Anyone had successful anal fistula surgery

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I have read and heard many horror stories regarding anal fistula surgery. I have heard tales of incontinence, reccurence, severe scarring and infection.

Has anyone had sucessful surgery? Or natural medicine healing?

Stories would be appreciated.

Thanks

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  • Posted

    Omg it's a nightmare I had hi fistula  opration on 1 September 2017 after that I m in huge trouble I can't eat and my waight down 9kg and fixed seton and its second operation on 28sep2017 still I feel huge pain in left side pelvis can someone help me how long it will like this two days it look normal but after some strains in bowl moments pain starts again and it continue till night sleeping my medicine finesh but doctor not reply properly can someone tell me how long this pain will continue meanwhile my wound look good but pain in pelvis 

    • Posted

      Hi why can't you eat. This is a very painful condition. It can take weeks before it starts to get easier. But by now it should be getting better. Do you have a cutting seton? Maybe that is edgy it is still very sore. 

  • Posted

    Hi tulip, I had a very painful fistula which I had healed with ANOHEAL 2% cream. It took quite a time but was really good, This was a few years back now, the colorectal consultant prescribed it to me. I was told the surgery can cause incontinence? The fistula can come back at any time. So uncomfortable & very very painful was mine, every now & then I would have to take one Tramadol to ease the pain as well as using the cream, I think once you have had this every now & then it will get a little uncomfortable. Hope this helps.

  • Posted

    If you don't have Crohns then a fistulotomy has a greater than 95% chance of eliminating the fistula for good. Most anal abscess/fistulas are not Crohns related, they just occur at a significantly higher frequency amongst people with Crohns. If you do have Crohns then, judging by what I've read, you shouldnt even have surgery for the fistula, but instead have a seton put in place. Natural medicine is useless for solving the fistula or abscess and you would be doing nothing but wasting your time. Some natural medicine can be useful for mentally calming you (placebo effect) and there is some evidence that coconut oil can help loosen up the scar tissue left my the surgery, but NONE of the natural remedies will actually cure the fistula. Anyone who tells you otherwise is a quack. 

    • Posted

      I agree fistula can only be cured by Surgery. I had my operation in August 2017 I was suffering from fistula since 2012. I took aayurvedic medicine which then gave me relief but it came back big time. I decided to get rid of this pain for good and had my Surgery. Its been three month since operation I m totally cured and I changed my food habits eat lots of fiber and keep away my self from any spicy treat. I suffered lot of pain post surgery and God I only calm my self  saying that it will only last a month and it did. I m very happy now it just feel like that I never had fistula. 

    • Posted

      Hello

      This is very interesting. Can I ask where your stats are from please? I found in the UK it is so difficult to get proper stats and can take along time to get what information they do have.

      I saw a recent poll on Fistulotomy that showed it was less than 60%.

      I also know of one person who says they were cured by Homeopathy years ago. Also many are now turning to Kshar Sutra which has surprised me but some are saying it has worked for them and not come back but again they also have a healthy diet.  The main reason they do this is because the stats for normal surgery show way to much risk of damage and lack of proof that it actually works. 

      I think that is the thing with this it is different for everyone, some it works for and some it doesn't but more importantly it is making sure it doesn't come back. 

  • Posted

    I'm about 3 years out from a successful surgery. I was fortunate because I waited way too long to deal with the problem and had a recurring abscess for 4 or 5 years. When the surgery was done, the colo-rectal surgeon felt that he might be able to fix me with a fistulotomy alone, but he thought the location of the interior opening of the tunnel was just a bit too high, so he placed a seton. I didn't find it particularly uncomfortable post-operatively. I returned twice to the office so he could tighten it. I will say the first time he tightened it, it was very painful both when he actually did it and then for a full day or so afterward. I took pain meds. The 2nd tightening visit was painful, but not as bad. Then about a week after the 2nd tightening, I just noted the seton had fallen out, which is exactly what is supposed to happen. It took less time than predicted to work its way through the tissue--maybe a total of 2 weeks. I do think the key on this is to find a really good and specialized surgeon. 

    • Posted

      cutting seton, I meant to say.

       

  • Posted

    AnalAbscess: Fistulectomy or (otomy) has a success of 95% or so. It is confirmed by a number of studies.

    Burl4 thanks for letting us know, that's a good story.

    • Posted

      As I said above please confirm what studies. I would be very interested to read these. 

      Many thanks in advance. 

    • Posted

      Interested to hear your story Dimitri. How many operations have you had so far? 
    • Posted

      Hi Analabscess, just read your message, sorry for the late reply.

      My story is as follows: I was originally diagnosed with a high transphicteric fistula in June 2017 with a secondary extension (opening).  

      In August 2017 I had a draining seton placed which remained in site for three months. Then in the end of October I had a Filac surgery.

      This did not fix the fistula but greatly improved it (extension has closed, draining decreased by 80%). The situation is a lot easier for me, so I am really grateful for these two really minor surgeries I've had. The recovery was a matter of days for me. Furthermore, due to the seton and the Filac my fistula is now low transphicteric and fistulectomy or fistulotomy or cutting seton is most likely feasible. I will have a third surgery most likely by the end of January, ideally to finalize things.

      If I could, I would have had fistulectomy at first place.  As I wrote to you, I've read many papers about this. One interesting study is a study done in Ireland during 2014

      The role of loose seton in the management of anal fistula: a multicenter study of 200 patients - through the use of a loose seton and a final minor fistulotomy they reached a sucess of 100% with only 6% having recurrence.

