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Anyone still work with CFS?

Posted , 13 users are following.

jacquie14742
jacquie14742

Is anyone still capable of working with this illness?

I had to give up work a few months ago, just couldnt do it anymore, run a house and look after kids, i was only working 4 days a week, but it was just too much and the driving was horrendous!

At moment, I still do the odd bit of Avon or work from home opportunity if i can, but im hoping that when both my kids are at school in sept i might feel more able to cope with this illness and seek a part time job again, maybe 2 days a week or something to help pay the bills

I know its all very individual and i can only answer these questions myself, i just want to hear some hopeful stories of people returning back to work or continuing to work as they are able to manage the illness

Thanks in advance for your responses smile

0 likes, 19 replies

19 Replies

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  • jelelly
    jelelly jacquie14742

    Posted

    Hi

    I think it all depends on each individual. I ended my work of 23 years in feb last year had been off with stress/ depression for 18 months prior. Then got glandular fever in may last year and was diagnosed in July with cfs and fibro .

    You need to organise some esa or pip payment and take time to get better x

  • cheryl5535
    cheryl5535 jacquie14742

    Posted

    Hi Jacquie.  I was diagnosed with M.E. last June and I am still working 32 hours a week the same as before I was diagnosed.  I have two children, one 6 and one 12 year old so two lots of school work/activities/meeting etc to deal with.  I am struggling!!!!  I work in a really bright, open plan office and 6 hours there leaves me so drained that I have little family life - I go to bed at 8pm after I put my youngest to bed just so I can get through the next day.  My GP and South Coast Fatigue say that I should keep fighting and not let the illness get the better of me but how long can anyone keep this up?  My HR department are very unsupportive but I know that I could never get another job with M.E - no one would want me!!  Any advice?  Did you feel in better control with everything at home once you reduced your hours?  I just crave me time but by the time I get it in the day I just want to go to bed.
    • Rachel1023
      Rachel1023 cheryl5535

      Posted

      I'm. The same I work 25 hours a week and my daughter is 3 years old. I'm waiting to see a specialist at the moment to get M.E confirmed. I'm really struggling to cope with work and house my partner works long hours so I feel like a single mum most of the time :-(
  • Tea_belly
    Tea_belly jacquie14742

    Posted

    Hi, I have had CDs for two and a Hal years. I was initially off sick from work for 4 months then went back on a phased return- big mistake! I have made myself worse and went off sick again after 6 months. Have now been medically retired. It is a hard choice because on one hand you need the money but on the other hand I don't think you will ever start to improve whilst you are working. I have three children and have worked for the past 30 years. Now it's an achievement to make an evening meal. Good luck with whatever you decide xxx
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