Anyone seen this in the papers

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Relief for victims of lung disease is found in a ketchup bottle: Tiny valve similar to easy-squeeze bottle top cuts off deformed areas of the lungs

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  • Posted

    They can't show it here but I found it in the Daily Mail online, really exciting. I have printed it off because if my husband or I ever need it I can show it to the doctor who probably will never have heard of it. Thanks John80670

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    • Posted

      My pleasure anything that can help people is great, just glad you found it ok, It only come out a few days ago looks good.
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  • Posted

    Hi My husband had this procedure in June this year. After several months of tests etc the consultant decided he was fit enough for it but could not promise that it would go ahead until he had assessed the inside of his lungs under anaesthetic on the day. They managed to insert three valves into one side, but the other lung was too scarred from numerous infections to be suitable. Even though it is not a surgical procedure, there was a lot of risk attached (i.e. lung collapse etc.) and although he came through it alright they almost lost him on the first night. The professor involved was very pleased with the function of the valves the following day and, after six days in hospital he came home. About 10 days later he was back in our local hospital via blues and twos, having contracted pneumonia again and a further episode two weeks after being released from that one! He is currently less able to do anything that he could before - in fact, he can't get out at all at the moment. I am not saying this is down to the valves procedure - just unlucky to get "hospital infected" pneumonia from it. The procedure is reversible (you can have them removed if it doesn't work out) unlike the lung reduction which is far more risky .More and more COPD sufferers are being offered this chance now, but it is not an easy fix and should not be thought as such. If anyone is interested, I will let you know how things go in a few months. Any other questions, just ask.

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    • Posted

      HELLO ROS6952,

      Since the moderator has ruled that information relating to this procedure should be addressed privately to individuals interested in learning more, would you please send me the link for this procedure and any other information regarding this matter?

      Sincerely

      Ricky

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    • Posted

      Hi

      if you look at my previous reply, the first llnl is from a person who has had the procedure which he explains in great detail.

      The second link is the company who manufactures the valves and explains the device in detail. Search the patient section and you will find a list of hospital both NHS and Private who conduct the procedure.

      At the present time it's still in the trial stage.

      The moderates only rejected the newspaper article.

      The article itself was misleading in the fact that it's not a new treatment it's be ongoing for several years. The person I mentioned had the procedure in 2012.

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    • Posted

      Hi Ricky,

      If you google endobronchial valves there is quite a lot of information re this procedure, but the links already provided are very useful.

      You really need to talk to your GP first and ask him/her to refer you to a specialist centre. They will then decide if you are suitable. The referral process took about six months where we live. 

      Regards

      Ros

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