Anyone in there 40s been diagnosed with pmr ?
Posted , 13 users are following.
I was told years ago i haf fibromyalgia but now my blood work shows a high sed rate
1 like, 31 replies
Posted , 13 users are following.
I was told years ago i haf fibromyalgia but now my blood work shows a high sed rate
1 like, 31 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
FlipDover_Aust elisa321
Posted
However, a raised SED rate alone is not enough to diagnose PMR.
What other symptoms do you have?
elisa321 FlipDover_Aust
Posted
EileenH elisa321
Posted
Some rheumatologists deny PMR or GCA in under 50s - but the PMR community doesn't agree!
linda17563 EileenH
Posted
elisa321 linda17563
Posted
linda17563 elisa321
Posted
Also just to back up what MrsO-uk Surrey has said....my sister has RA...and i urged her to get a VIT D test which doctors/hospital hadn`t done, she was tested and was severly low....she says soome pain has eased, but fatigue has improved greatly....you never know...
EileenH linda17563
Posted
There are diseases that become far more common as we age - but that doesn't mean they don't happen occasionally younger. There are 2 "top experts" in PMR who deny PMR in under 40s - I believe they don't see them because they don't look for them! One person from the PRGCAUK charity told me off on another forum and insisted the "people who know" have never seen it and if someone was under 40 they were more likely to have something else, something more common. In fact, another lady then pointed out that the PMR she was dx'd with in her 40s turned out to be a far far RARER combo! GCA is for over 50s - if you are under 50 it is labelled as Takayasu's arteritis which is identical hisotpathologically and one lady found the name in her notes had been changed! Did the disease change? I doubt it!
But you have to bear in mind that "PMR" is not the disease. It is the name given to the symptoms of an underlying disease process. I'm at a conference full of rheumies at present - and a couple who I would happily have as mine agree with me that "PMR" is probably a conglomerate of things - with the commonality being that they respond to steroids. But many are scared of using big bad steroids - we had an amazing discussion last night about their use. A lot don't want to use them at all - putting younger people on them is too much for them.
So I think that yes, you can have it younger but you DO need to rule out other things as far as you can.
linda17563 EileenH
Posted
I only hope they come away with more understanding...and you some more answers for us hopefully about how these steroids do affect us, I myself feel caught between steroid side affects and PMR, as I`m sure many others do.. ...thank you for doing what you do for us...much appreciated!
EileenH linda17563
Posted
gillian_25383 elisa321
Posted
MrsO-UK_Surrey elisa321
Posted
elisa321 MrsO-UK_Surrey
Posted
Sheilamac_Fife elisa321
Posted
Raised ESR could just mean you have a virus, so that alone doesn't mean a deal.
i hope you get an answer soon.
sastew elisa321
Posted
IssyR elisa321
Posted
Tastyron IssyR
Posted
MrsO-UK_Surrey Tastyron
Posted
linda17563 IssyR
Posted
Anhaga linda17563
Posted
EileenH Anhaga
Posted
But yes - it was "my rheumatics" for most of our parents/grandparents generation. There was no way of managing it until the early 1950s anyway, but I think it is fairly likely that it was PMR patients who were the ones who got up out of wheelchairs and walked when given massive doses of steroids giving them their "miracle reputation". Then the longterm side effects appeared ...