be sure to speak with your Doctor about your concerns although they may tell you like with many surgeries other steps may need to be taken.

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  • Posted

    i think that is a very natural concern and i was worried bout it too but as your doctor said it rarely happpens.  If you stress to ur doctor how important it is to you to keep your uterus then they will only remove it if it is life-threatening.  I had open myomectomy and due to extensive blood loss they were only able to remove 7 but it has made a huge positive difference to my symptoms and am grateful to the doctor for saving my uterus and my life as i came close to dying apparently.  Thankful to God for a skilled medical team.

    Rarely happens hun so dont fret.

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