anyone have glaucoma diagnosed in 40's? anyone have glaucoma for over 40 years and have sight?

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How does one deal with anxiety of it all? Wish there were support groups in area.

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  • Posted

    Hello over40 you sound as though you are worrying a lot.  Tell me about your glaucoma, who diagnosed it and what treatment are you being given for it?
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  • Posted

    Have you researched glaucoma on this website?  There is a lot of information & a list of support groups.

    http://www.glaucoma-association.com/

     

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    • Posted

      over 40, I was diagnosed at 30.  Now I am 76 with a small loss of vision in one eye.  I was devastated with the diagnosis and constantly worried. That faded gradually as I got favorable reports and seemed to be stable.  I think I just got exhausted from obsessing about it which wore me down. Best wishes.  M.
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    • Posted

      Hi...that is the best and most motivated response I have read on here. You are the only one who answered my question. I was so devasted at first and now due to exhaustion thinking about it....I too have become positive and started to go to the gym and eat a paleo diet, wear my eyewear and hats when needed, take my vitamins.... Just trying to be as healthy as can be.
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    • Posted

      Did you change any part of your lifestyle that may have kept your eyes in such good shape over the years?

      Thank you so much for responding!

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    • Posted

      Over 40, I am happy that my reply was helpful.  I am a worrier about health matters and there was no way I was going to get through this one without simply going through it.  As time passed, I got consistently good reports.  I am fortunate to have had excellent doctors and the ability to pay for treatment (not everyone does). I was at first solely focused on pressures until I later learned there is much more to it.  People with normal pressures can have glaucoma and often miss being diagnosed because of that. I was told there is very little I could do other than be a compliant patient.  Later I learned that some yoga poses raise pressure as does playing the trombone and other wind instruments.  I almost never missed using my drops or seeing the doctor as well as making sure I had a good doctor.  I have moved around and now live where there is a glaucoma specialist. You are welcomed to write whenever you wish.  I can truly say I know how you feel. M.
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    • Posted

      How did you find your specialist? I was referred to one who did not explain nothing to me and even if i ask questions does not provide me with any answers except saying maybe or it does happen . I want a better specialist for my current ocular hypertension and no damage..i want the top of the line in my area and do not know how to find this great specialist.
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    • Posted

      Did u have any of the eye surgeries? If so, how many so far?
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    • Posted

      I have had secondary glaucoma for over 30 years.  It is caused by Iritis & currently, my pressures are in a normal range, so I no longer use drops to reduce them.

      Has anyone actually checked for an underlying problem, that is causing your pressures to rise?  

      Have you Googled the specialist you are seeing?  That is often illuminating.

      Have you thought of contacting the CNIB?  I know I contacted the equivalent in the UK some years ago, when I was constantly being fobbed off by doctors who didn't understand my condition.  The CNIB might be able to point you in the right direction.

      The CNIB would also be able to explain things to you but would probably tell you they cannot advise you.  I found the RNIB very helpful here.

      Good luck.

       

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    • Posted

      Hpw did doctor determine that i did npt need drops anymore? I went to a natutoparh and osteopath and both think it was caused due to an airbag hitting me in the face in car accident. Will see on my

      Next eye specialist appt.

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    • Posted

      Yes i have and they gave me drops but i am due for another appointment in sept.
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    • Posted

      I have only had cataract surgery this year.  A side effect of that surgery is often decreased pressures.  Not the reason for doing it however.
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    • Posted

      Hello "famous37001". 

      Glad to hear your glaucoma appears to be stable. May I ask what type of glaucoma you have? I'm asking because the activities you mentioned that can increase pressure are similar to what my doctor have told me. 

      I'm 27 and recently got diagnosed with pigmentary glaucoma. I had already lost some vision in one eye before it was diagnosed. Pigmentary glaucoma seems to be special in that certain activities, like those you mentioned, can increase pressure. My doctor specifically told me to be careful with exercise.

      I just hope I can at least keep vision in one eye, because I couldn't handle going completely blind. I'm worried to death.

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    • Posted

      Try Ginkgo Biloba! There are clinical trials available on it, all of them with great results. Some people even got some visual defects partially reverted!
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    • Posted

      Hi your reply seems so uplifting! I was diagnosed with glaucoma, I am 44 and just found out. What was your your pressure like when first diagnosed?
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    • Posted

      My pressure was 26 in right and 24 in left. Drops have brought both eyes to 20 now. It has been 2 years now. I hope research brings out new medications quickly. I had no explanation when diagnosed by the optometrist nor family physician. I did my research and found people like Bono who had it for over 20 years and can still see. This gave me.courage.
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    • Posted

      I also go to glaucoma.or and read Bout current research developments to encourage me. I needed something not to be depressed. I too, fear being blind with no sight what so ever. I found doctors do not project t any positivity when I see them. I had to find it for myself. It would be even better if I knew someone in my area to hang out with too as a buddy system. There is a new device called e-sight that can be used when blind, it works on many, but not all
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    • Posted

      Glad to have come across this site and read valuable information about firsthand experience on glaucoma. Am 47 suspected of this eye disease. Need to do some more tests but today eye pressure was at 21 and 22 for left and right eye respectively. Kind of devastated but am trying to tell myself I just need to equip myself with the right information and a capable doctor to take care of me. Reading comments here somehow lifted my spirits. Thank you!
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