Anyone have luck with any meds for PHN

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Trying to see if there are any new meds on  the horizone incase the nevro stimulator doesnt work but praying it does

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11 Replies

  • Posted

    Hi there, I'm taking a daily antiviral (valcyclovir) for the last nine months, along with Vitamin D, Magnesium, and Lysine.  At the time I got shingles, I was already on some serious pain meds for a neck injury and associated neuropathy.  I had incredible pain from the PHN, involving the left side of my skull, my scalp, my face and eye.  I just sat and rocked and cried and wondered when I would kill myself, not if.  The antivirals and supplements really help me.  It's not perfect, but I'm living. 

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    • Posted

      Good to hear about what you're doing now helping. I would ask, have you tried adding vitamin C.  It is a natural "antiviral" as well and may give additional help taken daily.  Try 500 mg at a time, morning and evening. 

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  • Posted

    I've tried just about all of the meds used to treat PHN: amitryplene, pregabalin, gabapentin and duloxitene. As well as regular doses of codeine and other painkillers. In general they all seem to have some positive results, but the side-effects have been the bigger issue. There are a range of options and combinations, so it could take awhile to find what's right for you. 

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  • Posted

    I agree with Erin... In addition, I have worked with my doctor and adjusted doses of Lyrica and Gabbapentin together and have found great relief. That said, I have good days and bad days. The fog from the medications does dissapate over time and I am back to being fairly active. On very bad days I use the Lidocaine gel.

    I wish you the best!

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    • Posted

      Hi Zuazus

      I found relief with the Fentanyl Patch Lyrica and Tramadol.   

      I had a stimulator implanted in me 3 months ago, gave me relief.

      but I wanted more as they are weening me off the Patch since

      they dont want you on it very long ( almost 3 years ).

      Wish I could be pain free, guess that will never happen.

      Wish you all the best

      Paul

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    • Posted

      lIKE EVERY ONE WE SEEM TO BE ON THE SAME MEDS  iM ON LIDOCAIN PATCHES, WHICH YOU KEEP ON FOR 12 HOURS, THEN YOU TAKE THEM OFF FOR 12 HOURS,  i USE THESE PATCHES  UNDER MY BUST AND AROUND MY SIDE AND UP TO MY SHOULDER BLADE, .BIG WARNING, THEY ARE GREAT FOR THE 12 HOURS ON BUT AFTER TAKING THE OFF  I CRY WITH PAIN, WHICH I TAKE OFF AT 8 PM AT NIGHT, BUT WOW GREAT IN THE DAY TIME AS I WORK WITH SENIOR SCHOOL STUDENTS.

       i NOW TAKE A MEDICATION IN UK CALLED OXYNORM ITS MAJIC FOR THE FIRST  4 HOURS i WAS TOLD TO TAKE IT EVERY 4 HOURS, IN BETWEEN I HAVE TO USE ICE PACKS. iWISH YOU WELL, ARE YOUR FROM THE UK.

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    • Posted

      Hi Jocelyne,

      Like you I use the lidocaine patches but mostly at night as I found using a tens machine during the day with all my other meds helped. I tried it the other way around but where I toss and turn so much I woke myself by turning my tens up full blast. Ouch 🙈

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  • Posted

    I've been using gabapentin with carisoprodol. Not as effective as pain meds but they had side effects I couldn't tolerated after a while.  This combination doesn't work as well but fewer side effects.

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  • Posted

    Hello!Did you ever get the nerve stimulator? Is it working for you? I'm considering getting one. Be great to hear back from you. Thanks.😊

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  • Posted

    My pain specialist and I are going to try a different med that is very good specifically for nerve pain. Its like almost 35 years old. The company that makes it has a patient assistance program if your insurance won't cover it and you qualify. I'm waiting on a prior authorization from the doctors office to see what my insurance will charge. Do you have a good health insurance?? My pharmacy drug coverage stinks. Anyhow, the forgotten pain medicine, as it's referred to, is called LEVORPHRANOL. Take a look.

    https://www.practicalpainmanagement.com/treatment-neuropathic-pain-role-unique-opioid-agents

    This article has some windows to click on to see great tables about the classes of drugs to try for neuropathic pain, specifically. Its where I found out about levophranol.

    Let me know if I can help you with any info I may have. Take care😁

    Levorphanol Patient Assistance Program Application - Sentynl Patient Services

    PDFwww.sentynlpatientservices.com › media

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