Anyone suffering from non-epileptic seizures?....

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I've been suffering seizures for at least 18months but today they have been confirmed as non-epileptic seizures & I'm feeling really emotional..... Apparently I need to see a psychologist due to having these seizures. Anyone she'd some light have read a little buts it's overwhelming. Thanks.

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  • Posted

    Hi Atom ,nice to know someone who has this same problem ,I'm not on medication for this thing they call epilepsy , aura type or what ever its called ,only because I ended up refusing the last lot ,I had so many side affects ,then to get this polymialgia on top of it ,I don't know what to blame , and funny thing this weekend is epilepsy day in Herveybay qld near here too lol , my "turns " I call them seem to turn up about 30days apart , ,so I'm due for another one any time , all I know is (not much ) I do get a warning and a few hours later a stronger one ,then I know to prepare for them , and yes they are scary and happen all through the night , then get less and further apart , nobody wants to listen about them and I don't know what to tell you or what to suggest , maybe some one else on this cht line may have some ideas hey , I hope so anyway , ,
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  • Posted

    What I meant to say ,was it takes a week or mire to get over these turns and yes they are scary , I'm thinking of asking my "new g p " if I can cave another EEG just to confirm this problem , and it does make you depressed atom so don't think your loosing your mind , they haven't suggested a psyc.,for me yet , bear up mate , get motivated , I know also how hard that is too , , it helps to just get it off your chest , that's why I joined this forum , and I sure ramble on lol
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  • Posted

    Do you know what triggers your turns off , I know tension is one as well as excessive heat and cold , I wanted to ask you that last time
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  • Posted

    Hi there thanks for the replies. I've had another seizure over the weekend & not sure what brings them on but they gave me diazepam this time & seemed to have list test sleeping. sad. Resting up today but feeling actions so off to chill. How often do you have yours?... Are you epileptic? What's polymiagla?... So sorry you have a few health going on too... Perhaps we'll help eachother in some way as my medics are not helping me much at the moment.
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  • Posted

    s about time , i have spent so much time signing in lol how are you Atom , your probably got in the right forum only i shift around between the polymyalgia and the epilepsy chat line , i too dont know much about our problem , but its scary , and i believe they do help with diazepam i just ask for 5 mg valium ,same thing , , now i have a new doc. and havent got around to sorting it out with him yet , at present im trying to rid my body of this bug that has some how fighting my immune system ,they dont know much about that one either , polymyalgia rheumatica and all they treat it with is this ... prednisone , and i have fought against it right from the start , , ,,bor there are some sorry sick people out there , im trying to build up my immune system by leaving refined foods alone and eating well , , getting back to yours and my problem i stopped taking any medication for it as i had so many side affects it was worse than the problem , im going to ask for another eeg just to see what they say , , now my last "turn " i call them was just last wednesday night , all through the night , then a couple in the morning , i stayed in bed all day till i felt a bit better , , i still think mine are worse since the specialist started me on medication , you just go along with them dont you as they are supposed to know what is best , , i get a warning with a feeling one is coming on , then a couple of hours another one a lot stronger and from then on its one after the other while i try to sleep , , , and with the 2 complaints as well as being 84 , well you know what im up against lol but im still with it and a lot of fight in me yet lol , anyway im rambling on about my self , did they put you in hospital ?? and are you on medication , ?? hope your feeling ok soon , dont know if i have been any help , but its good to chat anyway ,
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