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Hi everyone, been suffering with CIU for nearly 3 years now, the hives always affect my upper chest arms neck & ears & usually occur in the middle of the night but can be anytime of day or night. Every medication I have tried has worked at first but then stopped working after a period of a few weeks-months at a push. I'm currently taking ciclosporin which I've been on for 1 year 3 months now, I'm in 4 x fexofenadine a day, montelukast & doxepin (although I struggle to function the next day after taking this & have 2 young kids).
Anyway, montelukast worked for 3 months & has now stopped & im at the end of my tether & actually feel a bit demented with the lack of sleep.. So I'm wondering if omalizumab might be the way to go.. Has anyone been given it in uk? If so did it happen same day as appointment? Did you have to wait? Good results?
I am seeing the dermatologist tomorrow, I see one at Sheffield & have been told before that dr sabroe is an expert in CIU at Sheffield & im surprised they haven't reffered me to see her in clinic, I will ask about this tomorrow.
Thanks in advance
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