Anyone with Relapsing Polychondritis please let me know!

Posted , 3 users are following.

I have relapsing polychondritis and I'm trying to connect with people who have this disease. The disease is rare and very painful.

0 likes, 4 replies

4 Replies

  • Posted

    Honestly don't think I have come across it in the over 7 years I've been participating in this community - and that is hundreds of patients.

    Sorry I can't help and Good luck in your search

    • Posted

      Thank so much. It is a very rare disease!! It's depressing not to have a group that I can talk to.

  • Posted

    There's a facebook page, if that's any help.  Private messging you the link.

  • Posted

    Facebook group is 'RP - Relapsing Polychondritis Awareness and Support'

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