Anyone having B12 injections and also self supplementing with B12 vitamins ?

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I have read that it is practically impossible to overdose on B12 and with that in mind my question is whether anyone has ever taken B12 supplements without doctor's explicit instructions in addition to periodic injections ?

 

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6 Replies

  • Posted

    Hi Mark,

              You are 100 percent correct you can’t  overdose.

           Me personally inject myself every 2-3 weeks . That was after initial loading daily for 10 days .

         Living in the Uk to get this I had to print off the local CCG treatment with neuro damage to get.

          Don’t ignore , my B12 was 88 when diagnosed . Small nerves wrecked with autonomic dysfunction for me .

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  • Posted

    Have wondered about this, had my first 6 injections, not much improvement yet, having more blood test Fri to see what my folate levels are & my parietal cells leval, but !! If I do go on a regular regime of 3 monthly injections, and before its due feel grotty again, can I take a b12 supplement,? I understand there a spray for under your tongue from Holland barret, anyone else tried it and does it work, I'm hoping that if I have to take a folate supplement it will help,

    I quite understand what Clive says, it took 6 months for me to get to this stage, so could take 6months to feel good again.

    Hope someone will come up with answer we we both want Mark.

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    • Posted

      I have had B12 injections since 2009, I have them 8 weekly as i couldn't last 3 months before my symptoms reappeared. Do be careful in what you buy as a supplement as many B12 stuff is either fake or different from what is in our injections. Remember anything you buy has to be RED if it isn't it probably isn't B12. I have settled on a bio complex called Chela-Ferr it contains Folic Acid, Vits B6 (Needed to aide absorption of B12) B12 & C.

      My dr oked it for me as i asked before taking it.  

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    • Posted

      Hi Claire,thanks for info.I'm very new to PA diagnosed dec17, finished my loading dose week before Christmas. Going to have blood test Fri, for folate and parietel cells levels, I take a PPI omeprazole,which stops absorbtion.

      As you've had b12 a few years, can you tell me how long before b12 injections kick in, I've had very bad mouth ulcers since the injections and a very itchy neck and back, the tingling in my feet no difference, I just have a little more energy and moods swings improved, so how long for me to feel totally better ???

      Many thanks Patricia.

      b12 deff

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  • Posted

    I regularly used the under tongue spray from Holland & Barrett to top up my levels between injections. It was always the last four weeks that I felt I was beginning to slow down and symptoms returned. Fortunately my GP agreed to trial me on more frequent injections, and I now have an injection every six weeks. This means I only use the spray on odd occasions, if I am unwell or overtired. 

    Hope this helps? 

    Marion 

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  • Posted

    I have been on B12 injections every four weeks since 1972 and I supplement daily on a methylcobamalin spray and it is true that you cannot "overdose" as being water soluble any excess is exreted via your urine..

    Have you had your Folate level checked?

    It is important that your Folate level is monitored as this is essential to process the B12.

    There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

    Symptoms of a folate deficiency can include:

    symptoms related to anaemia

    reduced sense of taste

    diarrhoea

    numbness and tingling in the feet and hands

    muscle weakness

    depression

    Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

    I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.

    I wish you well 

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