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Anyone need a friend?

Posted , 8 users are following.

pete23632
pete23632

Hi my name is Pete, I have severe fibro and cfs which I've had for a long time. I needed a friend to get me through when it all started and I was gradually getting more unwell. I was lucky to have a great friend but not everyone is so lucky. So I am offering to be a friend if anyone needs one. I hope I can help - Pete

5 likes, 36 replies

36 Replies

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  • denise85279
    denise85279 pete23632

    Posted

    hiya Pete, hope your not too bad today , I think only people with this awful syndrome know how we all feel and yes it,s a syndrome as theres a lot of complicataed facts of it migrains mememory insomnia ect ect ect the list goes on .thanx for being a friend Pete cheers (FMS.) for short the name Fybromialigia is indeed named so because Fybro means (Tendons and Ligaments ) (My). means (muscle) and ( Algia ) pain ( syndrome ) means a collection of symtoms )and when they occure together identify an illness ... on my part I get bizar comings and goings of pain !! I also have ( IBS.) Migrain attacks .and probably ( MPS ) Myofascial syndrome ( yet to be diagnosed ) waiting of the letter .for the ( mps ) anyway thanx for the ear Pete have a great day  smile 

    • pete23632
      pete23632 denise85279

      Posted

      Happy to meet you ( sort of ) Denise, I will be here every day for anyone that needs to chat, I'm so happy that I have finally found somewhere that we are all alike - Pete

  • kaz_40
    kaz_40 pete23632

    Posted

    Hi pete23632 That is so kind and lovely of you. I have had fibro for 15 years but not got diagnosed in 2014 by a rheumatlogist, After having many many tests and seeing every specialist you can think of. since having fibro my so called friends  dont want to know so to have you as a friend would be lovely. We all need a good friend with us all being on this forum at least we all know and understand what each other is going through. take care
    • pete23632
      pete23632 kaz_40

      Posted

      Hi Kaz,

      got to admit I know how you feel, I had always had lots of friends and when I fell ill they all disappeared apart from one, this person helped me so much but sadly had to move away. I still talk to them but not as much as I want to. So finding this forum is like medicine to me. How does fibro affect you? Lovely to meet you - Pete

    • kaz_40
      kaz_40 pete23632

      Posted

      Hi pete lovely to meet you too. I am in constant pain with fibro especially in my back and my legs. My mobility is very poor I use a walking stick wheel chair and in the past I have had to have carers in. As I was unable to walk for 6 months and overI was bedridden all that time.I have poor balance so also use a walking frame. My memory isnt good at times. going out in the car hurts my back so dont go out as much as I did.House work consists of only being able to dust, my son helps with house work my husband does the cooking. My hands are very weak I struggle to grasp things. How is fibro affecting you and how do you cope with it? How I cope is by taking 1 day at a time getting through it as best I can and concentrating on other things like designing. I love designing different rooms in my home.my garden is my next project. I dont think about fibro and my other illnessess.The one thing I miss doing is walking for miles with my dog I use to love walking  himbut can no longer take him for a walk..Hope your having a good weekend and hope fibro is being kind to you and not causeing you too much pain take care
    • pete23632
      pete23632 kaz_40

      Posted

      Hi Kaz. I'm happy to hear that you can busy yourself and take your mind off Fibro. I think it's essential to keep yourself busy. You don't have to run a marathon, just little and as often as you can. I know it's extremely hard sometimes and I'm guilty of wallowing too but if I can busy myself all day I tend to sleep a bit better and can wake the next day and continue the cycle. It doesn't happen as much as I would like to but I will take what I can get. I try to take 1 day at a time, the same as you, I try to be positive as much as possible for the sake of my family as they have difficulty accepting that I'm unwell and can't do everything that I used to be able to. I also have problems with balance and use a frame, wheelchair and crutches at different times ( of course ) I can't do anything without a painful consequence straight away or the the whole day after. Fibromyalgia is a horrible illness to live with but we do have to live with, so we may as well learn to cope, which is what I do a lot of. Look on the Internet for the spoon theory and have a good read. I have to go now Kaz. Keep in touch sweetie and I hope life is kind to you - Pete

