Posted , 3 users are following.
I have relapsing polychondritis and I'm trying to connect with people who have this disease. The disease is rare and very painful.
0 likes, 4 replies
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EileenH clair55835
Posted
Honestly don't think I have come across it in the over 7 years I've been participating in this community - and that is hundreds of patients.
Sorry I can't help and Good luck in your search
clair55835 EileenH
Posted
Thank so much. It is a very rare disease!! It's depressing not to have a group that I can talk to.
Anhaga clair55835
Posted
There's a facebook page, if that's any help. Private messging you the link.
cher42845 clair55835
Posted
Facebook group is 'RP - Relapsing Polychondritis Awareness and Support'