anyone out there who has a fused hip (arthrodesis)?

hi debra,

just my luck, i to am desperately seeking another person to talk to about my arthrodesis on my left hip. looks like i,m 5 years to late. wondering if your still around rgds ian

ive requested to join as well please

hi christine,

i,ve had a fused hip for 33 years due to a motorcycle accident in 1985. i,ve just had the conversion from arthrodesis to total hip replacement. it has been 4 weeks today since the conversion. i know it is only early days but i,m regretting getting it done more day by day. These hip replacements still i believe are in the early stages of being what you could call a success. I seen a doctor 10 years ago an he warned me not to get it done unless it was absolutely necessary. In my case it wasn,t but i still went ahead . stupid stupid me. i,m trying to join face book to see what other people are saying. The muscle group in the back of my leg are wasted away to nothing after 33 years you can imagine, the surgeon said there still there because he seen them when doing the op ha ha. My leg is still only moving like it was prior to the op. My leg is still shorter than my good leg, as i say it still is early days, i,m 53 an am fairly fit sort of bloke. Alot what you hear about total hip replacements are bullsh#t. i,ve been there an done that. Do not get a metal on metal implant if you do go ahead, watch a doco on netflix called The bleeding edge. I hate my new you beaut hip replacement. There over rated. I wish i looked more into it before i had the op, you only have to follow the forum on here about hip replacements, it,s never ending with people going through so many different problems with there operation. And there not going from a conversion like us. I have to go as this is making me annoyed at myself. Unless your in massive pain with your fused hip i wouldn,t even consider the conversion. rgds ian

Hi Debra,

I am 70 now and just a few months ago I was told by my pain management Dr. that both of my hips were fused to my sacrum. This was discovered through xrays. Dr. was numbing the nerves in my back when she could not get the needles to my nerves because they are fused. I have many conditions, starting with RA, Arthritis, DISH and AS of the spine. DISH is a condition that makes my system produce too much calcium, which causes me to grow bone on my spine. Well, with the Arthritis and the RA it finally fused my hips. I asked the Dr. what can be done and she said surgery.

At my age am not sure about that. The pain management Dr. has helped with my spine as I have had three (3) nerves burned. This is suppose to last for a few years and was going to have the last nerve done when it was discovered that my hips were fused and I would have to see a surgeon.

I am not sure what a surgeon could do to unfuse the hips and not sure I want to go through this. All I know is that my hips a very painful and it is getting worse everyday.

relief

i also have a hip fusion its the most frusrating thing in my life i cant tie my own shoe cut my toe nails put lotion on my foot i cant do ANYTHING normal anymore im so sad i canf run like i used to i cant drive go carts anymore im ready for a hip replacement but my insurance just sucks right now man

i k ow this is old but PLEASE reach out to me just like you i have not met anyone that can relate even doctors look at me like im crazy and my worst fear is for a cop to handle me

the wrong way and really hurt me because they never heard of my injury

hello Debra WELCOME WELCOME WELCOME. this group is wonderful because yes i too have spent my whole life, im 76 , thinking i was alone with this weird hip. i too had osteomyelitis as a young child and spent years in hospital, hip spicas, plaster beds, calipers, crutches etc etc. and never met another person with anything like it. do you know what my secret fear has always been and ive never told one person about it, ever! i was secretly afraid of being violently raped and they would break my hip and spine. ihave coped brilliantly physically as we all seemed to have done. i was a yachtmaster instructor, sub aqua dive master all over the world, sailed halfway round the world on a tiny yacht and did what anyone else was able to do. of course a lot was painful but we all get used to that.but im paying for it now or maybe i would be in the same position if id taken up knitting.! In the last few years i have been experiencing huge back problems. and i have walked with a wheelie walker for several years which keeps me walking the dog and even travelling abroad on holidays. but without it i am bent over and struggleto walk. over the years, ive tried asking several top surgeons to reverse it but everyone always said" no way. it wouldnt work, but now ive met a surgeon who is willing to do it but was not willing to promise success and the outcome could make me worse off. i havent yet gone ahead with it 1 because ive only heard of 2 or 3 successes, our wonderful Alison being one and2 for the last 3 years i have looked after my great granddaughter as her mother worked long hours and i have brought up my daughter, grand daughter and now great grandaughter and wanted her to have the same cosy family upbringing that i had. she starts school in september and i could possibly relinquish my post as main carer for the family! but im being very cowardly now. cant seem to take the plunge. i have had the most wonderful happy life and at 76, i dont have a burning ambition to go horse riding etc and i can do my bits of gardening play with my family , i am an artist so i can still do that though no longer professionally and live independently so far, but you are only 52 . maybe you could go for a new life. alison is my beacon of hope but she s in Canada and theres Julie in England. i think she is doing well so far. i believe they say it takes 2 years to feel the benefit. keep with this group. i love to hear about other peoples experiences with this freaky old hip thing, because of feeling so alone with it my whole life. thats why i am rambling on to you about it as i bet i know howyou have felt. bet you werent afraid of being violently raped though were you! i never have been though ha ha.

