1. Community
  2. Bones, joints and muscles
  3. Osteomyelitis

Anyone recovered/recovering from Osteomyelitis?

Posted , 21 users are following.

melindasmakeup
melindasmakeup

I've had five surgeries and five picc lines to treat chronic acute osteo in my lower jawbone. I still have severe pain, albeit the swelling is minimal. I am not sure if I should get more testing/x-rays done or move on to a pain management specialist. Seems like osteo specialists/infectious disease specialists aren't interested in figuring out why I'm suffering in pain still.

1 like, 60 replies

60 Replies

Prev
  • Teresamarie
    Teresamarie melindasmakeup

    Posted

    Could the infection still be hidden in the bone? It sounds like you’ve had so many treatments of antibiotics it should have killed the bug but what it sounds like you could be taking antibiotics for the rest of your life...

    And as a fellow osteomyelitis yaw sufferer that sounds like hell. 

    I guess we keep the on fighting the good fight. 

  • Teresamarie
    Teresamarie melindasmakeup

    Posted

    Hi everyone 

    I’ve been on oral antibiotics now for a week. During that time my jaw (osteomyelitis of mandible) is hurting and now I’ve developed a 🤒 fever. I left a message for my doctor 👨???. Does the infection come back that quickly?

    I had an ultrasound of my hip which showed nothing. No cortisone shot because of the actinomycetes odontological. Nothing to helping my psoriatic arthritis for a year.  So sorry to hear that the hip pain you have still is not diagnosed. My heart ?? goes out to you.

    • Jackie235
      Jackie235 Teresamarie

      Posted

      Dear Teresamarie,

      If you have a fever above 100 you can goto any ER and receive help ASAP.  They may not be able to do much for you, but at least give you proper medical attention and monitor you until your temperature gets back to normal.  Before my osteomyelitis finally showed up on a CT scan I was on oral antibiotics for almost a year.  When you’re admitted into an ER request a consult with an infectious disease doctor.  I believe I had a pretty bad case but upon one of my trips to the ER for a temperature they found an abscess on my tonsil that I would’ve never known about.  Keep advocating for yourself, you deserve to feel better.  My prayers go out to you

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.