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Anyone with Complex Chiari (type 1.5) get a second surgery?

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BraydenJose
BraydenJose

I have most of my symptoms I had before surgery, with only a few of the actually less troublesome ones beings fixed. After surgery I have new neck pain and had CCI, which got mostly better after PT. That caused new problems with vision and a “bobble head” for a while.

My surgeon initially said there was about a 20% possibility I would need a second surgery.

I also have basilar invagination and a retroflexed ondontoid. So the next surgery would involve a spinal fusion where they put pins in the spine and fuse them into the skull. I’d lose 40% or so mobility in turning my head.

Anyone go through this type of surgery? I actually thought my first decompression (C1 laminectomy, craniectomy, duraplasty) was incredibly smooth, not painful, and easy to recover from. ACL/meniscus surgery was more painful. I am far outside the norm there and the doctor said he had never seen a patient like me, so I’m lucky there. So anyone have experience with a second surgery like this?

Also, anyone else have a yellow skull? Apparently I do, and the doc said he had never seen that.

I’m a weirdo it seems haha. Would love to hear about experiences from anyone else, especially about the spinal fusion part. Thanks!

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  • BraydenJose
    BraydenJose

    Posted

    have most of my symptoms I had before surgery, with only a few of the actually less troublesome ones beings fixed. After surgery I have new neck pain and had CCI, which got mostly better after PT. That caused new problems with vision and a “bobble head” for a while. https://pnrstatus.vip/

    My surgeon initially said there was about a 20% possibility I would need a second surgery.

    I also have basilar invagination and a retroflexed ondontoid. So the next surgery would involve a spinal fusion where they put pins in the spine and fuse them into the skull. I’d lose 40% or so mobility in turning my head.

    Anyone go through this type of surgery? I actually thought my first decompression (C1 laminectomy, craniectomy, duraplasty) was incredibly smooth, not painful, and easy to recover from. ACL/meniscus surgery was more painful. I am far outside the norm there and the doctor said he had never seen a patient like me, so I’m lucky there. So anyone have experience with a second surgery like this? https://sarkariresult.onl/

    issue solved!!

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