hello Debra WELCOME WELCOME WELCOME. this group is wonderful because yes i too have spent my whole life, im 76 , thinking i was alone with this weird hip. i too had osteomyelitis as a young child and spent years in hospital, hip spicas, plaster beds, calipers, crutches etc etc. and never met another person with anything like it. do you know what my secret fear has always been and ive never told one person about it, ever! i was secretly afraid of being violently raped and they would break my hip and spine. ihave coped brilliantly physically as we all seemed to have done. i was a yachtmaster instructor, sub aqua dive master all over the world, sailed halfway round the world on a tiny yacht and did what anyone else was able to do. of course a lot was painful but we all get used to that.but im paying for it now or maybe i would be in the same position if id taken up knitting.! In the last few years i have been experiencing huge back problems. and i have walked with a wheelie walker for several years which keeps me walking the dog and even travelling abroad on holidays. but without it i am bent over and struggleto walk. over the years, ive tried asking several top surgeons to reverse it but everyone always said" no way. it wouldnt work, but now ive met a surgeon who is willing to do it but was not willing to promise success and the outcome could make me worse off. i havent yet gone ahead with it 1 because ive only heard of 2 or 3 successes, our wonderful Alison being one and2 for the last 3 years i have looked after my great granddaughter as her mother worked long hours and i have brought up my daughter, grand daughter and now great grandaughter and wanted her to have the same cosy family upbringing that i had. she starts school in september and i could possibly relinquish my post as main carer for the family! but im being very cowardly now. cant seem to take the plunge. i have had the most wonderful happy life and at 76, i dont have a burning ambition to go horse riding etc and i can do my bits of gardening play with my family , i am an artist so i can still do that though no longer professionally and live independently so far, but you are only 52 . maybe you could go for a new life. alison is my beacon of hope but she s in Canada and theres Julie in England. i think she is doing well so far. i believe they say it takes 2 years to feel the benefit. keep with this group. i love to hear about other peoples experiences with this freaky old hip thing, because of feeling so alone with it my whole life. thats why i am rambling on to you about it as i bet i know howyou have felt. bet you werent afraid of being violently raped though were you! i never have been though ha ha.

scrolling down is see that yours is not a new post. im so sorry ive rambled on thinking i was encouraging you and youve beenon for ages. oh well never mind. that wonderful post from anthony with all the medical and surgical information is terrific.

Hi my name is Anne-Marie and I am 55 years old. I spent most of my childhood in and out of hospital having various surgeries on my right hip originally diagnosed with perthes later I was told i had congenital dislocation and at the age of 22 had a fusion. At this time I was too young for a hip replacement.

At the time I did really well with the fusion even managing to abseil on one occasion all be it one legged but as time went on i had trouble with cartilage in my right knee and then back ache and have always got very tired. I then had a fall a broke my left knee obviously with my best leg now beggared life is very difficult. I now use a frame in the house and a wheel chair when I go out. I have been told that the fusion is no longer used because of the problems in later life and that to take down and do a replacement is not advisable.

I have long since come to terms with problems with walking but am having severe pain in my back but worse is the stomach pain and problems going to the toilet which I think is due to my muscles in my stomach not being used enough and becoming slack and i am not able to do anything about this and it has greatly impacted on my life. I am taking lots of painkillers including morphine and yet the pain is still so great that I often can't even get dressed let alone go out. Doctors don't seem to really understand and I feel very alone and frightened I don't want to spend the rest of my life like this I just want them to find a solution to the pain and then I could cope.

The consultant who performed my fusion was always truthful with me and tried his best at all times but GP's etc do not understand and probably have never seen a fusion but if they don't know what to do I wish they would be honest and admit it.

Has any one else had any of these problems?

Dear Moderator,

I am disappointed and angry that you deleted my post I am only trying to be helpful to someone by inviting her to another communication forum that is significantly easier to use than this one. I hope you find something better to do with your time.

Have a great day.

Hi! If anyone sees this and has a fused hip, please please reply. I am a 21F who got her hip fused at age 13. I have spent the last 8 years in the same boat as OP and many of the people who responded. Ive always felt like an alien too. I have so many real questions to ask people who have lived with their fused hips. For one, sex tips? Like, no shame here, we have no one else to ask about this. OP - did you have a c-section to give birth? My gyno says I'd have to. These are intimate questions, but frankly I'm done living in the dark. So if you are someone who has or had a fused hip, please respond. I'd love to start a FB group or something for people like us to feel less lonely.