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Anyone suffering from weight loss?

Posted , 4 users are following.

eric89660
eric89660

I've looked all over the Internet and found very little on weight loss caused by haemochromatosis. I have lost 2.5 stones in a year despite eating more than most people. I have been checked for diabetes and am okay but I do feel hungry all the time. Has anyone else experienced this?

1 like, 6 replies

6 Replies

  • mary89522
    mary89522 eric89660

    Posted

    Its interesting you mentioned this, I have had a amazing crave for sugar since my treatments started, weight has really stayed the same.  Nurses always tell me that I am craving sugar because I am not eating enough protein.  I don't know its been really hard to stay away from beef, we are beef farmers ????? My levels are down from 850 to 56 doing treatments once a month with labs every two. Its not easy

    • eric89660
      eric89660 mary89522

      Posted

      I have gone from 1400+ to 622 but the weight loss started well before my first treatment. I have cut some foods out but I still eat many others, including protein. I don't have a very sweet tooth.

    • garrett82
      garrett82 eric89660

      Posted

      hey eric,

      brace yourself. personally i crashed hard (losing weight) then basically over night gained it back. like every other convo on here, its not a quick fix, just ride it out.

    • sheryl37154
      sheryl37154 mary89522

      Posted

      Mary, please check your local library for book "The Hemochromatosis Cookbook" by Cheryl Garrison from the Iron Disorders Institute.  Or ask them to get it in for you.  It explains why it is not necessary to avoid red meat.  Just don't have it every meal.

      Your nurse is right - avoid the sugars and starches and eat more protein and greens.

       

    • garrett82
      garrett82 eric89660

      Posted

      sorry if that was vague. it was a bumpy ride at first, but listen to your doctor. after a few months of hell i felt like a new man. really cant explain it.
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