Anyone try Diamox?

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I saw my neuro yesterday....I had to remind him again about my lumbar puncture results, which he did not have yet....going on for 3 months...

Anyway I mentioned again how the lumbar puncture procedure replaced my migraine with the lumbar puncture headache. But this headache lasted for a couple days, and the good ole migraines said, "Missed me?"

So I thought it strange, but I asked the neuro a few times about and he magically forgot. He was preparing to send off forms to my insurance about Botox when a light bulb lit and he prescribed me Diamox.

I really do not trust this doctor after what I have been through with him and his staff.

(He told me he has never heard of anyone having a migraine that does not go away; stating he was always successful. I know I am not the only person with this condition. I am not sure if I had chronic migraines; I never been diagonised with them properly. I only read it off the care summary they send home with me.

Sorry for the rant. Is it worth trying Diamox?

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5 Replies

  • Posted

    Hi Bookermarilla, did you ever try the Diamox? I haven't heard of it. You can tell your neuro that another person has migraines 24/7. I have had them since 4/5/2010. All I'm taking is pain medication. I currently take 56mg of dilaudid per day (which needs an increase). We are now trying to determine what and how much pain meds to be used in a pain pump implant. I'll let you know how it goes. We tried liquid (of course) dilaudid but it didn't work. We are now going to try sufentanil. God bless and I'll pray for you.

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  • Posted

    Not familiar with that drug, but if I had $1000 for every dr, chiropractor, message therapist, neurologist, dentist that said I can cure migraines I'd be rich. I've been to them all and here I am, maybe even worse off trying to find a cure, a better day, a day without a migraine, a day where I feel like I used to. Fighting the depression is as hard as fighting the migraines. (Sorry, I just have to laugh at a neurologist that says "he's always successful. I'd like to meet him!)

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    • Posted

      Haha he wasn't successful... He was just a basic neuro. I was referred to him by my doctor. The Neuro was arrogant and rude. I stopped seeing him.

      I found a neuro who specialized in migraines. This new one is trying and is more helpful. I feel like us patients are the ones teaching these specialists our conditions.

      Nothing has helped for me. I take my meds and avoid triggers.

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  • Posted

    Now you have me curious. I don't know about you but I don't asleep at night (or during the day). I generally sleep 2 - 3 nights per were. I have been diagnosed with central sleep apnea and when I looked up Diamox, it is prescribed for the sleep disorder. Sleep apnea can be caused by opioids use. Ding, ding, ding, I have been taking them for at least 10 years. Thanks for the tip. I'm gonna bring it up.

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    • Posted

      I actually did not try Diamox because I did not trust the Neuro that I saw last fall. The Neuro was rude and did not want to take his/her time to aid me. I am on a third Neuro. This new Neuro understands the severity of migraines because she has experience in the subject matter vs my last Neuro.

      Currenly, I am on zonisamide 25mg. Nothing has worked for me. I am supposed to get Botox in mid Sept.

      I was diagnosed with chronic daily migraines with associated veritgo aka vestibular migraines and Alice In Wonderland syndrome. I do not have sleep apnea. I do have trouble sleeping because of the medicines that I am on. Usually the Neuro will change it because of it. This current med doesn't really bother my sleeping schedule.

      I have noticed the Neuro is giving me meds that doctors/pharmaceutical shops have not heard of. Like Diamox and Zonisamide.

      So far I have no relief.

      Ask your Neuro about Diamox... Maybe it will help.

      Sorry for taking awhile to reply.

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