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ANYONE WITH MS AND PHN JUST LOOKING FOR ANYONE WITH THIS,

Posted , 5 users are following.

michael5678
michael5678

****I AM 56 got MS when I was 40 I was a runner, then MS destroyed my love for running. Then the shots for treatment, then an oral med, then a lowered immune system, then the shingles at 49 with PHN, then when I turned 54 two heart attacks not supper serious, but still a life changing event. I am suffering more from PHN, then anything else. It makes MS worse. Walking is harder, I just deal with the pain. Mine surrounds the left side of my lower waist. I have done Narcs, and a list of other meds., I am looking for a cure. Not for MS, but PHN something that rids your body of the pain for good. I know my doctor tells me of stories where It can last forever. Any hope that it goes away would be good,

0 likes, 3 replies

3 Replies

  • Geezee
    Geezee michael5678

    Posted

    Wish I had better news for you. I've been searching for a cure myself for a long time but there doesn't seem to be anything that's 100% guaranteed. You could look into the following options which, if available, have the potential to cure or at least drastically reduce the pain:

    Gamma knife - a radiation therapy which carries a risk of cancer.

    Ketamine infusions - there are different approaches ranging from monthly infusions to a 3-day in-patient therapy. There's evidence it helps with neuropathic pain, but not necessarily post-herpatic neuralgia.

    These are things you could ask your doctor about. The best advice I can give though is to find a really good Pain Clinic. They should know what the best options are for you beyond what a GP or even a specialist might know.

  • judy44014
    judy44014 michael5678

    Posted

    Have you looked into Essential Oils? I've been using them since week 3 of shingles outbreak I did a great deal of research and am using the ones that will ease pain as well as repair damaged nerves. It's still too soon to know long term results ( it's been only 4 weeks since outbreak) but my pain continues to lessen except for when I'm asleep. Have no explanation for that. I do believe that the oils are helping however. I'd say that it's worth looking into

  • ashok1082
    ashok1082 michael5678

    Posted

    Try IFT and Tens physiotherapy( the machine is not expensive) .It may help.

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