Posted , 4 users are following.
My teenage child has been tentatively diagnosed with what her specialists are refering to as autoimmune channelopaty. We have been told that her immune system is attcking the ion channels in her nerve cells.
We were also told that this is an area that isn't well known yet.
I have tried to find more information about this, but haven't found much. Does anyone have any they can share? Can this get worse, does it go away with tretament? ( she's receiing IVIG therapy) .
her symptoms rnage from tremors, myclonus, pain, nueritis, Raynaud's phenomenon ( not related to being cold or nervousness), etc.
0 likes, 11 replies