Posted , 14 users are following.
I am thinking of trying CBD oil, because the drugs we are prescribed for RA are so nasty, you get to a point that you don't what's worse the symtoms of RA or the side effects.
Any comments or has anyone tried it with success.
0 likes, 14 replies
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natasa24657 faye05942
Posted
hi faye
i have been on CBD oil for a week but still taking other drugs for my illness i am quite comfortable at moment but wouldn't stop your medication as i think they both do different jobs cbd is good for pain relieve and anti imflamation but doesnt suppress your immune system which is the cause of your problem i hope this helps
bob_2020 faye05942
Posted
could not agree with u more faye what u said there i have been told to try the CBD oil as well i have never tried anything like this before but willing to try it..just wondering are u ok to drive after taking oil
faye05942 bob_2020
Posted
Hi Bob
Apparently the thc is taken out of the cbd, so yes you can drive,
Faye
diane77471 faye05942
Posted
Hi Faye. I see 2 replies that are being censored on this site. I doubt you will get any helpful replies. Sometimes I think the drug companies are running this site. Good luck.
chris65956 faye05942
Posted
I am seriously thinking of trying this but when I spoke to my Dr was told not enough is known about it, not available on NHS and best to speak to rheumatologist before going any further so am no nearer deciding what to do. My next appointment is in May so will wait and see. I would love to know how others get on as injecting every week is not much fun.
donna24355 faye05942
Posted
I've been using it the past several months in addition to my biologic, MTX, plaquenil, mobic and steroid. Three months ago my pain and inflammation was the worst its ever been. I also started a gluten free diet about 2 months ago (gluten causes inflammation). At my 3 month visit yesterday my inflammation had returned to normal levels and my rheumatologist said to keep doing everything I'm doing.
FYI that I'm on CIMZIA as Humira didnt work for me.
SO, can't say it's all the CBD but I can't say it hasn't contributed to helping.
MR._BELLA faye05942
Posted
I have PMR and have been taking CBD for 2 months and I can't tell any difference , but I am still on Prednisone. I have a friend that has RA and he quit Methotrexate and is taking CBD only and he said he was doing ok. He takes .75ml two times daily on a empty stomach. Keep the CBD under the tongue for 90 seconds then swallow. Hope it works for you.
gaz1234 faye05942
Posted
Hello
Ive tried different strengths of the stuff.
500mgs then 1000mgs as i just wanted to stop taking painkillers.
I knew i'd allways have to be on my meds.
20 mgs of mtx weekly and one fortnightly injection of humira.
I acceot those but just tried to get off the p/killers
But for me the oil didnt work, it did a little but not what i hoped for so i binned at idea. It might work for you though.
You never know until you try.
Good luck
Gaz
faye05942
Posted
Thanks for all your replies, I'm definately going to start with CBD as I have been able to source some, I will stay on the mtx at the moment and I'm tapering down with the pred (I hate pred , it has caused me so much grief) the mtx is so far so good as long as I don't exceed 20mg, my doctor increased the dosage to 30mg, and I spent two weeks sick as a dog. I dropped the dosage down to 20mg and all is good, I'll let him know when I see him in a couple of weeks, LOL my body, my decisions. ultimately it is our decisions on what we take, I'm ok if they inform me first about what to expect when they prescibe a drug, but when I first went on PRED the doctor at the time did not inform of possible side effects, all he said was it will stop the pain and I was to watch what I put in my mouth!! (and pred did not have much of an effect on the pain) all the side effects for nothing. I will post how am going with the cbd in a couple of weeks, hopefully it will be the miracle its claiming to be......
treezsh faye05942
Posted
hi faye, looking forward to hearing how you got on with CBD. I so agree with you about prednisolone, somehow the 120ml injections seems to work a minor miracle for a few weeks without any side effects for me... apart from being full of beans!! but the oral pred is hell for me, I just feel so awful on them. Roll on new drugs or better still natural remedies! I was recommended a book called arthritis by Dr John Mansfield, interesting ideas on diet and nutrition, worth a read too looking at natural ways of dealing with this. \good luck with the CBD
diane77471 faye05942
Posted
Hi Faye, yes, please let us know how the CBD works for you. I've heard such positive replies for other diseases with the CBD oil and would love to hear we have other alternatives. Good luck.
treezsh faye05942
Posted
no I havent tried it but plan to, unfortunately the type sold here (holland + Barrett) contain so little that I cannot see how it would help with RA pain I think some is available on line from Holland. I personally cannot see how it would affect the rheumatoid process, ie the synovial thickening and pannus formation so joint damage would happen. as I understand it affects pain and pain is not the only devastating thing about RA really is it?
faye05942
Posted
3 weeks down the track and I have tapered the pred to 3mg with no problems. I have spoken to my GP and my Specialist and they both agree that it is helping me. Now to try and get it the legal way.
There are so many on the market with different strengths, I'm taking 1.5ml a day which I will increase slowly until I'm pain free...
I am still taking the MTX at 20mg a week, but I really won't know the whole story until I'm off pred completely......
Guest faye05942
Posted
No, I haven't, but I am looking forward to trying CBD products as they are proven to work well in treating the symptoms of many diseases and disorders! Before you try taking CBD oil, I recommend you to start with a small dosage and understand its side effects to avoid complications in the future. You want to check to determine the right dosage and know more about the side effects of taking CBD oils.
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