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I have been ill for the past 9 months following a trip to Cuba during which I had 'travellers tummy'. This cleared up after a week and then 10 days after I returned home I suddenly came down with a mystery illness.
Heart flutters and tachycardia, weak/heavy chest muscles (resulting in a feeling of 'air hunger' where I could not take a deep enough breath for 2.5 months), dizziness, numbness in arms, legs and my end two fingers on both hands, pins and needles, a feeling of 'walking through treacle' when trying to move as my legs were so heavy. A feeling of disequilibirum when I did walk as if one leg was shorter or the ground was 'spongey'. The floor appeared to move beneath my feet on multiple occasions. I felt nauseas as if travel sick often. I also had a feeling of whole body malaise and tremulousness made much worse if I watched TV, used a computer or tried to focus on people's faces as they spoke. The world looked constantly warped as if I was drugged. I shook internally constantly (as if my organs were shaking), I had sensations of 'energy/electricity' coursing through my body just under my skin which was extremely unnerving. I also had intermittent mild IBS type symptoms and feelings of having a 'sudden adrenaline rush' at times upon standing, sitting and when falling asleep. I developed extreme hypoglycaemic like issues and have constant sharp pains in my ears.
I was hospitalised for a week in a side room after 2.5 months of this as I had developed slight abdominal pain, kidney and lower back pain and conjunctivitis too. During my time in hospital terrible muscle pain in calves set in (as if I had ran a a marathon) alongside wide spread joint main - particlaurly painful in fingers/hands.
My lab results showed a slightly elevated white blood count and high levels of anticardiolipin IGG. I was also found to have a zinc deficiency. My cortisol levels were also consistently very high but were successfuly suppressed by dexamethasone.
This week, 9 months into illness, I have tested positive for leptospirosis antibodies. My doctor is not convinced it can still be an active infection but I have read it can be a chronic condition similar to lyme disease.
Does anybody else have experience of chronic leptospirosis? Or able to relate to leptospirosis presenting with symptoms similar to mine?
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