Anyone have DYSESTHESIA? Burning scalp or feet or skin or skin temperature sensitivity/control ?

Hi everyone.

I have what my dermatologist calls a dysfunction in my sensory nervous system.

I am trying to find people that have the same condition as myself. I cant believe I am the only one with it, but possibly my condition covers different areas of the body for different sufferers. I have probably had it all my life, but it has developed over the years. It may be part of Aspergers.

The soles of my feet hurt/burn when in contact with my socks and wearing shoes and have had it all my life.

My skin senses cool and warm as too extreme and takes a long time for the sensation to stop.

I developed scalp dysesthesia, a sensation of burning in the scalp which would go sometime after washing.

I developed a sensation where my skin was cold and clammy during a shower and then would continue permanently. UNBEARABLE!

I perspire lightly when I shave and sip any liquid. This created the unbearable cold and clammy sensation.

I would suggest that my hot and cold sensory system is too sensitive and the cooling affect of any liquid/perspiration is detected as an extreme sensation and retained in my sensors memory too long.

The greatest difficulty has been describing my symptoms to my GP and specialists.

The various drugs prescribed have usually affected my brain function and created greater difficulty describing what was going on. Fortunately, I discontinued medication as soon as its side effects became too bad.

Various specialists have used various Words to describe my symptoms and this has created confusion. Terms such as Somatic and Somatisation. So, if you were googling these terms, you would have a much different and varied description of diseases or causes.

Therefore, if you had my symptoms, you could be searching forums, using completely different words.

My doctors and specialists would quite happily use diagnosis Words provided by previous specialists. When I questioned my dermatologist about the description at my last review, he thought Skin Dysesthesia was a suitable diagnosis, even though he thought the sensory dysfunction was probably somewhere else in my sensory system.

I have fortunately been prescribed medication that does stop my cold and clammy sensations and scalp dysesthesia to a degree, but does not help my feet. The side affects are horrendous, but allow me to function. I worked out what medication would help me and it took two years to persuade my doctors to prescribe it. So, if you have this condition, the doctors would not have this drug on their list of suggestions. It depends if your doctor could have worked out from your description, what was going wrong. My dermatologist is just beginning to understanding, after I have been on this medication for 12 years. I worked it out 15 years ago when I asked them to prescribe it.

The trouble is, this condition transcends different doctors specialities. The sensation is in the skin, but the dysfuction is probably in the nervous system. Probably similar to many symptoms. But medically, we are unable to tell where the problem is. Half of all symptoms are medically unexplained.

The chances of contacting someone with this dysfunction seem quite remote, but I have made a start.

Thanks for reading.

Keith

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