    • kaz_40
      kaz_40 pete23632

      Posted

      Hi Pete How are you today? hope your not in too much pain and fibro is being kind to you. I wouldnt wish fibro on my worst enemy its a horrid condition to have. Its changed me as a person I dont recognise who I am any more. But we cant change things as yet their is no cure for fibro. so we have to get on with it, and deal with it as best we can. I try to keep positive but I do have down days when its hard to cope.But I keep plodding on for the sake of my family. I always think their is some one worse off than you. keeping your mind focussed on other things Ive found can help just take each day as it comes. Ive redesigned my whole house next project is garden. That will be interesting as Im no good with plants Ive had loads of house plants and eneded up killing them lol. So now focusing on the garden.The only people that fully understand fibro are those that have it no one else seems to understand it not even drs ive found. Hope you have a good day today take good care of yourself kaz
    • pete23632
      pete23632 kaz_40

      Posted

      I hope you have a great day too Kaz. Enjoy some sunshine
  • arlene77671
    arlene77671 pete23632

    Posted

    Hi Pete hope your well today, I was wondering if you would be able to answer me something. 20 years ago I had a prolapsed disc which meant I ended up in a wheelchair for 2 months! I have had several reoccurrences through the years but since I have found out unofficially I have fibro, I am finding that my back and leg pain are quite bad again but not sciatica. Do you think this could be down to the fibro? X
    • pete23632
      pete23632 arlene77671

      Posted

      Hi Arlene

      thanks for the well wishes and I hope you're having a great day. As for the answer to your question, I think that if your GP is confident that it's not your sciatic nerves then Fibro could definitely be the answer you're looking for, there are pain points around your body that you could easily look up on the web, if you have recurring or chronic pain in a certain amount of these areas that should satisfy your Gp to give you a diagnosis and you can get some treatment so you don't have to carry on living in pain. Have a good read up on the symptoms and if they click and you think to yourself that they sound like what's happening to you, make a note and talk to your Doctor. That's exactly what I did, I even printed the info for the doctor to read, he was fine about it and I got a definite diagnosis within a few weeks, then followed by treatment. I had been suffering for a very long time and had seen so many doctors that didn't know what the problem was. All the money they get and I had to do the leg work but glad I did. I ramble on a bit but I hope this helps you. I must tell you that I'm not an expert, I can only tell you what I have been through but I have been through a lot. Great to chat to you again. I'm gonna be on here a few times everyday. Chat soon I hope - Pete

    • arlene77671
      arlene77671 pete23632

      Posted

      Hi Pete, GP did pressure test and I have most of them so he is treating me with tramadol at the moment which to be fair is not doing a lot! I am seeing him tomorrow to see if I need referral to rheumy or just he can diagnose it as I am under occupational health with work at the moment. Just don't know wether to say yes I have it or no I don't! It's driving me mad with the struggle I am having at work and colleagues not being so understanding. Take care x

    • pete23632
      pete23632 arlene77671

      Posted

      Hi again Arlene. Not having answers is incredibly frustrating for anyone. I think everyone with Fibro would agree that we have all felt like we're going mad and that people don't understand before and after we get a diagnosis. If the tablets that Dr gave you are not doing enough then don't be in pain. No one deserves to be in pain. Ask him for a higher dose or something else to take the edge off. As for people at work Arlene, people do have problems understanding Fibro, not just people at work but family, friends and partners too. We have to learn to live with this, which is horrible. That's why we join online discussions to have a good moan. Keep in touch Arlene and I hope that you get some answers soon, be well - Pete

  • Battybat5
    Battybat5 pete23632

    Posted

    Thanks Pete,

    it's good to have friends but you can't keep telling people how you really feel ie really terrible, or they tend to keep their distance.  That's what I have found. Even my Brother made a joke and said "I didn't really want to know".. It is just that you feel more sensitive, but that could be the hormones!! God I am dropping to bits, sad

    • pete23632
      pete23632 Battybat5

      Posted

      Hi battybat

      I understand what you mean about telling someone your absolute true feelings, the ones you would normally keep to yourself but what happens if we carry on and don't tell anyone how we feel? That's what drives people with Fibro up the wall. Please feel free to use my ears to listen to anything you wanna say, I love to listen and you won't have to keep those thoughts to yourself if you don't want to. Keep in touch, glad to meet you - Pete

  • rachel01351
    rachel01351 pete23632

    Posted

    Hi Pete, I appreciate your generosity after going through the pain for over a year and numerous blood test and mri's I finally got a diagnosis in June of Fibro. I'd have to say I thought finally having a diagnosis would give me some relief of knowing what's going on. But it seems that it's still just the beginning. I'm at the point of feeling like people are tired of hearing me complain about the pain, but I can't help it it's a constant thing for me. My medication seems to be making the pain more intense and all my doctor keeps telling me is give it more time it's been 11weeks since beginning treatment. Does it ever get better?

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