Posted , 4 users are following.
Hi,just wondering if anyone has had any experience of having a stricture with ulcerative colitis?
I've had UC for 5 years now and I thought I was getting a lot better.I'm on humira and azathioprine and these have made a huge difference to my symptoms - so much more manageable, but still not gone entirely.
So I was surprised a colonoscopy and CT scan has showed I have two strictures in my colon, both about 4cm long. My consultant has advised he thinks I need surgery and last week I met with a surgeon who basically ideally would like to take my colon out!
They said they can't rule out malignancy as it isn't usual for people with UC to have strictures (is this right)and to have two is also very unusual. As they can't get through the stricture they can't see rest of my bowel and they are concerned that despite the drugs I'm on I've never been in remission in last 5 years. They basically think I either have cancer or am at high risk of getting in it??!!
Just wanted to know if anyone else as had to deal with a stricture, what sort of treatment was offered, and whether removing the colon is a usual response?
The surgeon is going to try another colonoscopy soon with a smaller tube to see if he can get through it and try to rule out malignancy, but he said even if he does now, my bowel is acting in a way that mans he thinks I will still be at risk?
My head is reeling with this so any experiences good or bad would be very helpful to hear.
Thankyou in advance
0 likes, 4 replies