      Another review of studies for Complex fistulae is quoted below:

      "Fistulotomy or fistulectomy and primary sphincteroplasty for anal fistula (FIPS): a systematic review.Ratto C1, Litta F, Donisi L, Parello A.Author information

      Abstract

      There is still no clear consensus about surgical treatment of anal fistulas. Fistulotomy or fistulectomy and primary sphincter reconstruction is still regarded with skepticism. The aim of this systematic review was to evaluate the evidence in the literature supporting the use of this technique in the treatment of complex anal fistulas. MEDLINE, EMBASE and Cochrane Library databases were searched for the period between 1985 and 2015. The studies selected were peer-reviewed articles, with no limitations concerning the study cohort size, length of the follow-up or language. Technical notes, commentaries, letters and meeting abstracts were excluded. The major endpoints were the technique adopted, clinical efficacy, changes at anorectal manometry and assessment of quality of life after the procedure. Fourteen reports (666 patients) satisfied the inclusion criteria. The quality of the studies was low. Some differences about the surgical technique emerged; however, after a weighted average duration of follow-up of 28.9 months, the overall success rate was 93.2 %, with a low morbidity rate. The overall postoperative worsening continence rate was 12.4 % (mainly post-defecation soiling). In almost all cases, the anorectal manometry parameters remained unchanged. The quality of life, when evaluated, improved significantly. Fistulotomy or fistulectomy and primary sphincteroplasty could be a therapeutic option for complex anal fistula. Success rates were very high and the risk of postoperative fecal incontinence was lower than after simple fistulotomy. Well-designed trials are needed to support the inclusion of this technique in a treatment algorithm for the management of complex anal fistulas."

      Another interesting compartive study is Predictors of Outcome for Anal Fistula Surgery by Abbas, which compares different methodologies for various fistulae categories.  Hope it helps.

  • Posted

    Does anyone had successful anorectal fistula surgery in NY. Can anybody please suggest any experienced colon and rectal surgeons in NY?
  • Posted

    Hi! I am going through painful abscess and found out that there is a fistula involved in it. My doc recommended fistula surgery but he said he had not seen this kind of case in years. Please some one recommend me any experienced colon and rectal surgeon in NY. Thanks!!!
  • Posted

    Hi, I'm a 13 yr old kid. This year in may, I had very bad pain in anal area. Went to the GP, he said only just a small fissure (which has happened many times beforw because I have chronic IBS and constipation-I was on a laxative for that). Pain continued for many weeks and fever started to arise. Went back to GP-he said I might have a virus but the pain was not the cause of it and was nothing to worry about. Weeks went on and my mum knew that something was off. She was a nurse so she knew a gastroenterologist. We had an appointment the next day and straight away he said that it might be an abscess. He didn't want to look as he said to tender. He said if temp raises to over 38.5, go to hospital to have drainage. At this point, me being a kid with a complete lack of medical knowledge, and feeling very unwell, I had no idea what he was talking about. Anyway, that night when I got home temp was almost 40. Watched it over next couple of days and I virtually couldn't move. Mum took me to the hospital to get it checked out (I still had no idea what was happening). I waited in emergency all night for a coler Rectal surgeon to see me and it ended up just being a registrar. He looked and said straight away that it was an abscess and needed to be drained immediately. She was very very inappropriate with what she said considering I am a kid. She said that I should have come weeks ago and now I was septic and she went off on my mum. Then, she insisted that she performs the surgery right now (1am). She overdramatised the whole situation and said that if I didn't do it with her now, I would get gangrene. I have learnt from this experience that you MUST get a good and reputable surgeon. Thankfully, my mum having half a brain, she called her contacts in the health industry and insisted to this lady that as a private patient we would want a surgeon not one in training. We stayed there overnight and thankfully after contacting people overnight we had a Coler Rectal surgeon come to our room that morning ready to perform the surgery in a few hours. I had a really bad experience with the anaesthetist but basically the surgery was successful. I stayed in hospital for just under a week on IV antibiotics. After the surgery, they said that there was 30mL of pus in there. Long story short-everything healed well with a few worries along the way but nothing serious.... up u till 6 weeks ago. The wound opened up and it started discharging blood and pus. I had to have an MRI the next day and thankfully it showed hat it was a blind-ended sinus where the abscess was (it must have never healed properly) I was put on antibiotics cuz I had a fever and it got a bit better. I still had the fever but it wasn't infected. We saw the surgeon a week after and he said that all should be good-it look alike it has healed up well, "if it happens again, treat with antibiotics and if doesn't heal have another MRI." A week later it started discharging again and again and again and again. We saw him and he said that it isn't normal and he suspects a possible fistular. He recommended we do exploritary surgery to check what it is.  He also said to have a colonoscopy due to my past experiences with my bowel which has only been thought to be IBS. So basically I have been waiting. Hoping hat it will just heal. Tonight, it discharged a whole lot of blood after not having discharged for a week. I just hope that it doesn't turn out to be a similar experience to 6 months ago. I hope that the blood doesn't change the treatment of it and hopefully if o have the surgery it all goes well and there is nothing unplanned for. 

    Sorry for all the blabbing, but what are you thoughts?

    • Posted

      Blab away tomjohnston.

      I'll say the same to you as I say to everyone. 

      What are you eating?

      Glad your mom has your back x

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